scholarly journals Cohort Profile: HealthWise Wales. A research register and data collection and analysis platform with linkage to NHS datasets in Wales

2019 ◽  
Author(s):  
Lisa Hurt ◽  
Pauline Ashfield-Watt ◽  
Julia Townson ◽  
Luke Heslop ◽  
Lauren Copeland ◽  
...  
Keyword(s):  
Data Collection ◽  
Cost Effective ◽  
Complete Information ◽  
Epidemiological Studies ◽  
Population Based ◽  
Lifestyle Factors ◽  
Online Data ◽  
Healthcare Data ◽  
Demographic Subgroups ◽  
Analysis Platform

AbstractPurposeRecruitment and follow-up in epidemiological studies is challenging, time-consuming and expensive. Combining online data collection with a register of individuals who agree to be contacted with information on research opportunities provides an efficient, cost-effective platform for population-based research. HealthWise Wales (HWW) aims to support researchers by recruiting a cohort of “research-ready” individuals; advertising relevant studies to these participants; providing access to cohort data for secondary analyses; and supporting data collection on specific topics that can be linked with healthcare data.ParticipantsAdults (aged 16 and above) living or receiving their healthcare in Wales are eligible for inclusion. Participants consent to be followed-up every 6 months; for their details to be used to access their routinely-collected NHS records for research purposes; to be contacted about research projects in which they could participate; and to be informed about involvement or engagement opportunities. Data are collected using a web-based application, with new questionnaires added every six months. Data collection on socio-demographic and lifestyle factors is repeated at two-to-three year intervals. Recruitment is ongoing, with 21,779 active participants (alive and currently registered).Findings to date99% of participants have complete information on age and sex, and 64% have completed questionnaires on socio-demographic and lifestyle factors. These data can be linked with national health databases within the Secure Anonymised Information Linkage (SAIL) databank, with 93% of participants matching a record in SAIL. HWW has facilitated recruitment of 43,826 participants to 15 different studies.Future plansThe medium-term goal for the project is to enrol at least 50,000 adults. Recruitment strategies are being devised to achieve a study sample that closely models the population of Wales, with sufficient numbers in socio-demographic subgroups to allow for the selection of populations for research from those groups. Potential bio-sampling methods are also currently being explored.

scholarly journals Cohort profile: HealthWise Wales. A research register and population health data platform with linkage to National Health Service data sets in Wales

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e031705 ◽  
Author(s):  
Lisa Hurt ◽  
Pauline Ashfield-Watt ◽  
Julia Townson ◽  
Luke Heslop ◽  
Lauren Copeland ◽  
...  
Keyword(s):  
National Health Service ◽  
Data Collection ◽  
Health Service ◽  
National Health ◽  
Complete Information ◽  
Epidemiological Studies ◽  
Population Based ◽  
Lifestyle Factors ◽  
Online Data

PurposeRecruitment and follow-up in epidemiological studies are time-consuming and expensive. Combining online data collection with a register of individuals who agree to be contacted about research opportunities provides an efficient, cost-effective platform for population-based research. HealthWise Wales (HWW) aims to facilitate research by recruiting a cohort of individuals who have consented to be informed about research projects, advertising studies to participants, supporting data collection on specific topics and providing access to linked healthcare data for secondary analyses. In this paper, we describe the design of the project, ongoing data collection, methods of data linkage to routine healthcare records, baseline characteristics of participants, the strengths and limitations of the register, and the ways in which the project can support researchers.ParticipantsAdults (aged 16 years and above) living or receiving their healthcare in Wales are eligible for inclusion. Participants consent to be contacted for follow-up data collection and for their details to be used to access their routinely collected National Health Service records for research purposes. Data are collected using a web-based application, with new questionnaires added every 6 months. Data collection on sociodemographic and lifestyle factors is repeated at intervals of 2–3 years. Recruitment is ongoing, with 21 779 participants alive and currently registered.Findings to date99% of participants have complete information on age and sex, and 64% have completed questionnaires on sociodemographic and lifestyle factors. These data can be linked with national health databases within the Secure Anonymised Information Linkage (SAIL) databank, with 93% of participants matching a record in SAIL. HWW has facilitated the recruitment of 43 826 participants to 15 different studies.Future plansThe medium-term goal for the project is to enrol at least 50 000 adults. Recruitment strategies are being devised to achieve a study sample that closely models the population of Wales. Potential biosampling methods are also currently being explored.

scholarly journals A66 GEOGRAPHIC VARIATION AND INCREASED INVOLVEMENT OF INTERVENTIONAL RADIOLOGISTS IN THE MANAGEMENT OF REFRACTORY ASCITES: A POPULATION BASED STUDY

2020 ◽  
Vol 3 (Supplement_1) ◽  
pp. 79-80
Author(s):  
D Motomura ◽  
M Djerboua ◽  
J Flemming
Keyword(s):  
Cost Effective ◽  
Standard Of Care ◽  
Population Based ◽  
Incidence Rates ◽  
Case Definition ◽  
Refractory Ascites ◽  
Local Health ◽  
Provider Type ◽  
Healthcare Data ◽  
Research Award

Abstract Background The disease burden from cirrhosis is increasing worldwide. Refractory ascites (RA) is a complication of cirrhosis associated with poor prognosis if liver transplant is not an option. Serial large volume paracentesis (LVP) is the standard of care in the management of refractory ascites (RA) and outpatient LVP has been shown to be safe and cost effective. Epidemiologic data is lacking regarding the incidence of RA, or how patients with RA are managed in routine clinical practice. Aims To describe secular trends in the incidence of RA in Ontario from 2000–2017, and to describe physician provider types performing LVPs in the RA population in Ontario. Methods This retrospective, population-based cohort study uses routinely collected healthcare data from Ontario, Canada, housed at ICES. From January 1, 2000 to Dec 31, 2017 all adult patients with cirrhosis were identified using a validated case definition, and those with RA were identified based on the need for serial LVP. All LVP procedures were described based on patient demographics, local health integration network (LHIN), physician type (Gastroenterology [GI], Internal Medicine [IM], Interventional Radiology [IR], Emergency Medicine [ER], other) and albumin administration. Annual incidence rates (IR) of RA in patients with cirrhosis were calculated and compared using Poisson regression to calculate incident rate ratios (IRRs). Annual LVP volume by provider type and LHIN were calculated and differences were compared using chi-squared analysis. Results The overall incidence of RA in patients with cirrhosis remained relatively stable over the study period (IRR 1.01, 95% CI 1.00–1.02 P<.001). The highest incidence of RA was in those with viral hepatitis and alcohol-related cirrhosis. A total of 90,126 LVPs were identified (median age 61 years [IQR 53–70], 69% male, median LVP per patient 24 [IQR 11–48], 15.8% received albumin infusion). The absolute numbers of LVPs more than tripled over the study period (12,047 in 1997–2002 vs. 37,437 in 2013–2017). GI performed the majority of LVPs (40.1%) followed by IR (22.4%), and IM (8.4%), but there was substantial variation based on location (Fig 1). Overall, the proportion performed by IR increased during the study (7.8% in 1997–2002 vs 30.8% in 2013–2017, P <.001) while the proportion performed by GI decreased (50% 1997–2002 vs 33.1% 2013–2017, P<.001). Conclusions The number of LVPs performed for RA have increased dramatically in Ontario over the past two decades, with the proportion being performed by GI physicians decreasing, while IR is increasing. Substantial variability exists across LHINs on the use of LVP, which may reflect differences in access to resources for LVP, or physician practice. Appropriate albumin use with LVP remains an area for potential quality improvement initiatives in the future. Funding Agencies AASLD Foundation Clinical Translational and Outcomes Research Award in Liver Disease (for supervisor JF)

Lessons learned from the Canadian cancer registry experience

2017 ◽  
Vol 31 (1) ◽  
pp. 9-12 ◽  
Author(s):  
Maureen MacIntyre ◽  
Cathy MacKay
Keyword(s):  
Data Collection ◽  
Health System ◽  
Patient Outcomes ◽  
Cancer Registry ◽  
Care Delivery ◽  
Population Based ◽  
Lessons Learned ◽  
Opportunities To Learn ◽  
Healthcare Data ◽  
Canadian Health

Health leaders and caregivers are focused on evidence-based data to drive care delivery and practice. Ensuring the health system is functioning effectively and efficiently and that patient outcomes are reaching expected targets are topics that permeate conversations at the local, provincial, and national levels. However, as many leaders have come to understand in recent years, healthcare data collection and producing meaningful, high-quality metrics is a complex set of tasks, requiring its own level of attention and dedicated resources. In the healthcare data realm, there are opportunities to learn from experience. One of these opportunities is the population-based cancer registry, which is one of the oldest examples of standardized data collection in the Canadian health system.

scholarly journals Operatively treated ankle fractures in Switzerland, 2002–2012: epidemiology and associations between baseline characteristics and fracture types

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Diogo Vieira Cardoso ◽  
Victor Dubois-Ferrière ◽  
Axel Gamulin ◽  
Christophe Baréa ◽  
Pablo Rodriguez ◽  
...  
Keyword(s):  
Epidemiological Studies ◽  
Population Based ◽  
Lifestyle Factors ◽  
Older Age ◽  
Ankle Fractures ◽  
Men And Women ◽  
Trimalleolar Fractures ◽  
The Us ◽  
Trimalleolar Fracture ◽  
Fracture Types

Abstract Background Ankle fractures are common, and their incidence has been increasing. Previous epidemiological studies have been conducted in the US, Scandinavia, and Scotland. Our objectives were to provide a current epidemiological overview of operatively treated ankle fractures and to evaluate the influence of age, sex, lifestyle factors, and comorbidities on fracture types. Methods We performed a population-based epidemiological study of all ankle fractures treated operatively in a 10- year period from 2002 to 2012. Results Two thousand forty-five ankle fractures were operated upon. Men and women differed significantly in age (median 41 vs. 57 years old), obesity (16% vs. 23%), diabetes (5% vs. 10%), smoking (45% vs. 24%), and accident type (daily activities 48% vs. 79%, transportation 24% vs. 9%, sports 21% vs. 8%) respectively. Overall, there were 2% Weber A, 77% Weber B, and 21% Weber C fractures; 54% were uni-, 25% bi-, and 21% trimalleolar; 7.5% of all fractures were open. Weber C fractures were much more frequent among men and with higher BMI (lowest vs. highest category: 14% vs. 32%), but slightly less frequent with older age and among current smokers. Trimalleolar fractures were twice as frequent in women and increased with age. Conclusion Men and women differed substantially in age, lifestyle factors, comorbidities, accident type, and type of ankle fracture. Male sex and higher BMI were more frequently associated with Weber C fractures, whereas female sex and older age were associated with trimalleolar fracture. The risk for severe fracture increased linearly with the degree of obesity.

scholarly journals Body Dissatisfaction Measured with a Figure Preference Task and Self-Esteem in 8 Year Old Children—a Study within the ABIS-Project

2008 ◽  
Vol 2 ◽  
pp. CMPed.S932 ◽  
Author(s):  
F.S. Koch ◽  
J. Ludvigsson ◽  
A. Sepa
Keyword(s):  
Body Size ◽  
Body Dissatisfaction ◽  
Cost Effective ◽  
Self Esteem ◽  
Epidemiological Studies ◽  
Population Based ◽  
Preference Task ◽  
Adults And Children ◽  
Ideal Body ◽  
Figure Preference

Body dissatisfaction has been related to low self-esteem and depression in adolescents. With regard to the current world wide rise in childhood obesity and common stigmatization of adults and children with obesity, easy to use and cost effective measurements of body dissatisfaction would be helpful in epidemiological research. In the current study, detailed data on body measurements with regard to perceived and ideal body size and body dissatisfaction, as measured with the figure preference task, are presented for a population based sample of 3837 children. Perceived body size correlations to weight, body mass index [BMI], and waist circumference were between 0.41 and 0.54; and to height between 0.12 and 0.21. Odds ratios for lower self-esteem increased with increase in body dissatisfaction. Gender differences in body dissatisfaction were present but not found in relation to self-esteem. It is concluded that the figure preference task yields valuable information in epidemiological studies of children as young as 7.5 years of age. It is argued, that the figure preference task is an additional measurement which theoretically relates to psychological stress in childhood.

Ethnic Differences in Self-Poisoning Across South London

Crisis ◽  
2014 ◽  
Vol 35 (4) ◽  
pp. 268-272
Author(s):  
Sean Cross ◽  
Dinesh Bhugra ◽  
Paul I. Dargan ◽  
David M. Wood ◽  
Shaun L. Greene ◽  
...  
Keyword(s):  
Black Women ◽  
Data Collection ◽  
White Women ◽  
Population Based ◽  
Care Services ◽  
Self Harm ◽  
Managing Risk ◽  
The Uk ◽  
Incident Cases ◽  
Minority Ethnic

Background: Self-poisoning (overdose) is the commonest form of self-harm cases presenting to acute secondary care services in the UK, where there has been limited investigation of self-harm in black and minority ethnic communities. London has the UK’s most ethnically diverse areas but presents challenges in resident-based data collection due to the large number of hospitals. Aims: To investigate the rates and characteristics of self-poisoning presentations in two central London boroughs. Method: All incident cases of self-poisoning presentations of residents of Lambeth and Southwark were identified over a 12-month period through comprehensive acute and mental health trust data collection systems at multiple hospitals. Analysis was done using STATA 12.1. Results: A rate of 121.4/100,000 was recorded across a population of more than half a million residents. Women exceeded men in all measured ethnic groups. Black women presented 1.5 times more than white women. Gender ratios within ethnicities were marked. Among those aged younger than 24 years, black women were almost 7 times more likely to present than black men were. Conclusion: Self-poisoning is the commonest form of self-harm presentation to UK hospitals but population-based rates are rare. These results have implications for formulating and managing risk in clinical services for both minority ethnic women and men.

PROSES KOMUNIKASI KELOMPOK DALAM METODE PEMBELAJARAN SENTRA UNTUK MEMBENTUK KEMANDIRIAN ANAK

Jurnal Common ◽  
2018 ◽  
Vol 2 (2) ◽  
Author(s):  
Rismawaty Rismawaty ◽  
Sofie Aulia Rahmah
Keyword(s):  
Data Collection ◽  
Qualitative Method ◽  
Group Communication ◽  
Communication Process ◽  
Learning Method ◽  
Online Data ◽  
Analysis Techniques ◽  
Collection Data ◽  
Descriptive Approach ◽  
Using Data

Penelitian ini dilakukan untuk mengetahui proses komunikasi kelompok dalam metode pembelajaran sentra di TK Zaid bin Tsabit. Penelitian ini mendiskusikan tentang proses komunikasi kelompok. Metode penelitian yang digunakan dalam penelitian ini adalah Metode Kualitatif dengan pendekatan Deskriptif. Teknik pengumpulan data yang dilakukan peneliti ada dengan studi pustaka, penelusuran data secara online, wawancara, observasi serta dokumentasi dengan 3 orang informan kunci yaitu guru di TK Zaid bin Tsabit serta 3 informan pendukung yaitu Kepala TK Zaid bin Tsabit dan 2 orang tua murid. Uji keabsahan data dengan peningkatan ketekunan, triangulasi dan diskusi dengan teman sejawat, teknik analisis data menggunakan pengumpulan data, reduksi data, penyajian data, penarikan kesimpulan dan evaluasi.Hasil penelitian ini bahwa Proses komunikasi yang terjadi merupakan komunikasi langsung yang terjadi dua arah dan dilakukan terus menerus untuk membentuk kemandirian anak. Proses komunikasi yang terjadi dalam kelompok metode pembelajaran sentra membentuk kemandirian anak. Proses komunikasi yang dilakukan oleh guru kepada anak dilakukan dengan memberikan arahan-arahan kepada anak serta contoh dari arahan yang telah disampaikan oleh guru.Kesimpulan pada penelitian ini adalah metode pembelajaran sentra membentuk kemandirian anak lewat komunikasi yang dilakukan guru secara terus menerus, karna melalui pembelajaran sentra anak diminta untuk melakukan segala sesuatunya sendiri dalam pengawasan guru. Saran yang diberikan adalah guru harus lebih kreatif dalam memberikan materi pada metode pembelajaran sentra serta bersikap lebih tegas dalam mendidik anak dan melakukan komunikasi yang berkelanjutan dengan orang tua murid. --------------------------------------------------------------------------------- This study was conducted to determine the process of group communication in the center learning method at TK Zaid bin Tsabit. This study discusses the process of group communication. The research method used in this study is a qualitative method with a descriptive approach. The data collection techniques carried out by the researcher were with literature studies, online data searches, interviews, observation and documentation with 3 key informants namely the teacher at TK Zaid bin Tsabit and 3 supporting informants namely TK Head Zaid bin Tsabit and 2 parents. Test the validity of data by increasing perseverance, triangulation and discussion with colleagues, data analysis techniques using data collection, data reduction, data presentation, drawing conclusions and evaluations.The results of this study that the communication process that occurs is direct communication that occurs in two directions and carried out continuously to form the independence of children. The communication process that occurs in a group of central learning methods shapes children's independence. The process of communication carried out by the teacher to the child is done by giving directions to the child as well as examples of directions that have been delivered by the teacher.The conclusion of this study is that the central learning method shapes children's independence through continuous communication by the teacher, because through central learning children are asked to do everything themselves in the supervision of the teacher. The advice given is that the teacher must be more creative in giving material to the central learning method and be more assertive in educating children and making ongoing communication with parents.

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