Argumentation and risk communication about genetic testing

2014 ◽  
pp. 113-129
Author(s):  
Nancy L. Green
Keyword(s):  
Genetic Testing ◽  
Risk Communication

scholarly journals Genetic testing for hereditary cancer syndromes: patient recommendations for improved risk communication

2020 ◽  
Vol 23 (4) ◽  
pp. 884-892 ◽  
Author(s):  
Samantha Pollard ◽  
Steve Kalloger ◽  
Deirdre Weymann ◽  
Sophie Sun ◽  
Jennifer Nuk ◽  
...  
Keyword(s):  
Genetic Testing ◽  
Risk Communication ◽  
Hereditary Cancer ◽  
Hereditary Cancer Syndromes ◽  
Cancer Syndromes

scholarly journals Responsibility in dealing with genetic risk information

2019 ◽  
Author(s):  
Sabine Wöhlke ◽  
Julia Perry
Keyword(s):  
Genetic Testing ◽  
Risk Communication ◽  
Risk Perceptions ◽  
Predictive Testing ◽  
Risk Information ◽  
Special Focus ◽  
Care Family ◽  
Early Onset Alzheimer’S Disease ◽  
Focus On Forms ◽  
German Cities

AbstractPredictive testing information raises questions about risk communication, health responsibility, and about how to deal with the gap between knowledge of risks and options to act on this knowledge. For some diseases identified by predictive testing, specific treatments or interventions are available, while other diseases, thus far, remain untreatable or unpreventable; this triggers different forms of responsibility. Gender also often intersects with moral responsibility, regarding risk communication but also responsibilities of care which may become necessary with a family member’s onset of disease. The aim of the study was to analyze laypeople’s attitudes towards predictive testing with a special focus on forms of responsibility arising while dealing with uncertainty of risk information. We conducted seven focus groups with laypeople (n = 43) in four German cities in 2016. Participants were provided with different genetic testing scenarios (breast cancer, early-onset Alzheimer’s disease, pharmacogenetics in rectal cancer) for discussing their responsibilities and risk perceptions. We identified three different forms of responsibility: self-responsibility and self-care, family responsibility and care for others, and professional responsibility. For laypeople, the decision for predictive genetic testing seems voluntary and free from external constraint; however, both family and professional conditions influence an individual’s decision.

Genetic Testing Goes Commercial

2009 ◽  
Vol 40 (12) ◽  
pp. 12 ◽  
Author(s):  
HOWARD P. LEVY
Keyword(s):  
Genetic Testing

p16 Genetic Testing Has Limited Impact

2007 ◽  
Vol 38 (11) ◽  
pp. 1-23
Author(s):  
BETSY BATES
Keyword(s):  
Genetic Testing ◽  
Limited Impact
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