Health‐related quality of life of caregivers of children with congenital diaphragmatic hernia

2021 ◽  
Author(s):  
Sahar Al Baroudi ◽  
Joseph M. Collaco ◽  
Melanie K. Nies ◽  
Jessica L. Rice ◽  
Eric B. Jelin
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Long-Term Health-Related Quality of Life in Survivors of Congenital Diaphragmatic Hernia

2020 ◽  
Vol 30 (03) ◽  
pp. 273-278
Author(s):  
Gabrielle Derraugh ◽  
Suyin A. Lum Min ◽  
Richard Keijzer
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Health Related Quality ◽  
Quality Of Life Scale ◽  
Related Quality ◽  
Health Related ◽  
Poor Outcomes

AbstractThe health-related quality of life (HRQoL) of survivors of congenital diaphragmatic hernia (CDH) is presently unknown. Literature prior to 2015 suggests that CDH survivors have worse HRQoL compared with the general population. However, due to changes in the diagnosis, management, and follow-up of CDH patients, this may no longer be true. The objective of this review was to determine what recent literature suggests regarding the HRQoL of CDH survivors. We reviewed all studies published between April 9, 2015, and April 6, 2020, that described the HRQoL of CDH survivors. Studies were identified using PubMed, and the references of the identified papers were searched for additional studies eligible for inclusion. Seven studies describing HRQoL in CDH survivors using validated measures of HRQoL for children, PedsQL (Pediatric Quality of Life Inventory), KIDSCREEN-52, and Comprehensive Quality of Life Scale – School Version were examined. The findings were disparate. One study suggested that CDH survivors had better than average HRQoL scores, three studies found patients and controls had equivalent scores, and two studies reported poor outcomes for CDH patients. The final study found no effect of disease severity on HRQoL, as determined by prenatal ultrasound. Evidence published between 2015 and 2020 suggests that CDH patients have an HRQoL equivalent to the general population.

scholarly journals Health-related quality of life in children born with congenital diaphragmatic hernia

2018 ◽  
Vol 34 (4) ◽  
pp. 405-414 ◽  
Author(s):  
Elin Öst ◽  
Björn Frenckner ◽  
Margret Nisell ◽  
Carmen Mesas Burgos ◽  
Maria Öjmyr-Joelsson
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Health-related quality of life and its determinants in children with a congenital diaphragmatic hernia

2013 ◽  
Vol 8 (1) ◽  
pp. 89 ◽  
Author(s):  
Fabrice Michel ◽  
Karine Baumstarck ◽  
Agathe Gosselin ◽  
Pierre Le Coz ◽  
Thierry Merrot ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Diaphragmatic Hernia ◽  
Diaphragmatic Hernia ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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