scholarly journals 3006 Academic-Community Partnership and Capacity Strengthening for Deaf Community-engaged Research in the Dominican Republic

2019 ◽  
Vol 3 (s1) ◽  
pp. 80-80
Author(s):  
Timothy De Ver Dye ◽  
José Javier Sánchez ◽  
Pablo Taveras ◽  
History Estill-Varner ◽  
Wyatte Hall ◽  
...  
Keyword(s):  
Dominican Republic ◽  
Community Organization ◽  
Human Subjects ◽  
Academic Community ◽  
Deaf Community ◽  
Middle Income ◽  
Pilot Work ◽  
Common Goals ◽  
Community Presence ◽  
Partnership Synergy

OBJECTIVES/SPECIFIC AIMS: Deaf communities in many low- and middle-income countries (LMIC) struggle to organize, advocate, and reach social and health equity in their nations. In the Dominican Republic (DR), the health and social status of Deaf citizens is unclear, which obfuscates action and advocacy based on data. A set of successful pre-existing US-DR partnerships that function well but were not previously connected, organized around submission of a community-based NIH research grant and pilot work to support it. METHODS/STUDY POPULATION: Adapting the Partnership Synergy Framework for this purpose, we evaluate the partnership, its evolution, and its experience in implementing formative research. RESULTS/ANTICIPATED RESULTS: Our experience showed the local Deaf community organization easily recruited and interfaced with the Deaf community; presence of a trusted external organization facilitated entry of the PUCMM-UR research team; and stakeholders are enthusiastic about the partnership, its outputs, and the ability to recruit Dominican Deaf citizens into research. The partnership organized around production of an R21 to the Fogarty International Center (NIH), including Human Subjects certification, budget and scope of work negotiation, and inclusion of preliminary data. DISCUSSION/SIGNIFICANCE OF IMPACT: The engagement of Deaf communities globally is virtually non-existent in clinical and translational research. This partnership in the Dominican Republic shows that partners can organize around common goals and identify logistics required to produce pilot data and an NIH grant.

scholarly journals 3009 Understanding the Lived Experience of Deaf Dominicans: Implementing Qualitative Methods with the Deaf Community in the Dominican Republic

2019 ◽  
Vol 3 (s1) ◽  
pp. 100-100
Author(s):  
Joshua Mora ◽  
Pablo Taveras ◽  
History Estill-Varner ◽  
Jose Javier Sanchez ◽  
Wyatte Hall ◽  
...  
Keyword(s):  
Dominican Republic ◽  
Lived Experience ◽  
Research Process ◽  
Deaf Community ◽  
Community Members ◽  
Middle Income ◽  
Marginalized Communities ◽  
Qualitative Approaches ◽  
Study Population ◽  
First Time

OBJECTIVES/SPECIFIC AIMS: Qualitative approaches help explore poorly understood phenomenon, and are highly engaging, enabling both sides of an encounter greater connection. Historically, Deaf communities have been marginalized and oppressed, with their linguistic needs unrecognized and ignored. As a result, Deaf participants are rarely involved in clinical research. Like other marginalized communities, the Deaf community experiences health disparity compared with others, especially in low- and middle-income settings. The purpose of this project was to assess the feasibility of conducting qualitative research with Deaf Dominicans. METHODS/STUDY POPULATION: We implemented a partnered research process with 59 Deaf community members in the Dominican Republic, conducting preliminary thematic analysis through reviews of interviews and on-site debriefings. RESULTS/ANTICIPATED RESULTS: Participants were highly engaged with the Deaf-Deaf research encounters, indicating satisfaction with both the process and with the opportunity to communicate their needs and interests. Preliminary findings indicated Deaf Dominicans were highly engaged, confirming their interest, and often stated that they felt they were being listened for the first time. Indeed, some participants claimed that this was the first time they communicated their experiences as Deaf Dominicans and appreciated the opportunity to relate this experience to Deaf interviewers. DISCUSSION/SIGNIFICANCE OF IMPACT: This experience confirms that the Deaf Dominican community can be mobilized and will participate in Deaf-Deaf research.

Indigenous and Deaf People and the Implications of Ongoing Practices of Colonization: A Comparison of Australia and Canada

2021 ◽  
pp. 016059762110015
Author(s):  
Tracey A. Bone ◽  
Erin Wilkinson ◽  
Danielle Ferndale ◽  
Rodney Adams
Keyword(s):  
Indigenous Peoples ◽  
Deaf Education ◽  
Academic Community ◽  
Intergenerational Trauma ◽  
Mental Wellbeing ◽  
Deaf People ◽  
Deaf Community ◽  
Transgenerational Trauma ◽  
Minority Communities ◽  
The Impact

In the growing field of colonial and anti-colonial research, many parallels have been drawn between Westernized countries including Australia and Canada. In both of these countries, there is considerable academic, community and governmental recognition of historic, and continuing, colonizing of Indigenous peoples and the subsequent impacts on Indigenous cultures. Terms such as transgenerational trauma and intergenerational trauma give language to the ongoing impact of colonization on communities, which in turn serves to legitimize the need for mental wellbeing supports and associated funding. However, there are other minority communities that are similarly oppressed and colonized but do not experience the same legitimization. One such community is the Deaf community. Deaf people continue to experience systemic oppression and colonization within our hearing centric society. Building on the work of Batterbury, Ladd and Gulliver (2007), we extend discussions on the parallels between Indigenous and Deaf communities of Australia and Canada, drawing on the established and commonly discussed link between the impact of racism and colonization on (mental) health. We connect these discussions to modern instances of colonization including the aspect of deaf education to illustrate a “living” mechanism through which colonization continues to impact mental wellbeing in the broader Deaf community.

Clinical Progress in the Management of Tetralogy of Fallot in the Dominican Republic: A Case Series

2017 ◽  
Vol 8 (5) ◽  
pp. 584-589
Author(s):  
María T. Perez ◽  
Marietta Vázquez ◽  
Michael F. Canarie ◽  
Janet Toribio ◽  
Juan León-Wyss
Keyword(s):  
Dominican Republic ◽  
Tetralogy Of Fallot ◽  
Congenital Heart ◽  
Care Setting ◽  
Case Series ◽  
Middle Income ◽  
Surgical Interventions ◽  
Time Of Surgery ◽  
Middle Income Countries ◽  
Complex Forms

Background: Definitive surgical interventions for Dominican children with congenital heart disease, like those of other low- and middle-income countries, have been historically limited. Methods: We undertook review of a case series focusing on the surgical correction of complex forms of tetralogy of Fallot at a single center, CEDIMAT Centro Cardiovascular, in the Dominican Republic, over a 30-month period. Results: According to our criteria, 43 cases were determined to be complex tetralogy of Fallot repairs from the two-year period. Besides tetralogy of Fallot, the cohort had an additional 55 anatomic anomalies that had to be addressed at the time of surgery. Median age at the time of surgery was notably 30 months, and an average of 42 months elapsed from the time of diagnosis to the time of surgery for this group. Only 33% of the cases reviewed had no hypercyanotic crises before repair. Median time to extubation for this group of patients was one day, with a three-day median length of stay in the intensive care setting. Conclusions: Our study importantly captures the present experience of a surgical congenital heart program that has recently transitioned from a traditional “mission model” to a now self-sustaining local practice. Both the number and the complexity of the lesions corrected in this caseload represent an advance from the level of care previously provided to children in the Dominican Republic.

scholarly journals Effects of Urban Development Praxis on Economic Inequality in Latin American Cities

Urban Science ◽  
2019 ◽  
Vol 3 (3) ◽  
pp. 88
Author(s):  
Gustavo Alberto Cadenas Delascio ◽  
Luis E. Hernández-Ponce ◽  
Gerardo L. Febres
Keyword(s):  
Urban Development ◽  
Latin American ◽  
Community Organization ◽  
Local Governance ◽  
Economic Inequality ◽  
Multiple Linear Regression Model ◽  
Developing Regions ◽  
Common Goals ◽  
Statistical Relationships ◽  
American Cities

In a highly and rapidly urbanized world, the effect of the action of urban development is determinant for the physical, social, and economic conditions of its citizens, among which is inequality. It is even more crucial for developing regions such as Latin America on which this research is conducted. Therefore, the focus of the investigation was to determine the existence of significant statistical relationships between urban development and economic inequality in the region. For this purpose, it was sought to define urban development from the perspective of the praxis of multilateral organizations measured by indicators of extensive use among them. A hierarchical multiple linear regression model was built with six urban development variables predictors of the Gini coefficient as an indicator of economic inequality, in which data of 49 Latin American cities was used. The application of the method allowed us to discover a stochastic behavior of interaction between those multidimensional systems and confirmed the statistical relation. The research allows having a tool for the formulation of public policies that seek to strengthen local governance, promote community organization and participation, and assert urban planning as an agent for concerted efforts to achieve common goals.

scholarly journals Indoor Cooking Practices and Associated Health Factors Among Participants in the Dominican Republic and Nicaragua: A Collaborative Study Between Respiratory Therapy Students and Comunidad Connect

2021 ◽  
Author(s):  
Rachel Culbreth ◽  
Rachel Trawick ◽  
Jon Thompson ◽  
Douglas Gardenhire
Keyword(s):  
Blood Pressure ◽  
Carbon Monoxide ◽  
Dominican Republic ◽  
Systolic Blood Pressure ◽  
Collaborative Study ◽  
Vital Signs ◽  
Flow Measurements ◽  
Middle Income ◽  
Factors Associated ◽  
Cooking Practices

The purpose of this study is to determine factors associated with indoor cooking practices and specific vital signs across two middle-income countries, Dominican Republic and Nicaragua. This study used data from Nicaragua (n=76) and Dominican Republic (n=62) (collected in 2018-2019). Multivariable linear regression was utilized to determine factors associated with carbon monoxide levels and systolic blood pressure. Among all participants (n=138), approximately half lived in Nicaragua (n=76, 55.1%) and half lived in Dominican Republic (n=62, 44.9%). The overall smoking prevalence in each country was low (9.2% in Nicaragua and 4.8% in Dominican Republic). Age was associated with higher carbon monoxide levels and higher systolic blood pressure measurements in each country. Future studies should examine a broader range of contextual and behavioral factors related to carbon monoxide and peak flow measurements in the two countries.

scholarly journals Factors related with sarcopenia and sarcopenic obesity among low- and middle-income settings: the 10/66 DRG study

2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Christina Daskalopoulou ◽  
Yu-Tzu Wu ◽  
William Pan ◽  
Iago Giné Vázquez ◽  
Martin Prince ◽  
...  
Keyword(s):  
Dominican Republic ◽  
Rural China ◽  
Sarcopenic Obesity ◽  
Obesity Prevalence ◽  
Fat Percentage ◽  
Middle Income ◽  
Middle Income Countries ◽  
Dementia Research ◽  
Low And Middle Income

AbstractSarcopenia and sarcopenic obesity research in low- and middle- income countries (LMICs) is limited. We investigated sarcopenia and sarcopenic obesity prevalence and sociodemographic, bio-clinical and lifestyle factors in LMICs settings. For the purposes of this study, the 10/66 Dementia Research Group follow-up wave information from individuals aged 65 and over in Cuba, Dominican Republic, Peru, Mexico, Puerto Rico, China, was employed and analysed (n = 8.694). Based on indirect population formulas, we calculated body fat percentage (%BF) and skeletal muscle mass index (SMI). Sarcopenia prevalence ranged from 12.4% (Dominican Republic) to 24.6% (rural Peru); sarcopenic obesity prevalence ranged from 3.0% (rural China) to 10.2% (rural Peru). Odds ratios (OR) with 95% confidence intervals (CI) for sarcopenia were higher for men 2.82 (2.22–3.57) and those with higher %BF 1.08 (1.07–1.09), whereas higher number of assets was associated with a decreased likelihood 0.93 (0.87–1.00). OR of sarcopenic obesity were higher for men 2.17 (1.70–2.76), those reporting moderate alcohol drinking 1.76 (1.21–2.57), and those with increased number of limiting impairments 1.54 (1.11–2.14). We observed heterogeneity in the prevalence of sarcopenia and sarcopenic obesity in the 10/66 settings. We also found a variety of factors to be associated with those. Our results reveal the need for more research among the older population of LMICs.

Choosing bottled over tapped: drinking water in the Dominican Republic

2014 ◽  
Vol 5 (1) ◽  
pp. 9-16 ◽  
Author(s):  
John D. McLennan
Keyword(s):  
Drinking Water ◽  
Dominican Republic ◽  
Water Source ◽  
Bottled Water ◽  
Drinking Water Source ◽  
Middle Income ◽  
Middle Income Countries ◽  
Head Of Household ◽  
Piped Water ◽  
Nationally Representative

While not designated as an improved drinking water source, bottled water is increasingly used by households in low- and middle-income countries as families strive to obtain perceived safer drinking water. The Dominican Republic has high levels of bottled water use despite high levels of piped water access. This study aimed to identify household characteristics that are associated with choosing bottled over tapped drinking water in the Dominican Republic through further examination of data available from a nationally representative Demographic and Healthy Survey from 2007. Among households reporting tapped water as their primary non-drinking water source, 59.6% identified bottled water as their principal drinking water source in comparison with 24.7% identifying tapped water. Greater wealth explained the largest amount of variance in bottled over tapped drinking water. Other hypothesized variables related to choosing bottled over tapped included residence in more urban settings, having a young child in the household, having fewer persons in the household, and a head of household who is female, younger and with higher education. Nationally, representative data which include components investigating perceptions about drinking water and actual quality of drinking water are required to further understand this phenomenon and its impact.

Abstract MP19: Academic-community Partnership To Evaluate The Effectiveness Of The Greater Boston Food Bank’s Healthy Pantry Program

Circulation ◽  
2021 ◽  
Vol 143 (Suppl_1) ◽  
Author(s):  
Jenny Jia ◽  
Rachel Caty ◽  
Lauren Fiechtner ◽  
Rachel Zack ◽  
Anne N Thorndike
Keyword(s):  
Community Organization ◽  
Academic Research ◽  
Online Training ◽  
Academic Community ◽  
Food Bank ◽  
Traffic Light ◽  
Food Purchases ◽  
Food Pantries ◽  
New Strategy ◽  
Effective Program

Background: Food pantries are a significant nutrition source for food-insecure households. Traffic-light labeling is a new strategy in some pantries to help clients and staff identify healthier food choices. Healthy Pantry Program (HPP) is an online training designed by The Greater Boston Food Bank (GBFB) to teach staff of its affiliated pantries how to promote healthier choices by implementing traffic-light labels using Supporting Wellness at Pantries and behavioral nudges, such as placing healthy foods at eye level. Our academic research team partnered with GBFB to evaluate HPP by assessing if food pantries that participated in HPP increased their GBFB purchases of healthier (green and yellow) foods more than matched control pantries. Methods: We conducted an observational study of 107 food pantries in the GBFB network in eastern Massachusetts, including 10 pantries that completed HPP training and 97 control pantries matched by organizational characteristics and baseline food purchases. Five HPP pantries participated during Wave 1 (Oct 2018-Jan 2019), and 5 participated during Wave 2 (May 2019-Aug 2019). Outcomes were changes in percentage of pantries’ monthly green and yellow purchases from GBFB at 6-month (Waves 1 and 2) and 12-month (Wave 1 only) follow-ups compared to baseline purchases (6 months pre-HPP). We used a difference-in-differences analysis to examine whether HPP pantries increased green-yellow food purchases more than control pantries. Results: In Wave 1, HPP pantries had small but nonsignificant increases in green-yellow purchases at 6 and 12 months compared to matched controls (Table). In Wave 2, HPP and control pantries had similar increases in green-yellow purchases at 6 months. Conclusions: An online training implemented by a food bank to improve healthy choices in food pantries did not significantly improve pantries’ purchases of healthier foods. Academic-community organization partnerships to evaluate health promotion initiatives can help guide effective program design and development.

Human Subjects in Globalized Health Research

2020 ◽  
pp. 395-416
Author(s):  
Andrés Constantin ◽  
Roberto Andorno
Keyword(s):  
Public Health ◽  
Human Rights ◽  
Human Subjects ◽  
Human Rights Law ◽  
Individual Subject ◽  
Middle Income ◽  
Middle Income Countries ◽  
Ready Access ◽  
The Individual ◽  
Trial Participants

The clinical trials enterprise has expanded globally, involving research developed and owned by research institutions in wealthy countries but conducted with participants in low- and middle-income countries (LMICs). These LMICs commonly provide ready access to large pools of subjects who have never received a particular drug and have—at least historically—a more permissive regulatory environment, raising important questions about the rights of vulnerable participants. The unequal power dynamic and imbalances between researchers and human subjects require specific norms and procedures to respect and protect the human rights of trial participants. Complementing bioethics norms, human rights law offers a lens for understanding participant and public health interests, recognizing the unequal dynamic between the researcher and the individual subject, and furthering the participants’ autonomy and decision-making power. Framing these issues in human rights obligations additionally offers new forms of governance and accountability mechanisms, raising new opportunities for legally enforceable claims.

s.Four New Challenges, 18 Human Subjects in Globalized Health Research

2020 ◽  
Author(s):  
Constantin Andrés ◽  
Andorno Roberto
Keyword(s):  
Human Rights ◽  
Human Subjects ◽  
Human Rights Law ◽  
Individual Subject ◽  
Middle Income ◽  
Middle Income Countries ◽  
New Challenges ◽  
Ready Access ◽  
The Individual ◽  
Trial Participants

The clinical trials enterprise has expanded globally, involving research developed and owned by research institutions in wealthy countries but conducted with participants in low- and middle-income countries (LMICs). These LMICs commonly provide ready access to large pools of subjects who have never received a particular drug and have—at least historically—a more permissive regulatory environment, raising important questions about the rights of vulnerable participants. The unequal power dynamic and imbalances between researchers and human subjects require specific norms and procedures to respect and protect the human rights of trial participants. Complementing bioethics norms, human rights law offers a lens for understanding participant and public health interests, recognizing the unequal dynamic between the researcher and the individual subject, and furthering the participants’ autonomy and decision-making power. Framing these issues in human rights obligations additionally offers new forms of governance and accountability mechanisms, raising new opportunities for legally enforceable claims.

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