scholarly journals Crossed views of burden and emotional distress of cancer patients and family caregivers during palliative care

2015 ◽  
Vol 25 (11) ◽  
pp. 1278-1285 ◽  
Author(s):  
Tanguy Leroy ◽  
Emmanuelle Fournier ◽  
Nicolas Penel ◽  
Véronique Christophe
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Emotional Distress

scholarly journals Experiences of cancer patients’ family caregivers in palliative care / Juntos resistimos, separados caímos: vivências de familiares cuidadores de pacientes oncológicos em cuidados paliativos

2019 ◽  
Vol 11 (4) ◽  
pp. 931
Author(s):  
Laís Do Espirito Santo Lima ◽  
Mary Elizabeth de Santana ◽  
Antonio Jorge Silva Correa Júnior ◽  
Esleane Vilela Vasconcelos
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Historia De Vida

Objetivo: Descrever a experiência de familiares cuidadores de pacientes oncológicos em cuidados paliativos e analisar as implicações para o cuidado de enfermagem. Métodos: Estudo descritivo de abordagem qualitativa, com coleta através de entrevista semiestruturada aberta e transcrições submetidas a Análise de Conteúdo. Resultados: Mediante análise construíram-se três unidades: “Adeus céu azul: a terminalidade da vida, o câncer e os cuidados paliativos”, abordando o impacto e a migração para os cuidados paliativos sugerindo auxilio ao enfrentamento; “Respire fundo: desafios dos familiares cuidadores”, tocante à escolha do cuidador, as privações e as dificuldades financeiras; “Maior que palavras: vivências que marcaram”, enfatizando o impacto do diagnóstico e a dor oncológica como vivências mais significativas. Considerações finais: É necessário ouvir, dar voz e conhecer a história de vida dos familiares cuidadores para o planejamento e promoção satisfatórios da assistência de enfermagem e educação em saúde.

“Oh, yeah, I’m getting closer to god”: spirituality and religiousness of family caregivers of cancer patients undergoing palliative care

2015 ◽  
Vol 23 (8) ◽  
pp. 2383-2389 ◽  
Author(s):  
Bianca Sakamoto Ribeiro Paiva ◽  
André Lopes Carvalho ◽  
Giancarlo Lucchetti ◽  
Eliane Marçon Barroso ◽  
Carlos Eduardo Paiva
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers

Caring for people who take care: What is already done?

2021 ◽  
pp. 1-11
Author(s):  
Carolina Oliveira ◽  
Gabriela Fonseca ◽  
Neide P. Areia ◽  
Luciana Sotero ◽  
Ana Paula Relvas
Keyword(s):  
Mental Health ◽  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Mental Health Professionals ◽  
Technology Use ◽  
Intervention Programs ◽  
The Family ◽  
Psychological Symptomatology ◽  
Care Approach

Abstract Objective The growing prevalence and impact of cancer on the family system calls for a palliative care approach with the family as the unit of care. This study aimed at providing an overview of the intervention programs that have been developed to offer support to the family caregivers of oncologic patients receiving palliative care. Method Sixteen articles were included in the final review, encompassing (i) studies focused on intervention programs with family caregivers of cancer patients in palliative care, (ii) studies including a pre- and post-test evaluation of the intervention program, (iii) and studies whose cancer patients were at least 18 years old. Results A great heterogeneity was verified with respect to care settings, number of sessions, outcome measures, or timing of assessment within the reviewed programs. These findings mirrored the complexity of the palliative care approach, which is difficult to standardize. Nonetheless, some interventions with different features accomplished good and sometimes similar results. The studies’ main outcomes were clustered in five categories: psychological symptomatology, general quality of life, caregiving role, family relational variables, and bereavement/grief. Moreover, 44% of the main outcomes were psychological symptomatology of family caregivers, with an emphasis toward anxiety and depression. Also shown was a growing emergence of technology use among these interventions. Significance of results Results revealed a scarcity of family-oriented programs and lack of certified mental health professionals as interventionists. Future studies and interventions should focus on the positive outcomes of the caregiving experience and must acknowledge the cultural differences when trying to replicate programs. Considering that there is no precise formula for dealing with terminal illness and grief, we submit that family-centered and systemic lenses are excellent approaches for support during this adjustment process. In conclusion, the present study advocates for increased investment in the field, underscoring the importance of family caregivers’ mental health.

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