scholarly journals Disparities in intensity of treatment at end‐of‐life among children according to the underlying cause of death

2020 ◽  
Author(s):  
S Wolff ◽  
C Christiansen ◽  
S Johnsen ◽  
H Schroeder ◽  
A Darlington ◽  
...  
Keyword(s):  
End Of Life ◽  
Cause Of Death ◽  
Underlying Cause Of Death ◽  
Intensity Of Treatment

Comparing Underlying and Contributory Cause of Death in Registry Data With End-of-Life Proxy Interviews: Findings From The Irish Longitudinal Study on Ageing (TILDA)

2020 ◽  
pp. 073346482093529
Author(s):  
Mark Ward ◽  
Peter May ◽  
Charles Normand ◽  
Rose Anne Kenny ◽  
Anne Nolan
Keyword(s):  
Longitudinal Study ◽  
End Of Life ◽  
Cause Of Death ◽  
Causes Of Death ◽  
Community Dwelling ◽  
Death Certificates ◽  
Nationally Representative ◽  
Underlying Cause Of Death ◽  
Kappa Agreement ◽  
Level Of Agreement

Cause of death is an important outcome in end-of-life (EOL) research. However, difficulties in assigning cause of death have been well documented. We compared causes of death in national death registrations with those reported in EOL interviews. Data were from The Irish Longitudinal Study on Ageing (TILDA), a nationally representative sample of community-dwelling adults aged 50 years and older. The kappa agreement statistic was estimated to assess the level of agreement between two methods: cause of death reported in EOL interviews and those recorded in official death registrations. There was moderate agreement between underlying cause of death recorded on death certificates and those reported in EOL interviews. Discrepancies in reporting in EOL interviews were systematic with better agreement found among younger decedents and where the EOL informant was the decedents’ partner/spouse. We have shown that EOL interviews may have limited utility if the main goal is to understand the predictors and antecedents of different causes of death.

scholarly journals Prognostic predictors relevant to end-of-life palliative care in Parkinson’s disease and related disorders: a systematic review

2021 ◽  
pp. jnnp-2020-323939
Author(s):  
Umer Akbar ◽  
Robert Brett McQueen ◽  
Julienne Bemski ◽  
Julie Carter ◽  
Elizabeth R Goy ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
End Of Life ◽  
Cause Of Death ◽  
Quantitative Research ◽  
Motor Dysfunction ◽  
Clinical Markers ◽  
Hospice Referral ◽  
Survey Responses

Parkinson’s disease and related disorders (PDRD) are the second most common neurodegenerative disease and a leading cause of death. However, patients with PDRD receive less end-of-life palliative care (hospice) than other illnesses, including other neurologic illnesses. Identification of predictors of PDRD mortality may aid in increasing appropriate and timely referrals. To systematically review the literature for causes of death and predictors of mortality in PDRD to provide guidance regarding hospice/end-of-life palliative care referrals. We searched MEDLINE, PubMed, EMBASE and CINAHL databases (1970–2020) of original quantitative research using patient-level, provider-level or caregiver-level data from medical records, administrative data or survey responses associated with mortality, prognosis or cause of death in PDRD. Findings were reviewed by an International Working Group on PD and Palliative Care supported by the Parkinson’s Foundation. Of 1183 research articles, 42 studies met our inclusion criteria. We found four main domains of factors associated with mortality in PDRD: (1) demographic and clinical markers (age, sex, body mass index and comorbid illnesses), (2) motor dysfunction and global disability, (3) falls and infections and (4) non-motor symptoms. We provide suggestions for consideration of timing of hospice/end-of-life palliative care referrals. Several clinical features of advancing disease may be useful in triggering end-of-life palliative/hospice referral. Prognostic studies focused on identifying when people with PDRD are nearing their final months of life are limited. There is further need for research in this area as well as policies that support need-based palliative care for the duration of PDRD.

Doro Rekufa and Tsvitsa: Beer, Animals and Death Rituals among the Ndau of South Eastern Zimbabwe

Utafiti ◽  
2015 ◽  
Vol 11 (1-2) ◽  
pp. 1-16
Author(s):  
Plan Shenjere-Nyabezi
Keyword(s):  
End Of Life ◽  
Cause Of Death ◽  
Religious Belief ◽  
Belief Systems ◽  
African Continent ◽  
Death Rituals ◽  
South Eastern ◽  
Attitudes Towards Death ◽  
Death Signals

Despite Westernization and particularly the advent of Christianity and its widespread entrenchment on the African continent, traditional indigenous rituals continue to constitute an integral part of African religious belief systems and practices. This article presents the results of an ethnoarchaeological study of two death rituals that are conducted by the Ndau people of south eastern Zimbabwe. The rituals are a demonstration of attitudes towards death and beliefs about the role of the dead among the living. The Ndau do not believe that death signals and represents the end of life. In the same vein and perhaps more importantly, the Ndau do not believe that death just happens. It is caused by human agency out of jealousies, hatred and conflict among the living. These beliefs are central to the two rituals presented and discussed here: the first ritual is conducted to ascertain cause of death and the second to bring back the spirit of the deceased from a temporary state of limbo immediately after death. Meat and beer are central to these rituals, firstly as offerings to the deceased and secondly as an important part of the living celebration of the rituals. The paper then explores some interpretive implications of the rituals from an archaeological perspective.

Validating reported cause of death using integrated electronic health records from a nation-wide database

2019 ◽  
Author(s):  
Maya Leventer-Roberts ◽  
Ziona Haklai ◽  
Yael Applbaum ◽  
Nehama Goldberger ◽  
Dror Cohen ◽  
...  
Keyword(s):  
Electronic Health Records ◽  
Cause Of Death ◽  
Alternative Explanation ◽  
Health Records ◽  
Fully Integrated ◽  
Clalit Health Service ◽  
Electronic Health ◽  
Underlying Cause Of Death ◽  
Lower Respiratory Disease ◽  
Final Cohort

Abstract Background To compare the underlying cause of death reported by the Israeli Central Bureau of Statistics (CBS) with diagnoses in the electronic health records (EHR) of a fully integrated payer/provider healthcare system. Methods Underlying cause of death was obtained from the CBS for deaths occurring during 2009–2012 of all Clalit Health Service members in Israel. The final cohort consisted of members who had complete medical records. The frequency of a supportive diagnosis in the EHR was reported for 10 leading causes of death (malignancies, heart disease, cerebrovascular disease, diabetes, kidney disease, septicemia, accidents, chronic lower respiratory disease, dementia and pneumonia and influenza). Results Of the 45 680 members included in the study, the majority of deaths had at least one diagnosis in the EHR that could support the cause of death. The lowest frequency of supportive diagnosis was for septicemia (52.2%) and the highest was for malignancies (94.3%). Sensitivity analysis did not suggest an alternative explanation for the missing documentation. Conclusions The underlying cause of death coded by the CBS is often supported by diagnoses in Clalit’s EHR. Exceptions are septicemia or accidents that cannot be anticipated from a patient’s EHR, and dementia which may be under-reported.

scholarly journals Clustering of 27,525,663 Death Records from the United States Based on Health Conditions Associated with Death: An Example of big Health Data Exploration

2019 ◽  
Vol 8 (7) ◽  
pp. 922
Author(s):  
Daisy J.A. Janssen ◽  
Simon Rechberger ◽  
Emiel F.M. Wouters ◽  
Jos M.G.A. Schols ◽  
Miriam J. Johnson ◽  
...  
Keyword(s):  
United States ◽  
Palliative Care ◽  
End Of Life ◽  
Cause Of Death ◽  
The United States ◽  
Population Based ◽  
Health Conditions ◽  
Mortality Data ◽  
Self Organizing Map ◽  
Multiple Health

Background: Insight into health conditions associated with death can inform healthcare policy. We aimed to cluster 27,525,663 deceased people based on the health conditions associated with death to study the associations between the health condition clusters, demographics, the recorded underlying cause and place of death. Methods: Data from all deaths in the United States registered between 2006 and 2016 from the National Vital Statistics System of the National Center for Health Statistics were analyzed. A self-organizing map (SOM) was used to create an ordered representation of the mortality data. Results: 16 clusters based on the health conditions associated with death were found showing significant differences in socio-demographics, place, and cause of death. Most people died at old age (73.1 (18.0) years) and had multiple health conditions. Chronic ischemic heart disease was the main cause of death. Most people died in the hospital or at home. Conclusions: The prevalence of multiple health conditions at death requires a shift from disease-oriented towards person-centred palliative care at the end of life, including timely advance care planning. Understanding differences in population-based patterns and clusters of end-of-life experiences is an important step toward developing a strategy for implementing population-based palliative care.

Cause of Death and End-of-Life Experiences in Individuals with Dementia with Lewy Bodies

2018 ◽  
Vol 67 (1) ◽  
pp. 67-73 ◽  
Author(s):  
Melissa J. Armstrong ◽  
Slande Alliance ◽  
Pamela Corsentino ◽  
Steven T. DeKosky ◽  
Angela Taylor
Keyword(s):  
End Of Life ◽  
Cause Of Death ◽  
Dementia With Lewy Bodies ◽  
Life Experiences ◽  
Lewy Bodies

scholarly journals Querying of Death Certificates in the United States

2005 ◽  
Vol 120 (3) ◽  
pp. 288-293 ◽  
Author(s):  
Donna L. Hoyert ◽  
Ann R. Lima
Keyword(s):  
United States ◽  
New York ◽  
Incomplete Information ◽  
Cause Of Death ◽  
The United States ◽  
Death Certificates ◽  
Death Rates ◽  
Underlying Cause Of Death ◽  
The Impact ◽  
Registration Area

Objective. Data from death certificates are often used in research; however, little has been published on the processing of vague or incomplete information reported on certificates. The goal of this study was to examine the querying efforts in the United States used to clarify such records. Methods. The authors obtained data on the querying efforts of the 50 states, New York City, and the District of Columbia. Descriptive statistics are presented for two units of analysis: registration area and death record. Using data from a single registration area, Washington State, the authors compared the percent change in age-adjusted death rates for data from before and after querying to analyze the effect of querying on selected causes of death. Results. Fifty-one of the 52 registration areas queried either demographic or cause-of-death information. Almost 90% of queries were returned; the underlying cause of death changed in approximately 68% of these records. This data translates into about 3% of total U.S. death records, given that 4% of total U.S. death records were queried about cause of death. The impact of queries on age-adjusted death rates varied by cause of death. Generally, the effect is most obvious for cause-of-death categories that are specific and relatively homogenous. Conclusion. Querying continues to be widely practiced. In the case of cause-of-death queries, this method refines the assigned underlying cause of death for records reported with vague or incomplete information.

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