scholarly journals How Uncertainty Influences Lay People’s Attitudes and Risk Perceptions Concerning Predictive Genetic Testing and Risk Communication

2019 ◽  
Vol 10 ◽  
Author(s):  
Sabine Wöhlke ◽  
Manuel Schaper ◽  
Silke Schicktanz
Keyword(s):  
Genetic Testing ◽  
Risk Communication ◽  
Risk Perceptions ◽  
Predictive Genetic Testing ◽  
People’S Attitudes

scholarly journals Responsibility in dealing with genetic risk information

2019 ◽  
Author(s):  
Sabine Wöhlke ◽  
Julia Perry
Keyword(s):  
Genetic Testing ◽  
Risk Communication ◽  
Risk Perceptions ◽  
Predictive Testing ◽  
Risk Information ◽  
Special Focus ◽  
Care Family ◽  
Early Onset Alzheimer’S Disease ◽  
Focus On Forms ◽  
German Cities

AbstractPredictive testing information raises questions about risk communication, health responsibility, and about how to deal with the gap between knowledge of risks and options to act on this knowledge. For some diseases identified by predictive testing, specific treatments or interventions are available, while other diseases, thus far, remain untreatable or unpreventable; this triggers different forms of responsibility. Gender also often intersects with moral responsibility, regarding risk communication but also responsibilities of care which may become necessary with a family member’s onset of disease. The aim of the study was to analyze laypeople’s attitudes towards predictive testing with a special focus on forms of responsibility arising while dealing with uncertainty of risk information. We conducted seven focus groups with laypeople (n = 43) in four German cities in 2016. Participants were provided with different genetic testing scenarios (breast cancer, early-onset Alzheimer’s disease, pharmacogenetics in rectal cancer) for discussing their responsibilities and risk perceptions. We identified three different forms of responsibility: self-responsibility and self-care, family responsibility and care for others, and professional responsibility. For laypeople, the decision for predictive genetic testing seems voluntary and free from external constraint; however, both family and professional conditions influence an individual’s decision.

scholarly journals The Impact of Health Risk Communication: A Study on the Dengue, Chikungunya, and Zika Epidemics in Curaçao, Analyzed by the Social Amplification of Risk Framework (SARF)

2021 ◽  
pp. 104973232110078
Author(s):  
Milou J. F. van Goudoever ◽  
Vaitiare I. C. Mulderij-Jansen ◽  
Ashley J. Duits ◽  
Adriana Tami ◽  
Izzy I. Gerstenbluth ◽  
...  
Keyword(s):  
Risk Communication ◽  
Risk Perceptions ◽  
Social Amplification Of Risk ◽  
Vector Borne Diseases ◽  
News Reports ◽  
Risk Framework ◽  
The Government ◽  
And Control ◽  
The Impact ◽  
Risk Reducing

Epidemics of dengue, chikungunya, and Zika have been threatening the Caribbean. Since risk communication (RC) plays a fundamental role in preventing and controlling diseases understanding how RC works is essential for enabling risk-reducing behavior. This multimethod qualitative study compares news reports with local’s and health professional’s perspectives, currently lacking in RC research. It was found that RC strategies were obstructed by a lack of governmental structure, organization, and communication. The content analysis showed that the majority of newspaper articles contained negative reporting on the government. Furthermore, this study shows how trust and heuristics attenuate or amplify people’s risk perceptions and possibly positively and negatively influence people’s risk-reducing behavior. A transcending approach (e.g., structural, cooperative, and multidisciplinary) of the prevention and control of vector-borne diseases and the corresponding RC is recommended.

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