Lessons from a pilot study of transfer factor in chronic fatigue syndrome

Biotherapy ◽  
1996 ◽  
Vol 9 (1-3) ◽  
pp. 87-90 ◽  
Author(s):  
Caterina De Vinci ◽  
Paul H. Levine ◽  
Giancarlo Pizza ◽  
Hugh H. Fudenberg ◽  
Perry Orens ◽  
...  
Keyword(s):  
Pilot Study ◽  
Chronic Fatigue Syndrome ◽  
Transfer Factor ◽  
Chronic Fatigue ◽  
Fatigue Syndrome

scholarly journals Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a two-phase community pilot study in the North East of England

BMJ Open ◽  
2018 ◽  
Vol 8 (9) ◽  
pp. e020775 ◽  
Author(s):  
Victoria Jane Strassheim ◽  
Madison Sunnquist ◽  
Leonard A Jason ◽  
Julia L Newton
Keyword(s):  
Pilot Study ◽  
Chronic Fatigue Syndrome ◽  
Symptom Burden ◽  
Chronic Fatigue ◽  
Myalgic Encephalomyelitis ◽  
Phase 2 ◽  
Two Phase ◽  
Community Based Research ◽  
North East ◽  
Fatigue Syndrome

ObjectivesTo define the prevalence of severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and its clinical characteristics in a geographically defined area of Northern England. To understand the feasibility of a community-based research study in the severely affected CFS/ME group.DesignA two-phase clinical cohort study to pilot a series of investigations in participants own homes.SettingParticipants were community living from the area defined by the Northern clinical network of the UK.ParticipantsAdults with either a medical or a self-reported diagnosis of CFS/ME. Phase 1 involved the creation of a database. Phase 2: five participants were selected from database, dependent on their proximity to Newcastle.InterventionsThe De Paul fatigue questionnaire itemised symptoms of CFS/ME, the Barthel Functional Outcome Measure and demographic questions were collected via postal return. For phase 2, five participants were subsequently invited to participate in the pilot study.Results483 questionnaire packs were requested, 63 were returned in various stages of completion. 56 De Paul fatigue questionnaires were returned: all but 12 met one of the CFS/ME criteria, but 12 or 22% of individuals did not fulfil the Fukuda nor the Clinical Canadian Criteria CFS/ME diagnostic criteria but 6 of them indicated that their fatigue was related to other causes and they barely had any symptoms. The five pilot participants completed 60% of the planned visits.ConclusionsSeverely affected CFS/ME individuals are keen to participate in research, however, their symptom burden is great and quality of life is poor. These factors must be considered when planning research and methods of engaging with such a cohort.

Urinary electrophoretic profiles from chronic fatigue syndrome and chronic fatigue syndrome/fibromyalgia patients: a pilot study for achieving their normalization

2005 ◽  
Vol 814 (1) ◽  
pp. 43-51 ◽  
Author(s):  
Begoña Casado ◽  
Chiara Zanone ◽  
Laura Annovazzi ◽  
Paolo Iadarola ◽  
Gail Whalen ◽  
...  
Keyword(s):  
Pilot Study ◽  
Chronic Fatigue Syndrome ◽  
Chronic Fatigue ◽  
Fatigue Syndrome

scholarly journals Circulating extracellular vesicles as potential biomarkers in chronic fatigue syndrome/myalgic encephalomyelitis: an exploratory pilot study

2018 ◽  
Vol 7 (1) ◽  
pp. 1453730 ◽  
Author(s):  
Jesús Castro-Marrero ◽  
Esther Serrano-Pertierra ◽  
Myriam Oliveira-Rodríguez ◽  
Maria Cleofé Zaragozá ◽  
Alba Martínez-Martínez ◽  
...  
Keyword(s):  
Pilot Study ◽  
Chronic Fatigue Syndrome ◽  
Extracellular Vesicles ◽  
Chronic Fatigue ◽  
Myalgic Encephalomyelitis ◽  
Fatigue Syndrome ◽  
Potential Biomarkers

scholarly journals Clonidine in the treatment of adolescent chronic fatigue syndrome: a pilot study for the NorCAPITAL trial

2012 ◽  
Vol 5 (1) ◽  
pp. 418 ◽  
Author(s):  
Even Fagermoen ◽  
Dag Sulheim ◽  
Anette Winger ◽  
Anders M. Andersen ◽  
Nils Tore Vethe ◽  
...  
Keyword(s):  
Pilot Study ◽  
Chronic Fatigue Syndrome ◽  
Chronic Fatigue ◽  
Fatigue Syndrome

scholarly journals Cardiac sympathetic innervation associates with autonomic dysfunction in chronic fatigue syndrome – a pilot study

2017 ◽  
Vol 5 (3) ◽  
pp. 184-186
Author(s):  
George Petrides ◽  
Pawel Zalewski ◽  
David McCulloch ◽  
Laura Maclachlan ◽  
Andreas Finkelmeyer ◽  
...  
Keyword(s):  
Pilot Study ◽  
Chronic Fatigue Syndrome ◽  
Autonomic Dysfunction ◽  
Sympathetic Innervation ◽  
Chronic Fatigue ◽  
Cardiac Sympathetic Innervation ◽  
Fatigue Syndrome
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