scholarly journals The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews

Author(s):  
Ena Niño de Guzmán Quispe ◽  
Laura Martínez García ◽  
Carola Orrego Villagrán ◽  
Monique Heijmans ◽  
Rosa Sunol ◽  
...  
2021 ◽  
pp. 136749352110136
Author(s):  
Logan J Camp-Spivey ◽  
Ayaba Logan ◽  
Michelle Nichols

The primary aim of this integrative review was to critically evaluate and synthesize published, peer-reviewed research to better understand self-management strategies of children and adolescents with chronic diseases. This review was guided by Whittemore and Knafl’s methodological framework. The Pediatric Self-management Model provided the theoretical framework for understanding how self-management behaviors operate within the domains of individual, family, community, and healthcare systems. In June 2019, the electronic databases of EBSCOhost, PubMed, and Scopus, along with reference lists of applicable studies, were searched for appropriate publications. The initial searches yielded 920 citations. Of these, 11 studies met inclusion criteria. A key finding was that involving children and adolescents in the design and delivery phases of interventions was most effective in improving self-management when the interventions did not outweigh cognitive ability or maturity level. In addition, incorporating self-efficacy promotion into self-management interventions may lead to greater sense of responsibility and improved health outcomes. In terms of intervention delivery of self-management strategies, the use of technological platforms and devices was revealed as a promising avenue for youth. A final implication was the importance of family members, peers, and healthcare providers in supporting children and adolescents in adopting self-management behaviors.


SIMULATION ◽  
2017 ◽  
Vol 93 (9) ◽  
pp. 781-793 ◽  
Author(s):  
Sara Montagna ◽  
Andrea Omicini

The impact of mobile technologies on healthcare is particularly evident in the case of self-management of chronic diseases, where they can decrease spending and improve life quality of patients. We propose the adoption of agent-based modeling and simulation techniques as built-in tools to dynamically monitor the state of patient health and provide recommendations for self-management. To demonstrate the feasibility of our proposal we focus on Type 1 diabetes mellitus as our case study, and provide simulation results where the dynamic evolution of signal parameters is shown in the case of healthy and Type 1 diabetes mellitus patients, focussing in particular on the beneficial effects that self-management interventions have on plasma glucose values.


PM&R ◽  
2011 ◽  
Vol 3 (3) ◽  
pp. 251-262 ◽  
Author(s):  
Matthew A. Plow ◽  
Marcia Finlayson ◽  
Maggie Rezac

Arthritis ◽  
2018 ◽  
Vol 2018 ◽  
pp. 1-8 ◽  
Author(s):  
Shabana Amanda Ali ◽  
Kristina M. Kokorelias ◽  
Joy C. MacDermid ◽  
Marita Kloseck

Systematic reviews of self-management programs for osteoarthritis suggest minimal evidence of benefit and indicate substantial heterogeneity in interventions. The purpose of this scoping review was to describe the nature of self-management interventions provided to patients with osteoarthritis focusing on the inclusion and type of education and social support components. We searched PsycINFO, EMBASE, MEDLINE, and Cochrane Library databases from 1990 to 2016 to identify studies addressing community-based management strategies for osteoarthritis that included aspects of disease-specific education and ongoing social support. Results are presented as a narrative synthesis to facilitate integration of diverse evidence. Data were extracted from 23 studies that met our inclusion and exclusion criteria, describing complex, multicomponent interventions for osteoarthritis. All studies included education components, and 18 of these were osteoarthritis-specific. Social support was most often offered through peers and health care professionals, but also through exercise trainers/instructors and researchers, and lasted between 5 and 52 weeks. We charted positive social interaction offered by peers in group settings and emotional/informational support offered by health care professionals. Overall, descriptions of self-management provided limited documentation of the rationale or content of the programs. This suggests that more precise definitions of the theoretical underpinnings, components, and mechanisms would be useful for greater insight into best practices for osteoarthritis self-management programs.


2014 ◽  
Vol 28 (11) ◽  
pp. 1067-1077 ◽  
Author(s):  
Julie Richardson ◽  
Adalberto Loyola-Sanchez ◽  
Susanne Sinclair ◽  
Jocelyn Harris ◽  
Lori Letts ◽  
...  

10.2196/26427 ◽  
2021 ◽  
Vol 23 (7) ◽  
pp. e26427
Author(s):  
Olga Navarro ◽  
Marta Escrivá ◽  
Raquel Faubel ◽  
Vicente Traver

Background Video is used daily for various purposes, such as leisure, culture, and even learning. Currently, video is a tool that is available to a large part of the population and is simple to use. This audio-visual format has many advantages such as its low cost, speed of dissemination, and possible interaction between users. For these reasons, it is a tool with high dissemination and educational potential, which could be used in the field of health for learning about and management of chronic diseases by adult patients. Objective The following review determines whether the use of health educational videos by adult patients with chronic diseases is effective for their self-management according to the literature. Methods An electronic literature search of the PubMed, CINAHL, and MEDLINE (via the EBSCOhost platform) databases up to April 2020 was conducted. The systematic scoping review followed the Preferred Reporting Items for Systematic reviews and Meta-Analysis (PRISMA) methodology. Results After reviewing 1427 articles, 12 were selected as the most consistent with the proposed inclusion criteria. After their review, it was found that the studies showed that video is effective as a tool for improving care related to chronic diseases. Conclusions Video is effective in improving the care and quality of life for patients with chronic diseases, whether the initiative for using video came from their health care professionals or themselves.


2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512515324p1
Author(s):  
Elizabeth B. Albritton ◽  
Josephine Fish ◽  
Jeffrey Henkel ◽  
Shelby Lee ◽  
Rachel Luttrell ◽  
...  

2018 ◽  
Vol 15 (1) ◽  
pp. 15-30 ◽  
Author(s):  
Elena D. Dimova ◽  
Ashleigh Ward ◽  
Vivien Swanson ◽  
Josie M.M. Evans

Background: People’s personal perceptions, or illness representations, of type 2 diabetes can act as barriers to successful self-management. </P><P> Introduction: Understanding patients’ subjective perceptions of type 2 diabetes can aid the design of evidence-based care and appropriate educational programmes. This scoping review provides a narrative account of previous knowledge of patients’ illness representations of type 2 diabetes. Methods: Quantitative and qualitative studies that explored patients’ illness representations of type 2 diabetes, as defined by Leventhal’s Common Sense Model, were included. Results: Thirty four studies were identified for this review, but only 14 studies were carried out in a general population of people with diabetes. Illness representations varied across study populations. While it is clear that the perceptions of ethnic minorities and marginalised groups are embedded in their historical and cultural backgrounds, it is also important to understand the views of the wider population. Conclusion: The review highlights the need for self-management interventions to reflect the target population’s representations of type 2 diabetes in order to inform interventions and clinical practice.


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