scholarly journals Community engagement to pilot electronic patient-reported outcomes (e-PROs) in early intervention: Lessons learned

2018 ◽  
Vol 2 (1) ◽  
pp. 20-26 ◽  
Author(s):  
Briana L. Rigau ◽  
Elizabeth A. Scully ◽  
Jodi K. Dooling-Litfin ◽  
Natalie J. Murphy ◽  
Beth M. McManus ◽  
...  
Keyword(s):  
Early Intervention ◽  
Scale Up ◽  
Academic Community ◽  
Lessons Learned ◽  
Care Plan ◽  
Quality Improvement Initiative ◽  
Community Partnership ◽  
Coordinated Care ◽  
Patient Reported ◽  
Family Centered

BackgroundElectronic data capture is essential to advancing family-centered coordinated care in early intervention (EI). The purpose of this paper is to report on EI service coordinator response to piloting an electronic parent-reported outcome (e-PRO) assessment as part of their routine workflow, including lessons learned that may inform future phases of e-PRO implementation.MethodsThis second pilot study involved families enrolled in a large EI program (n=1040 families) in concert with their implementation of a statewide quality improvement initiative for care plan development and outcomes reporting. A total of 22 EI service coordinators and supervisors were engaged in 3 phases: initial e-PRO intervention, peer-mentor enhancement, and standard recruitment protocol.ResultsImplementation of the e-PRO intervention and peer-mentoring enhancement yielded low enrollment rates over the first 6 months (n=17). A standard recruitment protocol has resulted in enrollment growth (n=83) towards the targeted enrollment rate (n=832).ConclusionsThis study reports on early insights for building and sustaining a productive academic-community partnership for e-PRO implementation to support family-centered coordinated care. Lessons learned from this academic-community partnership with respect to strategies for enhancing community significance, collaboration, return, and control are discussed as they inform further development of this intervention before scale-up.

Academic-Community Partnership Development Lessons Learned

2014 ◽  
Vol 29 (4) ◽  
pp. 379-385 ◽  
Author(s):  
Frances Lee-Lin ◽  
Lisa J. Domenico ◽  
Lauren A. Ogden ◽  
Venus Fromwiller ◽  
Nancy Magathan ◽  
...  
Keyword(s):  
Academic Community ◽  
Lessons Learned ◽  
Community Partnership ◽  
Partnership Development

scholarly journals The Royal College of General Practitioners (RCGP) quality improvement initiative using Clinical Practice Research Datalink (CPRD) data: Lessons learned

2019 ◽  
Vol 69 (suppl 1) ◽  
pp. bjgp19X703697
Author(s):  
Helen Booth ◽  
Eleanor Yelland ◽  
David Mullett ◽  
Arlene Gallagher ◽  
Shivani Padmanabhan ◽  
...  
Keyword(s):  
Primary Care ◽  
Quality Improvement ◽  
Scale Up ◽  
Public Health Research ◽  
Lessons Learned ◽  
Practice Research ◽  
Quality Improvement Initiative ◽  
Clinical Practice Research Datalink ◽  
Case Review ◽  
Real Patient

BackgroundQuality improvement (QI) is a priority for general practice, and GPs are expected to participate and provide evidence of QI activity. Pressures on the primary care workforce require approaches to QI to prioritise efficiency and effectiveness.AimThis project aimed generate and scale up bespoke QI reports for GP practices contributing data to CPRD.MethodCPRD is a UK government research service facilitating public health research using anonymised primary care data. A pilot report was designed with stakeholders and covered two indicators from the RCGP Patient Safety Toolkit. The reports enabled GPs to identify patients needing case review and to benchmark data on practice-level prescribing. Reports for 12 practices, containing real patient data, were sent to GPs and feedback was obtained via interviews. The report was scaled up to 457 practices and a survey sent out to request feedback.ResultsGPs used the reports to review the care of individual patients, and to implement QI actions such as adding flags to patients notes. One participant used the report as evidence for their annual appraisal. Survey response was limited (n = 31.7%) but overwhelmingly positive. Responders highlighted the importance of clinical input when developing indicators and ensuring the tone of the reports is supportive.ConclusionThe collaborative RCGP/CPRD QI reports are unique in their ability to provide benchmarking and case-finding on a national scale. The indicators selected must lead to actionable reports. Clinical input is required to ensure code lists are appropriate and that reports are clinically relevant. CPRD aims to send out two reports annually.

scholarly journals Lessons Learned from the Evolution of an Academic Community Partnership: Creating “Patient Voices”

2015 ◽  
Vol 9 (2) ◽  
pp. 243-251 ◽  
Author(s):  
Meghan K. Chambers ◽  
Anna Ireland ◽  
Rona D’Aniello ◽  
Stephanie Lipnicki ◽  
Myron Glick ◽  
...  
Keyword(s):  
Academic Community ◽  
Lessons Learned ◽  
Community Partnership

Developing an Early Intervention Preservice Specialization in Speech-Language Pathology

1995 ◽  
Vol 4 (2) ◽  
pp. 31-36 ◽  
Author(s):  
Joanne E. Roberts ◽  
Elizabeth Crais ◽  
Thomas Layton ◽  
Linda Watson ◽  
Debbie Reinhartsen
Keyword(s):  
Early Childhood ◽  
Early Intervention ◽  
Intervention Program ◽  
Graduate Program ◽  
Master's Level ◽  
Clinical Experiences ◽  
Speech Language Pathology ◽  
Early Intervention Program ◽  
Language Pathology ◽  
Family Centered

This article describes an early intervention program designed for speech-language pathologists enrolled in a master's-level program. The program provided students with courses and clinical experiences that prepared them to work with birth to 5-year-old children and their families in a family-centered, interdisciplinary, and ecologically valid manner. The effectiveness of the program was documented by pre- and post-training measures and supported the feasibility of instituting an early childhood specialization within a traditional graduate program in speech-language pathology.

Child and adolescent telepsychiatry in an academic-community partnership: Providers’ perceptions on teamwork.

2016 ◽  
Vol 40 (2) ◽  
pp. 103-112
Author(s):  
Susana Helm ◽  
Deborah Kissinger ◽  
Deborah Goebert ◽  
Ruby Agoha ◽  
Riki Tanabe ◽  
...  
Keyword(s):  
Child And Adolescent ◽  
Academic Community ◽  
Community Partnership

Optimizing electronic capture of patient-reported outcome measures in oncology clinical trials: lessons learned from a qualitative study

2020 ◽  
Vol 9 (17) ◽  
pp. 1195-1204
Author(s):  
Florence D Mowlem ◽  
Brad Sanderson ◽  
Jill V Platko ◽  
Bill Byrom
Keyword(s):  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Lessons Learned ◽  
Structured Interviews ◽  
Patient Reported ◽  
Oncology Clinical Trials ◽  
Anticancer Treatment ◽  
Fit For Purpose ◽  
The Impact ◽  
Electronic Implementation

Aim: To understand the impact of anticancer treatment on oncology patients’ ability to use electronic solutions for completing patient-reported outcomes (ePRO). Materials & methods: Semi-structured interviews were conducted with seven individuals who had experienced a cancer diagnosis and treatment. Results: Participants reported that the following would impact the ability to interact with an ePRO solution: peripheral neuropathy of the hands (4/7), fatigue and/or concentration and memory issues (6/7), where they are in a treatment cycle (5/7). Approaches to improve usability included: larger, well-spaced buttons to deal with finger numbness, the ability to pause a survey and complete at a later point and presenting the recall period with every question to reduce reliance on memory. Conclusion: Symptoms associated with cancers and anticancer treatments can impact the use of technologies. The recommendations for optimizing the electronic implementation of patient-reported outcome instruments in this population provides the potential to improve data quality in oncology trials and places patient needs at the forefront to ensure ‘fit-for-purpose’ solutions.

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