scholarly journals Dementia as Fixed or Malleable: Development and Validation of the Dementia Mindset Scale

2020 ◽  
Vol 4 (4) ◽  
Author(s):  
Lena K Kunz ◽  
Susanne Scheibe ◽  
Barbara Wisse ◽  
Kathrin Boerner ◽  
Claudia Zemlin
Keyword(s):  
Quality Of Care ◽  
Well Being ◽  
Factorial Structure ◽  
Divergent Validity ◽  
Dementia Caregiving ◽  
Convergent And Divergent Validity ◽  
Development And Validation ◽  
Design And Methods ◽  
Person Centered Approach

Abstract Background and Objectives Care professionals differ in how they experience and respond to dementia caregiving. To explain such differences, we developed a new measure: the Dementia Mindset Scale. This scale captures the extent to which care professionals view dementia as stable and fixed (akin to the biomedical perspective) or as flexible and malleable (akin to the person-centered approach). Research Design and Methods We conducted four studies to develop the scale. We tested items for comprehensibility, assessed the scale’s factorial structure and psychometric properties, and investigated its predictive validity for care professionals’ well-being. Results A new scale with a two-factor structure—distinguishing a malleable dementia mindset from a fixed dementia mindset—was developed. Results showed good convergent and divergent validity. Moreover, the dementia mindsets predicted aspects of job-related well-being in care professionals. Discussion and Implications The scale allows for the assessment of individual differences in how care professionals see dementia. This insight can be used to improve interventions aimed at enhancing care professionals’ well-being and quality of care.

scholarly journals Sterilization regret in India: Is quality of care a matter of concern?

2020 ◽  
Vol 5 (1) ◽  
Author(s):  
Anjali Bansal ◽  
Laxmi Kant Dwivedi
Keyword(s):  
Quality Of Care ◽  
Family Planning ◽  
Health Facility ◽  
Fold Increase ◽  
Well Being ◽  
Poor Quality ◽  
Public Health Facility ◽  
The Family ◽  
Planning Methods

Abstract Background According to United Nations, 19% of females in the world relied only on the permanent method of family planning, with 37% in India according to NFHS-4. Limited studies tried to measure the sterilization regret, and its correlated factors. The study tried to explore the trend of sterilization regret in India from 1992 to 2015 and to elicit the determining effects of various factors on sterilization regret, especially in context to perceived quality of care in the sterilization operations and type of providers. Data and methods The pooled data from NFHS-1, NFHS-3 and NFHS-4 was used to explore the regret by creating interaction between time and all the predictors. Predicted probabilities were calculated to show the trend of sterilization regret amounting to quality of care, type of health provider at the three time periods. Results The sterilization regret was increased from 5 % in NFHS-1 to 7 % in NFHS-4. According to NFHS-4, for those whose sterilization was performed in private health facility the regret was found to be less (OR-0.937; 95% CI- (0.882–0.996)) compared to public health facility. Also, the results show a two-fold increase in regret when women reported bad quality of care. The results from predicted probabilities provide enough evidence that the regret due to bad quality of care in sterilization operation had increased with each subsequent round of NFHS. Conclusion Many socio-economic and demographic factors have influenced the regret, but the poor quality of care contributed maximum to the regret from 1992 to 2015. The health facilities have seriously strayed from improving the health and well-being of women in providing the family planning methods. In addition, to public facilities, the regret amounting to private facilities have also increased from NFHS-1 to 4. The quality of care provided in the family planning operation should be standardized in every hospital to strengthen the health systems in the country. The couple should be motivated to adopt more of spacing methods.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

scholarly journals Older HIV+ and HIV− Adults Provide Similar Definitions of Successful Aging: A Mixed-Methods Examination

2018 ◽  
Vol 60 (3) ◽  
pp. 385-395 ◽  
Author(s):  
Pariya L Fazeli ◽  
Jessica L Montoya ◽  
Chastity N McDavid ◽  
David J Moore
Keyword(s):  
Older Adults ◽  
General Health ◽  
Successful Aging ◽  
Well Being ◽  
Neurocognitive Impairment ◽  
Older Individuals ◽  
Demographic Correlates ◽  
Biological Health ◽  
Design And Methods

Abstract Background and Objective As HIV-infected (HIV+) individuals age, there is a need to understand successful aging (SA) from the patient perspective. This study compared SA definitions between HIV+ and HIV-uninfected (HIV−) older adults and then examined correlates of SA categories. Research Design and Methods Ninety-three HIV+ and 46 HIV− older (aged 50+) adults provided brief definitions of SA, which was examined using content analysis. We then compared the frequency of SA categories by serostatus and examined the correlates of SA categories within both groups. Results Seven SA categories emerged: General Health, Cognitive Health & Ability, Physical/Biological Health & Ability, Social Relationships, Attitudes, Psychological, & Emotional Well-Being, Proactive & Engaged Lifestyle, and Independence. While no significant differences emerged, HIV− older adults were more likely to report General Health and the subcategory of Longevity/Survival, while HIV+ older adults were more likely to report subcategories of Enjoying Life & Fulfillment and Maintaining Balance. Few demographic correlates of SA categories emerged. Mood and HIV characteristics were not associated with SA categories. In both groups, those without neurocognitive impairment were significantly more likely to endorse General Health than those with neurocognitive impairment. Discussion and Implications HIV+ and HIV− older individuals may generally perceive SA similarly, and their definitions parallel with existing models of SA. Yet, living with a chronic illness may cause HIV+ older adults to place greater value on quality of life and life satisfaction than physical health and chronological age. Observational and intervention studies may use similar approaches in evaluating and maximizing SA.

scholarly journals Translation, Cultural Adaptation and Validation of The Caregiver Well-Being Scale (CWBS) in Iranian Schizophrenia Caregivers: A Methodological and Cross-Sectional Study

2020 ◽  
Author(s):  
Shahpar Bagheri ◽  
Ladan Zarshenas ◽  
Mahnaz Rakhshan ◽  
Farkhondeh Sharif ◽  
Ebrahim Moghimi Sarani ◽  
...  
Keyword(s):  
Cultural Adaptation ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Cultural ◽  
Divergent Validity ◽  
Sectional Study ◽  
Cross Sectional ◽  
Cross Cultural Adaptation ◽  
Persian Version ◽  
Convergent And Divergent Validity

Abstract Background: Family caregivers of individual with schizophrenia experience various stresses in everyday life which have a negative impact on their well-being. The Caregiver Well-Being Scale(CWBS) is an instrument with psychometrics properties that identifies many important factors associated with caregiving stressors, and provides a picture of overall felt well-being. Since, there is no Persian version of this instrument for investigating schizophrenia caregiver’s well-being, cross cultural adaptation and evaluation of the psychometric properties of the CWBS among Iranian Schizophrenia caregivers is required.Methods: A methodological and cross-sectional study was conducted with 144 Schizophrenia caregivers in psychiatric centers affiliated to Shiraz University of Medical Sciences(SUMS), in the south of Iran. Persian version of the CWBS was generated in two phases: Phase 1 – Cross-cultural adaptation using forward translation and backward translation methods in five stages. Phase 2 – Psychometric properties test involved assessing content validity, construct validity by exploratory factor analysis and convergent and divergent validity, reliability by internal consistency and test –retest.Results: The translation, cross-cultural adaptation and qualitative content validity resulted in some semantic modifications to the original CWBS version. Both subscales of CWBS -(Basic Need(BN) and Activities of Daily living (ADL)- showed a significant strong positive correlation with total CWBS, (BN: r = 0.81 and ADL: r= 0.88), moderate positive correlation with SOC (BN: r = 0.42 and ADL: r = 0.46), and moderate negative correlation with CBI (BN: r = -0.38 and ADL: r= -0.47) (all p<0.001), presenting convergent and divergent validity. Factor analysis and Varimax Rotation provide evidence that the Persian version encompasses three underlying constructs for ADL and BN, as the original scale. The CWBS showed acceptable internal consistency (Cronbach’s alpha: 0. 0.842) and satisfactory test-retest reliability within 2.5 weeks interval (intraclass correlation coefficient was 0.872 (95% confidence interval [CI], 0.827 to 0.906)) for 14 items.Conclusions: The results showed the Persian adapted version of CWBS complies the validity and reliability of the criteria required. The scale can be employed in practice and research to assess well-being in Iranian caregivers of individuals with schizophrenia. Registration number: (registration no.97-01-08-18819).

scholarly journals Development and validation of a motivational persistence scale

Psihologija ◽  
2012 ◽  
Vol 45 (2) ◽  
pp. 99-120 ◽  
Author(s):  
Ticu Constantin ◽  
Andrei Holman ◽  
Maria Hojbotă
Keyword(s):  
Factor Analysis ◽  
Self Report ◽  
Divergent Validity ◽  
Canonical Correlations ◽  
Confirmatory Factor ◽  
Specific Goal ◽  
Convergent And Divergent Validity ◽  
History Of ◽  
Development And Validation

The main goal of our research was to develop a new measure of persistence and to assess its construct validity and psychometric proprieties. First, we discuss the history of the psychological construct of persistence, defined here as the tendency to remain engaged in specific goal-related activities, despite difficulties, obstacles, fatigue, prolonged frustration or low perceived feasibility. The developed scale, measuring motivational persistence, contains three-factors: long-term purposes pursuing, current purposes pursuing and recurrence of unattained purposes. The results of the two validation studies conducted, employing both exploratory and confirmatory factor analysis, advocate the hypothesized structure. Also, the Pearson and canonical correlations between the three factors of the new self-report scale and other three related measures (and their factors) indicate good levels of convergent and divergent validity of the new scale.

scholarly journals Client Satisfaction and Experience With Telepsychiatry: Development and Validation of a Survey Using Clinical Quality Domains (Preprint)

2020 ◽  
Author(s):  
Eva Serhal ◽  
Anne Kirvan ◽  
Marcos Sanches ◽  
Allison Crawford
Keyword(s):  
Mental Health ◽  
Patient Satisfaction ◽  
Quality Of Care ◽  
Quality Care ◽  
Clinical Intervention ◽  
Strongly Correlated ◽  
Clinical Quality ◽  
Survey Tool ◽  
Development And Validation

BACKGROUND Telepsychiatry is an increasingly used model of mental health care that connects patients with psychiatrists at a distance via videoconference. Telepsychiatry is an effective clinical intervention that improves access to quality care in regions with limited resources or in clinical situations where in-person care is unavailable. OBJECTIVE This study aims to develop a validated survey tool to measure patient experience and satisfaction with telepsychiatry based on the quality of care domains. This study also seeks to understand which health service outcomes were most strongly correlated with overall satisfaction in the context of telepsychiatry. METHODS The survey created in this study was developed and validated with a panel of subject matter and process experts and was piloted with 274 patients who received clinical consultations through the TeleMental Health Program at the Centre for Addiction and Mental Health. Factor analysis was used to determine correlations between questions and quality of care domains and was also used to assess model fit. RESULTS The study provides a validated survey to measure patient satisfaction and experience with telepsychiatry across 4 domains: access and timeliness, appropriateness, effectiveness, and safety. Both safety and access and timeliness were found to be statistically significant predictors of satisfaction in our sample. CONCLUSIONS By situating patient satisfaction and experience within this framework, the survey facilitates patient data collection and interpretation through a clinical quality lens.

Development and Validation of a Cross-Country Hospital Patient Quality of Care Assessment Tool in Europe

2017 ◽  
Author(s):  
Amanda Villiers-Tuthill ◽  
Karolina Doulougeri ◽  
Hannah McGee ◽  
Anthony Montgomery ◽  
Efharis Panagopoulou ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Assessment Tool ◽  
Hospital Patient ◽  
Care Assessment ◽  
Cross Country ◽  
Development And Validation

Entrepreneurial orientation and burnout among healthcare professionals

2020 ◽  
Vol 34 (1) ◽  
pp. 16-22
Author(s):  
Claudine Kearney ◽  
Padraic Dunne ◽  
William J. Wales
Keyword(s):  
Quality Of Care ◽  
Entrepreneurial Orientation ◽  
Healthcare Professionals ◽  
Focal Point ◽  
Well Being ◽  
Organizational Outcomes ◽  
Healthcare Sector ◽  
High Tech ◽  
Content Type

PurposeAmong healthcare professionals, burnout is one of the key challenges affecting organizational outcomes, employee productivity and quality of care. The knowledge of burnout and its root causes and primary contributors continues to grow yet remains limited. In many environments, an entrepreneurial orientation (EO) has been shown to dramatically improve organizational outcomes and performance. The purpose of this paper is to illustrate critical research areas at the intersection of organizational EO and employee burnout within the healthcare sector.Design/methodology/approachA conceptual model which considers how EO has the potential to provide an operational context that may negate, lessen or delay the negative effects of burnout among healthcare professionals, is advanced as a useful focal point to foster research exploring connections between organizational orientation and employee well-being.FindingsInsights into how an opportunity-embracing EO characteristic of high-tech firms may shape how stress is experienced and address burnout when applied to healthcare organizations. A decrease in burnout stands to improve quality of care as well as the satisfaction of staff and patients alike, including a greater sense of autonomy, engagement, motivation and passion.Originality/valueThis research agenda proposes new insights and the need for additional research into how the manifestation of organizational EO may contribute to the field of medicine, influence burnout and enhance the well-being among healthcare professionals.

scholarly journals Development and pilot testing of quality improvement indicators for integrated primary dementia care

2020 ◽  
Vol 9 (2) ◽  
pp. e000916
Author(s):  
Dorien L Oostra ◽  
Minke S Nieuwboer ◽  
Marcel G M Olde Rikkert ◽  
Marieke Perry
Keyword(s):  
Quality Of Care ◽  
Cost Efficiency ◽  
Care Service ◽  
Well Being ◽  
Dementia Care ◽  
Improve Quality ◽  
Pilot Testing ◽  
Modified Delphi ◽  
Care Organisation

BackgroundImplementation of integrated primary care is considered an important strategy to overcome fragmentation and improve quality of dementia care. However, current quality indicator (QI) sets, to assess and improve quality of care, do not address the interprofessional context. The aim of this research was to construct a feasible and content-wise valid minimum dataset (MDS) to measure the quality of integrated primary dementia care.MethodsA modified Delphi method in four rounds was performed. Stakeholders (n=15) (1) developed a preliminary QI set and (2) assessed relevance and feasibility of QIs via a survey (n=84); thereafter, (3) results were discussed for content validity during a stakeholder and (4) expert consensus meeting (n=8 and n=7, respectively). The stakeholders were professionals, informal caregivers, and care organisation managers or policy officers; the experts were professionals and researchers. The final set was pilot-tested for feasibility by multidisciplinary dementia care networks.ResultsThe preliminary set consisted of 40 QIs. In the survey, mean scores for relevance ranged from 5.8 (SD=2.7) to 8.5 (SD=0.7) on a 9-point Likert scale, and 25% of all QIs were considered feasible to collect. Consensus panels reduced the set to 15 QIs to be used for pilot testing: 5 quality of care, 3 well-being, 4 network-based care, and 3 cost-efficiency QIs. During pilot testing, all QIs were fully completed, except for well-being QIs.ConclusionA valid and feasible MDS of QIs for primary dementia care was developed, containing innovative QIs on well-being, network-based care and cost-efficiency, in addition to quality of care QIs. Application of the MDS may contribute to development and implementation of integrated care service delivery for primary dementia care.

Measuring the experience of consumers: reliability and factorial structure of the Take Two stakeholder survey

2019 ◽  
Vol 44 (03) ◽  
pp. 154-161
Author(s):  
Margarita Frederico ◽  
Allison Cox ◽  
Mohajer A. Hameed
Keyword(s):  
Quality Of Care ◽  
Clinical Practice ◽  
User Experience ◽  
Child Protection ◽  
Care Practice ◽  
Factorial Structure ◽  
Therapeutic Program ◽  
Abuse And Neglect ◽  
Service User Experience

AbstractThe service user experience of children, their families and other stakeholders in a therapeutic program should inform quality of care, practice and organisation of services. Children referred to Take Two are clients of Child Protection for whom abuse and neglect have been substantiated. This paper aims to describe the development of the Take Two Stakeholder Survey, as well as to examine the reliability and factorial structure of the survey. In addition, the experience of consumers utilising the service will be described together with recommendations for clinical practice improvements and enhanced consumer engagement.

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