scholarly journals Development and preliminary evaluation of a patient portal messaging for research recruitment service

2018 ◽  
Vol 2 (1) ◽  
pp. 53-56 ◽  
Author(s):  
Kelly T. Gleason ◽  
Daniel E. Ford ◽  
Diana Gumas ◽  
Bonnie Woods ◽  
Lawrence Appel ◽  
...  
Keyword(s):  
Electronic Medical Records ◽  
Medical Records ◽  
Recruitment Strategy ◽  
Preliminary Evaluation ◽  
Patient Portal ◽  
Patient Portals ◽  
Enrollment Rate ◽  
Research Recruitment ◽  
Recruitment Methods ◽  
Study Participants

IntroductionWe developed a service to identify potential study participants through electronic medical records and deliver study invitations through patient portals.MethodsThe service was piloted in a cohort study that used multiple recruitment methods.ResultsPatient portal messages were sent to 1303 individuals and the enrollment rate was 10% (n=127). The patient portal enrollment rate was significantly higher than email and post mail (4%) strategies.ConclusionPatient portal messaging was an effective recruitment strategy.

scholarly journals Recruiting for a pragmatic trial using the electronic health record and patient portal: successes and lessons learned

2018 ◽  
Vol 26 (1) ◽  
pp. 44-49 ◽  
Author(s):  
Emily Pfaff ◽  
Adam Lee ◽  
Robert Bradford ◽  
Jinhee Pae ◽  
Clarence Potter ◽  
...  
Keyword(s):  
Pragmatic Trial ◽  
Lessons Learned ◽  
Recruitment Strategy ◽  
Patient Portal ◽  
Recruitment Methods ◽  
Research Coordinator ◽  
Electronic Method ◽  
Electronic Health ◽  
Study Participants ◽  
Future Work

Abstract Objective Querying electronic health records (EHRs) to find patients meeting study criteria is an efficient method of identifying potential study participants. We aimed to measure the effectiveness of EHR-driven recruitment in the context of ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-Term Effectiveness)—a pragmatic trial aiming to recruit 15 000 patients. Materials and Methods We compared the participant yield of 4 recruitment methods: in-clinic recruitment by a research coordinator, letters, direct email, and patient portal messages. Taken together, the latter 2 methods comprised our EHR-driven electronic recruitment workflow. Results The electronic recruitment workflow sent electronic messages to 12 254 recipients; 13.5% of these recipients visited the study website, and 4.2% enrolled in the study. Letters were sent to 427 recipients; 5.6% visited the study website, and 3.3% enrolled in the study. Coordinators recruited 339 participants in clinic; 23.6% visited the study website, and 16.8% enrolled in the study. Five-hundred-nine of the 580 UNC enrollees (87.8%) were recruited using an electronic method. Discussion Electronic recruitment reached a wide net of patients, recruited many participants to the study, and resulted in a workflow that can be reused for future studies. In-clinic recruitment saw the highest yield, suggesting that a combination of recruitment methods may be the best approach. Future work should account for demographic skew that may result by recruiting from a pool of patient portal users. Conclusion The success of electronic recruitment for ADAPTABLE makes this workflow well worth incorporating into an overall recruitment strategy, particularly for a pragmatic trial.

Maternity Patients' Access to Their Electronic Medical Records: Use and Perspectives of a Patient Portal

2015 ◽  
Vol 44 (1) ◽  
pp. 4-11 ◽  
Author(s):  
Megan Forster ◽  
Kerrie Dennison ◽  
Joanne Callen ◽  
Andrew Georgiou ◽  
Johanna I. Westbrook
Keyword(s):  
Electronic Medical Records ◽  
Medical Records ◽  
Patient Portal

scholarly journals Research participation preferences as expressed through a patient portal: implications of demographic characteristics

JAMIA Open ◽  
2018 ◽  
Vol 1 (2) ◽  
pp. 202-209 ◽  
Author(s):  
Jihad S Obeid ◽  
Azza Shoaibi ◽  
Jim C Oates ◽  
Melissa L Habrat ◽  
Chanita Hughes-Halbert ◽  
...  
Keyword(s):  
Age Groups ◽  
Research Participation ◽  
Minority Populations ◽  
Patient Portal ◽  
Age Group ◽  
Willingness To Participate ◽  
Patient Portals ◽  
Academic Health ◽  
Research Recruitment ◽  
Future Work

AbstractObjectiveAs patient portals are increasingly used for research recruitment, it is important to examine the demographic makeup of research registries that are populated via portals and the factors that influence participation in these registries.MethodsWe examined the response to a routine research preference questionnaire among patients who were enrolled in a patient portal at an academic health center and characterized the sub-population that responded and was tracked in a research preferences registry. We examined the factors that influence choices in two research preferences: future contact for research opportunities and biobanking of de-identified specimens.ResultsOut of 79 834 patients to whom the questionnaire was sent, 32% responded. Of those 74% agreed to future contact and 77% to the biobank preference. We found significantly lower odds of agreement in both preferences in minority populations, especially in the population >65 years of age when stratified by race. Individuals with higher comorbidity indexes had significantly higher odds for agreement.DiscussionThe disparities in volunteerism as expressed by agreement to future contact and willingness to participate in biobanking are exacerbated by lower levels of enrollment in the patient portal by minorities, especially in the oldest age group. Future work should examine other socioeconomic factors and the differences across age groups, sicker individuals, and payer categories.ConclusionAlthough patient portals can be more efficient for recruitment, researchers have to be cognizant of, and proactively address, potential biases when recruiting participants from these registries.

scholarly journals Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review (Preprint)

2018 ◽  
Author(s):  
Ronald Dendere ◽  
Christine Slade ◽  
Andrew Burton-Jones ◽  
Clair Sullivan ◽  
Andrew Staib ◽  
...  
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Health Outcomes ◽  
Electronic Medical Records ◽  
Patient Engagement ◽  
Medical Records ◽  
Provider Communication ◽  
Patient Portals ◽  
High Quality ◽  
Patient Provider Communication

BACKGROUND Engaging patients in the delivery of health care has the potential to improve health outcomes and patient satisfaction. Patient portals may enhance patient engagement by enabling patients to access their electronic medical records (EMRs) and facilitating secure patient-provider communication. OBJECTIVE The aim of this study was to review literature describing patient portals tethered to an EMR in inpatient settings, their role in patient engagement, and their impact on health care delivery in order to identify factors and best practices for successful implementation of this technology and areas that require further research. METHODS A systematic search for articles in the PubMed, CINAHL, and Embase databases was conducted using keywords associated with patient engagement, electronic health records, and patient portals and their respective subject headings in each database. Articles for inclusion were evaluated for quality using A Measurement Tool to Assess Systematic Reviews (AMSTAR) for systematic review articles and the Quality Assessment Tool for Studies with Diverse Designs for empirical studies. Included studies were categorized by their focus on input factors (eg, portal design), process factors (eg, portal use), and output factors (eg, benefits) and by the valence of their findings regarding patient portals (ie, positive, negative, or mixed). RESULTS The systematic search identified 58 articles for inclusion. The inputs category was addressed by 40 articles, while the processes and outputs categories were addressed by 36 and 46 articles, respectively: 47 articles addressed multiple themes across the three categories, and 11 addressed only a single theme. Nineteen articles had high- to very high-quality, 21 had medium quality, and 18 had low- to very low-quality. Findings in the inputs category showed wide-ranging portal designs; patients’ privacy concerns and lack of encouragement from providers were among portal adoption barriers while information access and patient-provider communication were among facilitators. Several methods were used to train portal users with varying success. In the processes category, sociodemographic characteristics and medical conditions of patients were predictors of portal use; some patients wanted unlimited access to their EMRs, personalized health education, and nonclinical information; and patients were keen to use portals for communicating with their health care teams. In the outputs category, some but not all studies found patient portals improved patient engagement; patients perceived some portal functions as inadequate but others as useful; patients and staff thought portals may improve patient care but could cause anxiety in some patients; and portals improved patient safety, adherence to medications, and patient-provider communication but had no impact on objective health outcomes. CONCLUSIONS While the evidence is currently immature, patient portals have demonstrated benefit by enabling the discovery of medical errors, improving adherence to medications, and providing patient-provider communication, etc. High-quality studies are needed to fully understand, improve, and evaluate their impact.

scholarly journals Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review

10.2196/12779 ◽  
2019 ◽  
Vol 21 (4) ◽  
pp. e12779 ◽  
Author(s):  
Ronald Dendere ◽  
Christine Slade ◽  
Andrew Burton-Jones ◽  
Clair Sullivan ◽  
Andrew Staib ◽  
...  
Keyword(s):  
Systematic Review ◽  
Electronic Medical Records ◽  
Medical Records ◽  
Patient Portals

scholarly journals Count me in: using a patient portal to minimize implicit bias in clinical research recruitment

2019 ◽  
Vol 26 (8-9) ◽  
pp. 703-713 ◽  
Author(s):  
Vaishnavi Kannan ◽  
Kathleen E Wilkinson ◽  
Mereeja Varghese ◽  
Sarah Lynch-Medick ◽  
Duwayne L Willett ◽  
...  
Keyword(s):  
Clinical Research ◽  
Implicit Bias ◽  
Patient Portal ◽  
Patient Portals ◽  
Research Recruitment ◽  
Demographic Groups ◽  
Representation Of Women ◽  
Multivariable Regression Model ◽  
Attractive Option ◽  
Multivariable Regression

Abstract Objective Determine whether women and men differ in volunteering to join a Research Recruitment Registry when invited to participate via an electronic patient portal without human bias. Materials and Methods Under-representation of women and other demographic groups in clinical research studies could be due either to invitation bias (explicit or implicit) during screening and recruitment or by lower rates of deciding to participate when offered. By making an invitation to participate in a Research Recruitment Registry available to all patients accessing our patient portal, regardless of demographics, we sought to remove implicit bias in offering participation and thus independently assess agreement rates. Results Women were represented in the Research Recruitment Registry slightly more than their proportion of all portal users (n = 194 775). Controlling for age, race, ethnicity, portal use, chronic disease burden, and other questionnaire use, women were statistically more likely to agree to join the Registry than men (odds ratio 1.17, 95% CI, 1.12–1.21). In contrast, Black males, Hispanics (of both sexes), and particularly Asians (both sexes) had low participation-to-population ratios; this under-representation persisted in the multivariable regression model. Discussion This supports the view that historical under-representation of women in clinical studies is likely due, at least in part, to implicit bias in offering participation. Distinguishing the mechanism for under-representation could help in designing strategies to improve study representation, leading to more effective evidence-based recommendations. Conclusion Patient portals offer an attractive option for minimizing bias and encouraging broader, more representative participation in clinical research.

scholarly journals Barriers to high quality coding of hospital chart information to administrative data: A qualitative study

2017 ◽  
Vol 1 (1) ◽  
Author(s):  
Karen Tang ◽  
Kelsey Lucyk ◽  
Hude Quan
Keyword(s):  
Qualitative Study ◽  
Electronic Medical Records ◽  
Administrative Data ◽  
Medical Records ◽  
Health Service Delivery ◽  
Structured Interview ◽  
Recruitment Strategy ◽  
Physician Education ◽  
High Quality ◽  
Patient Journey

ABSTRACTObjectives Administrative data are widely used in research, health policy, and the evaluation of health service delivery. We undertook a qualitative study to explore the barriers to high quality coding of chart information to administrative data, at the level of coders in Canada. ApproachOur study design is qualitative. We recruited professional medical chart coders and data users working across Alberta, Canada, using a multimodal recruitment strategy. We conducted an in-depth, semi-structured interview with each participant. All interviews were audio-recorded and transcribed. We conducted thematic analysis (e.g., line-by-line open coding) of interview transcripts. Codes were then collated into themes and compared across our dataset to ensure accurate interpretations of the data. The study team met to discuss, modify, and interpret emergent themes in the context of the barriers to coding administrative data. ResultsWe recruited 28 coding specialists. In general, coders had high job satisfaction and sense of collegiality, as well as sufficient resources to address their coding questions. They believed themselves to be adequately trained and consistently put in the extra effort when searching charts to find additional information that accurately reflected the patient journey. Barriers to high quality coding from the coder perspective included: 1) Incomplete and inaccurate information in physician progress notes and discharge summaries; 2) Difficulty navigating a complex hybrid of paper and electronic medical records; 3) Focus on productivity rather than quality by the employer, which at times resulted in inconsistent instructions for coding secondary diagnoses and discordant expectations between the employer and the coders’ professional standards. ConclusionFuture interventions to improve the quality of administrative data should focus on physician education of necessary components in charting, evaluation of electronic medical records from the perspectives of those who play a key role in abstracting data, and evaluation of productivity guidelines for coders and their effects on data quality.

scholarly journals Perceived Risks, Benefits, and Interest in Participating in Environmental Health Studies That Share Personal Exposure Data: A U.S. Survey of Prospective Participants

2020 ◽  
Vol 15 (5) ◽  
pp. 425-442
Author(s):  
Julia O. Udesky ◽  
Katherine E. Boronow ◽  
Phil Brown ◽  
Laura J. Perovich ◽  
Julia Green Brody
Keyword(s):  
Environmental Health ◽  
Electronic Medical Records ◽  
Medical Records ◽  
Personal Exposure ◽  
Health Data ◽  
Security Breaches ◽  
Exposure Data ◽  
Health Studies ◽  
Study Participants ◽  
Cancer Studies

Little is known about the willingness of prospective study participants to share environmental health data. To fill this gap, we conducted a hypothetical vignette survey among 1,575 women who have volunteered to be contacted about breast cancer studies. Eighty-three percent were interested in participating in the environmental studies, with little difference whether data were restricted to the research team, shared with approved researchers, or publicly accessible. However, participants somewhat preferred controlled access for children’s data. Respondents were more interested in studies with environmental rather than biological samples and more interested when researchers would return personal results, a practice of increasing importance. They were more reluctant to share location or to participate if studies involved electronic medical records. Many expressed concerns about privacy, particularly security breaches, but reidentification risks were mentioned infrequently, indicating that this topic should be discussed during informed consent.

scholarly journals Perspectives of New Zealand patients and GPs at the beginning of patient portal implementation

2019 ◽  
Vol 11 (4) ◽  
pp. 315
Author(s):  
Susan Wells ◽  
Faith Mahony ◽  
Ying Huang ◽  
Karen Day
Keyword(s):  
Electronic Medical Records ◽  
Medical Records ◽  
Online Survey ◽  
Internet Security ◽  
Security And Privacy ◽  
Patient Portal ◽  
Waiting Room ◽  
Implementation Phase ◽  
Medical Organisation ◽  
General Practices

ABSTRACT INTRODUCTIONNew Zealand health policy encourages patient access to their electronic medical records via portals. AIMTo discover patient and general practitioner (GP) perspectives of access to electronic medical records and e-messaging in the early portal implementation phase. METHODSIn 2014, Auckland primary health organisations and an Accident & Medical organisation were asked to invite their GPs to complete an online survey and consent for a researcher to attend their waiting room and invite patients to complete a survey. RESULTSIn total, 421 patients (13% Māori, 18% Pacific, 7% Asian, 53% NZ European/Other) participated from 13 general practices. Most (77%) knew they were entitled to see their medical records and 90% were interested in viewing them. Over two-thirds thought that viewing their records online and e-messaging their practice was a good idea. Over 80% disagreed that they would be worried, confused or embarrassed by seeing their records, with 59% expecting portals to facilitate understanding of their medical conditions. Internet security and privacy concerned 40% of patients. Among 83 GPs who completed the survey, six (7%) had already implemented portals. Few were comfortable to open up the whole health record, especially visit notes. While GPs thought that portal access may help patients better understand their plan of care, their main concerns related to causing confusion and worry. Portal implementation was expected to change GP documentation and increase practice workload and costs without demonstrable benefit to practices. DISCUSSIONAt the beginning of portal adoption, patients were interested. GPs were more reticent, unsure whether the benefits would outweigh the downsides for their patients and practice workload.

Adolescent Substance Use Screening Integrated With Electronic Medical Records

2014 ◽  
Author(s):  
C. McKenna ◽  
B. Gaines ◽  
C. Hatfield ◽  
S. Helman ◽  
L. Meyer ◽  
...  
Keyword(s):  
Substance Use ◽  
Electronic Medical Records ◽  
Medical Records ◽  
Adolescent Substance Use ◽  
Adolescent Substance
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