Information seeking behavior and perceived health literacy of family caregivers of persons living with a chronic condition. The case of spinal cord injury in Switzerland

2020 ◽  
Vol 103 (8) ◽  
pp. 1531-1537
Author(s):  
Nicola Diviani ◽  
Claudia Zanini ◽  
Rebecca Jaks ◽  
Mirjam Brach ◽  
Armin Gemperli ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Literacy ◽  
Family Caregivers ◽  
Information Seeking ◽  
Chronic Condition ◽  
Perceived Health ◽  
Information Seeking Behavior ◽  
Cord Injury ◽  
Seeking Behavior

COVID-19 and health information seeking behavior: Digital health literacy survey amongst university students in Pakistan (Preprint)

2021 ◽  
Author(s):  
Rubeena Zakar ◽  
Sarosh Iqbal ◽  
Muhammad Zakria Zakar ◽  
Florian Fischer
Keyword(s):  
Health Literacy ◽  
University Students ◽  
Information Seeking ◽  
Digital Health ◽  
Relevant Information ◽  
Health Concern ◽  
Information Seeking Behavior ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Seeking Behavior

BACKGROUND Amid to the COVID-19 pandemic, digital health literacy (DHL) has become a significant public health concern. OBJECTIVE This research aims to assess information seeking behavior, as well as the ability to find relevant information and deal with DHL among university students in Pakistan. METHODS An online-based cross-sectional survey, using a web-based interviewing technique, was conducted to collect data on DHL. Simple bivariate and multivariate linear regression was performed to assess the association of key characteristics with DHL. RESULTS The results show a high DHL related to COVID-19 in 54.3% of students. Most of the Pakistani students demonstrated ~50% DHL in all dimensions, except of reliability. Multivariate findings showed that gender, sense of coherence and importance of information were found to be significantly associated with DHL. However, a negative association was observed with students’ satisfaction with information. CONCLUSIONS This led to the conclusion that critical operational and navigations skills are essential to achieve COVID-19 DHL and cope with stress, particularly to promote both personal and community health. Focused interventions and strategies should be designed to enhance DHL amongst university students to combat the pandemic.

Perceived eHealth Literacy and Health Literacy among People with Spinal Cord Injury

2021 ◽  
Vol 102 (10) ◽  
pp. e50
Author(s):  
Gurkaran Singh ◽  
Bonita Sawatzky ◽  
Laura Nimmon ◽  
W. Ben Mortenson
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Literacy ◽  
Ehealth Literacy ◽  
Cord Injury

scholarly journals The Relationship Between Psychological and Physical Secondary Conditions and Family Caregiver Burden in Spinal Cord Injury: A Correlational Study

2019 ◽  
Vol 25 (4) ◽  
pp. 271-280 ◽  
Author(s):  
Alessio Conti ◽  
Marco Clari ◽  
Maeve Nolan ◽  
Eva Wallace ◽  
Marco Tommasini ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Functional Independence ◽  
Secondary Conditions ◽  
Care Recipients ◽  
Cord Injury ◽  
Tract Infections ◽  
The Impact

Background: Caregiver burden (CB) is a consequence of providing care to people with spinal cord injury (SCI). However, there is a lack of clarity about the influence of secondary conditions of care recipients on family caregivers. Secondary conditions refer to the physical and psychological complications that can occur after SCI and lead to increased hospitalization and reduced functionality, quality of life, and social participation. Objective: To assess the impact of physical and psychological secondary conditions of people with SCI on the perceived burden of family caregivers. Methods: A multicenter, cross-sectional study of 56 dyads of family caregivers and individuals with SCI in two urban spinal units in Italy and Ireland. Care recipients completed a toolset consisting of demographic information and assessments of functional, physical, and psychological health. Caregivers completed a multidimensional measure of CB. Bivariate data analysis was used. Results: No significant differences between centers were identified. CB was found to be related to physical secondary conditions and functional independence but not to mental health of care recipients. Bladder dysfunction and urinary tract infections influenced all dimensions of CB, whereas pressure injuries influenced only the time-dependent dimension. Level and completeness of injury and duration of caregiving increased CB. Conclusion: Findings indicate the value of a reduction in secondary conditions not just for individuals with SCI but also for their family caregivers. To reduce the individual and family burden of secondary conditions, a two-pronged, multidimensional approach, focusing on self-management for care recipients and psychoeducational support for caregivers, is required.

Who are the beneficiaries and what are the reasons for non-utilization of respite care? A cross-sectional study on family caregivers

2020 ◽  
Author(s):  
Jianan Huang ◽  
Nadja Münzel ◽  
Anke Scheel-Sailer ◽  
Armin Gemperli
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Home Care ◽  
Family Caregivers ◽  
Respite Care ◽  
Cross Sectional ◽  
Care Services ◽  
Cord Injury ◽  
Professional Home ◽  
Professional Home Care

Abstract BackgroundFamily caregivers assume substantial caregiving responsibilities for persons with chronic conditions, which leads to negative impact on their lives. Respite care is provided as a temporary relief for them. The design of appropriate respite care programs requires the identification of beneficiary subgroups for different types of services. The objectives of the study were to quantify the uptake of respite care services by family caregivers of persons with spinal cord injury, and to identify the main beneficiaries of the respective offers and the reasons for non-use.MethodsA cross-sectional survey of family caregivers of persons with spinal cord injury was conducted nationwide in Switzerland. The use of 11 different respite care services during the last 12 months was investigated, along with caregivers’ reasons for not using any respite service. Classification trees were used to characterize the beneficiaries and reasons for not using respite services.ResultsOne-third of family caregivers used at least one type of respite care service during the last 12 months. Utilization of respite care was found to be greater among those who employed professional home care (57% vs 24% among those without professional home care). There were marked cantonal differences in the utilization of respite care. The primary reason for not using respite services was “no demand” (80% among non-users of respite services), mainly among caregivers who were less emotionally affected by their caregiving tasks. Conclusions Utilization of respite care services primarily depends on living arrangements and place of residency and less on the functional status of the care recipient. Programs should thus be tailored to the cultural context of their potential users. This is best achieved through coordination with local health care professionals who can identify the needs, provide information, initiate referrals, and integrate the care into a larger support plan.

Performance of Everyday Occupations and Perceived Health of Spouses of Men With Spinal Cord Injury at Discharge and 6 Months Later

Spine ◽  
2020 ◽  
Vol 45 (22) ◽  
pp. 1580-1586
Author(s):  
Hadas Treisman ◽  
Navah Z. Ratzon ◽  
Malka Itzkovich ◽  
Michal Avrech Bar
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Perceived Health ◽  
Cord Injury

scholarly journals Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients

BMC Neurology ◽  
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Gaya Jeyathevan ◽  
Jill I. Cameron ◽  
B. Catharine Craven ◽  
Sarah E. P. Munce ◽  
Susan B. Jaglal
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Family Caregivers ◽  
Building Relationships ◽  
Care Recipients ◽  
Cord Injury
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