Quality of life was similar in children with congenital diaphragmatic hernia and oesophageal atresia and related to respiratory morbidity

2020 ◽  
Author(s):  
Laura Darmaun ◽  
Stephanie Lejeune ◽  
Elodie Drumez ◽  
Sebastien Mur ◽  
Fanny Langle‐Chevalier ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Oesophageal Atresia ◽  
Respiratory Morbidity

Long-Term Health-Related Quality of Life in Survivors of Congenital Diaphragmatic Hernia

2020 ◽  
Vol 30 (03) ◽  
pp. 273-278
Author(s):  
Gabrielle Derraugh ◽  
Suyin A. Lum Min ◽  
Richard Keijzer
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Health Related Quality ◽  
Quality Of Life Scale ◽  
Related Quality ◽  
Health Related ◽  
Poor Outcomes

AbstractThe health-related quality of life (HRQoL) of survivors of congenital diaphragmatic hernia (CDH) is presently unknown. Literature prior to 2015 suggests that CDH survivors have worse HRQoL compared with the general population. However, due to changes in the diagnosis, management, and follow-up of CDH patients, this may no longer be true. The objective of this review was to determine what recent literature suggests regarding the HRQoL of CDH survivors. We reviewed all studies published between April 9, 2015, and April 6, 2020, that described the HRQoL of CDH survivors. Studies were identified using PubMed, and the references of the identified papers were searched for additional studies eligible for inclusion. Seven studies describing HRQoL in CDH survivors using validated measures of HRQoL for children, PedsQL (Pediatric Quality of Life Inventory), KIDSCREEN-52, and Comprehensive Quality of Life Scale – School Version were examined. The findings were disparate. One study suggested that CDH survivors had better than average HRQoL scores, three studies found patients and controls had equivalent scores, and two studies reported poor outcomes for CDH patients. The final study found no effect of disease severity on HRQoL, as determined by prenatal ultrasound. Evidence published between 2015 and 2020 suggests that CDH patients have an HRQoL equivalent to the general population.

scholarly journals The current obstetrical and perinatal management of congenital diaphragmatic hernia

2021 ◽  
Vol 16 (S4) ◽  
pp. 21-26
Author(s):  
Bianca Mihaela DANCIU ◽  
◽  
Vlad DIMA ◽  
Dora BOGHIȚOIU ◽  
Ana Maria Alexandra STĂNESCU ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Research Data ◽  
Multidisciplinary Management ◽  
Severe Condition ◽  
Perinatal Management ◽  
Genetic And Environmental Factors

Congenital diaphragmatic hernia is a severe condition with an etiology and pathogenesis still been developed; also, the involvement of genetic and environmental factors in the occurrence of this malformation is under study. Morbi-mortality in these patients is high, and quality of life is diminished. Under these circumstances, careful follow-up of the pregnancy and multidisciplinary management after birth is needed to diagnose the malformation as early as possible and adapt the therapeutic plan to the particularities of each case. In conclusion, despite several research data in the literature concerning this topic, the management of newborn babies with congenital diaphragmatic hernia remains a severe challenge. The treatment of congenital diaphragmatic hernia remains the prerogative of overqualified teams.

Health‐related quality of life of caregivers of children with congenital diaphragmatic hernia

2021 ◽  
Author(s):  
Sahar Al Baroudi ◽  
Joseph M. Collaco ◽  
Melanie K. Nies ◽  
Jessica L. Rice ◽  
Eric B. Jelin
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Psychological outcome and quality of life in children born with congenital diaphragmatic hernia

2009 ◽  
Vol 94 (11) ◽  
pp. 834-840 ◽  
Author(s):  
M G Peetsold ◽  
J Huisman ◽  
V E Hofman ◽  
H A Heij ◽  
H Raat ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Psychological Outcome

Parent reported long-term quality of life outcomes in children after congenital diaphragmatic hernia repair

2019 ◽  
Vol 54 (4) ◽  
pp. 645-650 ◽  
Author(s):  
Jill L. Morsberger ◽  
Heather L. Short ◽  
Katherine J. Baxter ◽  
Curtis Travers ◽  
Matthew S. Clifton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hernia Repair ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Life Outcomes ◽  
Quality Of Life Outcomes ◽  
Diaphragmatic Hernia Repair
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