All in the family: A descriptive analysis of family network change in families managing chronic illness

2020 ◽  
Vol 57 (1) ◽  
Author(s):  
Lindsay K. Brown ◽  
Tiffany C. Veinot
Keyword(s):  
Chronic Illness ◽  
Descriptive Analysis ◽  
Family Network ◽  
Network Change ◽  
The Family

California

2015 ◽  
Vol 2 (2) ◽  
Author(s):  
Roberto Alvarez
Keyword(s):  
The State ◽  
Social Cartography ◽  
Family Network ◽  
The Family ◽  
The Us ◽  
Mexico Border ◽  
Police Surveillance ◽  
Us Mexico Border

I utilize my situated position as anthropologist, academician, and citizen to argue not only that we should “think” California, but also that we should “rethink” our state—both its condition and its social cartography. To be clear, I see all my research and endeavors—my research on the US/Mexico border; my time among the markets and entrepreneurs I have worked and lived with; my focus on those places in which I was raised: Lemon Grove, Logan Heights; the family network and my community ethnographic work—as personal. I am in this academic game and the telling of our story because it is personal. When Lemon Grove was segregated, it was about my family; when Logan Heights was split by the construction of Interstate 5 and threatened by police surveillance, it was about our community; when the border was sanctioned and militarized it again was about the communities of which I am a part. A rethinking California is rooted in the experience of living California, of knowing and feeling the condition and the struggles we are experiencing and the crises we have gone through. We need to rethink California, especially the current failure of the state. This too is ultimately personal, because it affects each and every one of us, especially those historically unrepresented folks who have endured over the decades.

scholarly journals The social support network for black psychiatric inpatients

Curationis ◽  
1994 ◽  
Vol 17 (2) ◽  
Author(s):  
G. Ngubane ◽  
L. R. Uys
Keyword(s):  
Social Support ◽  
Psychiatric Hospital ◽  
Psychiatric Inpatients ◽  
Support Network ◽  
Social Support Network ◽  
Family Network ◽  
State Psychiatric Hospital ◽  
State Psychiatric ◽  
The Social ◽  
The Family

A survey was carried out of almost 50% of Black inpatients in a state psychiatric hospital to evaluate the level of accessibility of the family network of the patients. Staff were interviewed on the problems they have with contacting families. The survey shows the extent of inadequate access and identifies reasons for the problem.

scholarly journals Content validation of the Self-perception of Family Health Status scale using the Delphi technique

2013 ◽  
Vol 21 (2) ◽  
pp. 595-603 ◽  
Author(s):  
Joaquín Salvador Lima-Rodríguez ◽  
Marta Lima-Serrano ◽  
Nerea Jiménez-Picón ◽  
Isabel Domínguez-Sánchez
Keyword(s):  
Health Status ◽  
Response Rate ◽  
Clinical Care ◽  
Descriptive Analysis ◽  
Family Health ◽  
The Self ◽  
Delphi Panel ◽  
Self Perception ◽  
Family Unit ◽  
The Family

OBJECTIVE: To ascertain the content validity of the Self-perception of Family Health Status scale. METHOD: A validation study of an instrument with an online Delphi panel using the consensus technique. Eighteen experts in the subject were intentionally selected, with a multidisciplinary origin and representing different professional fields. Each of the proposed items was assessed using a five-point scale, and open-ended questions, to modify or propose items. Descriptive analysis was performed of the sample and the items, applying criteria of validation/elimination. RESULTS: The first round had a response rate of 83.3% and validated 75 of the 96 proposed items; the second had a response rate of 80%, and validated the 21 newly created items, concluding the panel of experts. CONCLUSIONS: We present an instrument to measure self-perception of family health status, from a nursing perspective. This may be an advance in scientific knowledge, to facilitate the assessment of the state of health of the family unit, enabling detection of alterations, and to facilitate interventions to prevent consequences to the family unit and its members. It can be used in clinical care, research or teaching.

scholarly journals PERANAN PEREMPUAN DALAM PEREKONOMIAN KELUARGA DENGAN MEMANFAATKAN SUMBERDAYA PERTANIAN

2011 ◽  
Vol 10 (1) ◽  
pp. 138-153 ◽  
Author(s):  
Yudhy Harini Bertham ◽  
Dwi Wahyuni Ganefianti ◽  
Apri Andani
Keyword(s):  
Family Income ◽  
Descriptive Analysis ◽  
Farming Systems ◽  
Shared Responsibility ◽  
Know How ◽  
Family Economy ◽  
Load Factors ◽  
Total Family Income ◽  
The Family ◽  
Organic Farming Systems

This study aims to find out the reasons women decide to work as a farmer, knowing the understanding of women in the utilization of agricultural resources, and know how big the role of women in the intensification of the family economy. The method to determine the respondent used in this research is census method with numbering 100 persons. Analysis of the data used is descriptive analysis and qualitative analysis of revenue contribution. The results showed that the reasons women choose to work as farmers because of their desire to help their husbands in contributing family income which is driven by the load factors of family burden.  Looking for experiences and shared responsibility are other reasons for women to work in agricultural activities. Their knowledge and understanding of agriculture, women are only know how to grow crops and produce. Stages how sustainable farming, care for the environment with organic farming systems is not yet implemented. This is caused by the lack of knowledge of owmen. Income contribution of women to family incomes is high, with a range of contribution 40% - 59% of total family income. This condition can be a reason for  women to participate in decision-making within the household. So the presence of women within the family becomes more important and appreciated.Key words: Women role, farmer, revenue contibution

scholarly journals The Role of Decision Making for Family Activities by Industrial Labour of Women Migrant Based on Their Migration Characteristics

2020 ◽  
Vol 34 (1) ◽  
Author(s):  
Dewi Susilongtyas ◽  
Tuty Handayani ◽  
Nurul Sri Rahatiningtyas ◽  
Sigit Candra Winata Kusuma ◽  
Della Ayu Lestari
Keyword(s):  
Decision Making ◽  
Migrant Workers ◽  
Descriptive Analysis ◽  
Industrial Workers ◽  
Circular Migration ◽  
Women Migrants ◽  
Mobility Patterns ◽  
Chi Square ◽  
The Family

The presence of women migrants in urban industrial workers proved that women's movement exists. This migration process not only indicates that women are actively involved in economic activity, but also influences the decision-making on important activities within the family and society. This study aims to determine the relationship between mobility patterns and its contribution to economic and decision-making in the family through the survey as research methods. The data were analysed by descriptive analysis, statistics approach, and correlation maps. For the independence test in the bivariate table, we used the chi square method, and to display the distribution of two variables simultaneously, a cross-tabulation was used. After that, to assess whether there is a relationship between the two variables, the table of independence was used. Our study shows that decision-making became an indicator of strengthening the role of women with a pattern of circular migration, which has a relationship on economic contribution. However, the behavior of women who perform the spatial migration in strengthening roles in families is not always relevant with the strengthening role of the economy. A strong role is only demonstrated by industrial migrant workers working on a circular migration pattern.

scholarly journals GENOGRAM AND ECO-MAP AS TOOLS FOR UNDERSTANDING FAMILY CARE IN CHRONIC ILLNESS OF THE YOUNG

2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Ítala Paris de Souza ◽  
Roseney Bellato ◽  
Laura Filomena Santos de Araújo ◽  
Karla Beatriz Barros de Almeida
Keyword(s):  
Chronic Illness ◽  
Young Patients ◽  
Family Care ◽  
Data Organization ◽  
Family Organization ◽  
Adolescent Cancer ◽  
The Family ◽  
History Of ◽  
Analytical Tools ◽  
Depth Interviews

ABSTRACT The aim of this study was to understand family organization in care nucleus and supporting networks for families of young patients who experienced childhood kidney disease and adolescent cancer. It is a situational study using the history of life by means of in-depth interviews and observation. A genogram and an eco-map were used as analytical tools for data organization and analysis. The genogram showed family composition and the relationships established among its members and the care nucleus, strengthening the continuing and prolonged care required by the youth. The eco-map contrasted the punctual and unlinked work of the supporting network with the implicated, affective, and continuing work from the base network participation in the illness experienced by the youth. These tools allow health professionals to know the family organization in care, and the resources and networks with which they count on for support through the experience of a chronic illness.

The family of a child with chronic illness and its social relationships

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
M H N Souza ◽  
T J Santos ◽  
R N Vasconcellos ◽  
M M Costa ◽  
A S Lira ◽  
...  
Keyword(s):  
Social Network ◽  
Chronic Illness ◽  
Self Care ◽  
Public Health Problem ◽  
Health Protection ◽  
Major Public Health Problem ◽  
Research Committee ◽  
The Social ◽  
The Family ◽  
The Relationship

Abstract Introduction The family life of a child with chronic illness is marked by several determinants and demands for care. Within that context, the greater the support received, the greater the resources available to face vulnerability, and to respond positively to guidance and care. Objectives describing the social network of families of children with chronic illness, and understanding the meaning of the relationship of the family caregiver with the members of his/her social network. Methods Qualitative research with nineteen relatives of children with chronic diseases at a rehabilitation center in the city of Rio de Janeiro, Brazil. The theoretical framework of Sanicola's social network was used. Data were collected in November 2019 by semi-structured interviews and analyzed using the content analysis technique. The research was approved by the Ethics and Research Committee of the participating institutions. The social network map showed the presence of few members and mothers as the main caregivers. The main problems among children were: autism, Down syndrome, cognitive disorders and cerebral palsy. Among the most involved people with the caregivers, friends, sisters and grandparents stood out as the ones who offered material, financial and emotional support. Rehabilitation unit support (secondary level) and dissatisfaction with the primary health unit were mentioned. Conclusions The social network of children with chronic illness is a small family network marked by social vulnerability and the female gender as responsible for care. It is noteworthy that the weakness in the relationship with health professionals at primary care level can compromise care continuity. Therefore, it is recommended to professionals to know the social network of the clientele served, as well as interacting and strengthening this network in order to provide more effective actions for health protection, rehabilitation and supported self-care strategies. Key messages Chronic childhood disease is a major public health problem. Being aware of social network favors the implementation of more actions toward health protection, rehabilitation and supported self-care strategies.

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