An Update of Twin Research in Spain: The Murcia Twin Registry

2019 ◽  
Vol 22 (6) ◽  
pp. 667-671 ◽  
Author(s):  
Juan R. Ordoñana ◽  
Eduvigis Carrillo ◽  
Lucía Colodro-Conde ◽  
Francisco J. García-Palomo ◽  
Francisca González-Javier ◽  
...  
Keyword(s):  
Population Based ◽  
Short Term ◽  
Public Health Perspective ◽  
Twin Research ◽  
Main Research ◽  
Twin Registry ◽  
Adult Participants ◽  
Health Related ◽  
Population Based Registry

AbstractThe Murcia Twin Registry (MTR) is the only population-based registry in Spain. Created in 2006, the registry has been growing more than a decade to become one of the references for twin research in the Mediterranean region. The MTR database currently comprises 3545 adult participants born between 1940 and 1977. It also holds a recently launched satellite registry of university students (N = 204). Along five waves of data collection, the registry has gathered questionnaire and anthropometric data, as well as biological samples. The MTR keeps its main research focus on health and health-related behaviors from a public health perspective. This includes lifestyle, health promotion, quality of life or environmental conditions. Future short-term development points to the expansion of the biobank and the continuation of the collection of longitudinal data.

The Murcia Twin Registry: A Population-Based Registry of Adult Multiples in Spain

2012 ◽  
Vol 16 (1) ◽  
pp. 302-306 ◽  
Author(s):  
Juan R. Ordoñana ◽  
Irene Rebollo-Mesa ◽  
Eduvigis Carrillo ◽  
Lucía Colodro-Conde ◽  
Francisco J. García-Palomo ◽  
...  
Keyword(s):  
Development Strategy ◽  
Population Based ◽  
Short Term ◽  
Twin Registry ◽  
Health Related Behaviors ◽  
Health Related ◽  
Opposite Sex ◽  
The University ◽  
Population Based Registry

The Murcia Twin Registry (MTR) was created in 2006, under the auspices of the University of Murcia and the regional Health Authority, aiming to develop a research resource in Spain intended to stimulate current research and new investigation on the analysis of genetic factors related to health and health-related behaviors. The MTR development strategy was designed as a step-by-step process. Initially, it was focused on women's health but nowadays it includes males and opposite-sex twins. The database comprises 2,281 participants born between 1940 and 1966 in the region of Murcia, in Spain. There have been three waves of data collection and today the MTR databases include questionnaire and anthropometric data as well as biological samples. The current main areas of research interest are health and health-related behaviors, including lifestyle, health promotion, and quality of life. Future short-term development points to the completion of the biobank and continuing the collection of longitudinal data.

scholarly journals A new population-based measure of the economic burden of mental illness in Canada

2008 ◽  
Vol 28 (3) ◽  
pp. 92-98 ◽  
Author(s):  
K.L. Lim ◽  
P. Jacobs ◽  
A. Ohinmaa ◽  
D. Schopflocher ◽  
C.S. Dewa
Keyword(s):  
Quality Of Life ◽  
Mental Illness ◽  
Economic Burden ◽  
Population Based ◽  
Health Related Quality ◽  
Work Loss ◽  
Short Term ◽  
Related Quality ◽  
Health Related

This paper presents a comprehensive measure of the incremental economic burden of mental illness in Canada which incorporates the use of medical resources and productivity losses due to long-term and short-term disability, as well as reductions in health-related quality of life (HRQOL), for the diagnosed and undiagnosed population with mental illness. The analysis was based on the population-based Canadian Community Health Survey Cycle 2.1 (2003). For all persons, we measured all health services utilization, longterm and short-term work loss, and health-related quality of life and their dollar valuations, with the economic burden being the difference in dollar measures between the populations with and without mental health problems. In total, the economic burden was $51 billion in 2003. Over one-half was due to reductions in HRQOL. The current accepted practice in economic assessments is to include changes in medical resource use, work loss, and reductions in HRQOL.

scholarly journals The Italian Twin Registry: An Update at 18 Years From Its Inception

2019 ◽  
Vol 22 (6) ◽  
pp. 572-578
Author(s):  
Emanuela Medda ◽  
Virgilia Toccaceli ◽  
Corrado Fagnani ◽  
Lorenza Nisticò ◽  
Sonia Brescianini ◽  
...  
Keyword(s):  
Age Groups ◽  
Population Based ◽  
International Studies ◽  
Questionnaire Data ◽  
Twin Registry ◽  
Health Related ◽  
Research Initiatives ◽  
Population Based Registry ◽  
Age Range ◽  
Research Period

AbstractThe Italian Twin Registry (ITR), established in 2001, is a population-based registry of voluntary twins. To date, it consists of approximately 29,000 twins who gave their consent to participate in the studies proposed by the ITR research group. The database comprises 11,500 monozygotic and 16,700 dizygotic twins resident throughout the country and belonging to a wide age range (from 0 to 95 years, mean 36.8 years). This article provides an overview of the recruitment strategies along with the major phenotypes investigated during an 18 years’ research period. Over the years, several self-reported questionnaire data were collected, together with saliva/blood samples and measurements taken during in-person interviews or outpatient clinical examinations. Mental and behavioral phenotypes as well as atherosclerotic traits were studied in depth across different age groups. A birth cohort of twins was established and followed up. Novel research hypotheses are also being tested in ongoing projects. The ITR is involved in international studies in collaboration with other twin registries and represents a valuable resource for national and international research initiatives regarding a broad spectrum of health-related characteristics.

The Colorado Twin Registry: 2019 Update

2019 ◽  
Vol 22 (6) ◽  
pp. 707-715 ◽  
Author(s):  
Robin P. Corley ◽  
Chandra A. Reynolds ◽  
Sally J. Wadsworth ◽  
Sally-Ann Rhea ◽  
John K. Hewitt
Keyword(s):  
Human Genetics ◽  
Longitudinal Research ◽  
Population Based ◽  
Twin Research ◽  
Research Opportunities ◽  
Twin Registry ◽  
History Of ◽  
Population Based Registry ◽  
School Records

AbstractThe Colorado Twin Registry (CTR) is a population-based registry formed from birth and school records including twins born between 1968 and the present. Two previous reports on the CTR [Rhea et al., (2006). Twin Research and Human Genetics, 9, 941–949; Rhea et al., (2013).Twin Research and Human Genetics, 16, 351–357] covered developments in the CTR through 2012. This report briefly summarizes previously presented material on ascertainment and recruitment and the relationships between samples and studies, discusses developments since 2012 for four previously described twin samples, describes two new samples and their complementary studies and expands on two subjects briefly mentioned in the last report: a history of genotyping efforts involving CTR samples, and a survey of collaborations and consortia in which CTR twins have been included. The CTR remains an active resource for both ongoing, longitudinal research and the recruitment of new twin samples for newly identified research opportunities.

scholarly journals Short-Term Effects of Population-Based Screening for Prostate Cancer on Health-Related Quality of Life

1998 ◽  
Vol 90 (12) ◽  
pp. 925-931 ◽  
Author(s):  
M.-L. Essink-Bot ◽  
H. J. de Koning ◽  
H. G. T. Nijs ◽  
W. J. Kirkels ◽  
P. J. van der Maas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Population Based ◽  
Health Related Quality ◽  
Short Term ◽  
Related Quality ◽  
Health Related ◽  
Short Term Effects

scholarly journals On Examining the Quality of Spanish Translation in Telephone Surveys: A Novel Test-Retest Approach

2019 ◽  
Vol 8 (4) ◽  
pp. 691-705
Author(s):  
Robert P Agans ◽  
Quirina M Vallejos ◽  
Thad S Benefield
Keyword(s):  
Past Research ◽  
Population Based ◽  
Pilot Test ◽  
Spanish Translation ◽  
Convenience Sample ◽  
Single Item ◽  
Telephone Surveys ◽  
Survey Questions ◽  
Health Related

Abstract Past research has shown that commonly reported cultural group disparities in health-related indices may be attributable to culturally mediated differences in the interpretation of translated survey questions and response scales. This problem may be exacerbated when administering single-item survey questions, which typically lack the reliability seen in multi-item scales. We adapt the test-retest approach for single-item survey questions that have been translated from English into Spanish and demonstrate how to use this approach as a quick and efficient pilot test before fielding a major survey. Three retest conditions were implemented (English-Spanish, Spanish-English, and English-English) on a convenience sample (n = 109) of Latinos and non-Latinos where translated items were compared against an English-English condition that served as our control. Several items were flagged for investigation using this approach. Discussion centers on the utility of this approach for evaluating the Spanish translation of single-item questions in population-based surveys.

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