scholarly journals Good Quality Care for Patients with Cancer Dying in Hospitals, but Information Needs Not Met: Bereaved Relatives’ Survey within Seven Countries

2021 ◽  
Author(s):  
DagnyFaksvåg Haugen ◽  
Karl Ove Hufthammer ◽  
Christina Gerlach ◽  
Katrin Sigurdardottir ◽  
Marit Irene Tuen Hansen ◽  
...  
2019 ◽  
Vol 29 (7) ◽  
pp. 1065-1079 ◽  
Author(s):  
Roderik F. Viergever

The critical incident technique (CIT) is a qualitative research tool that is frequently used in health services research to explore what helps or hinders in providing good quality care or achieving satisfaction with care provision. However, confusion currently exists on the nature of the CIT: Is it a method for data collection and analysis or a methodology? In this article, I explain why this distinction is important and I argue that the CIT is a methodology (and not a method) for the following reasons: Key methodological dimensions are described for the CIT; it has a clear focus; studies that apply this technique make use of various methods for data collection and analysis; it describes, explains, evaluates, and justifies the use of a specific format for those methods; it implies philosophical and practical assumptions; and studies that use the CIT cannot easily make use of additional methodologies simultaneously.


2010 ◽  
pp. 45 ◽  
Author(s):  
Kathleen Kathleen Abrahamson ◽  
Morgan Durham ◽  
Rebekah Fox

Genes ◽  
2021 ◽  
Vol 12 (10) ◽  
pp. 1525
Author(s):  
Seongmin Kim ◽  
Sanghoon Lee ◽  
Hyun-Tae Park ◽  
Jae-Yun Song ◽  
Tak Kim

Chemotherapy-induced ovarian damage and fertility preservation in young patients with cancer are emerging disciplines. The mechanism of treatment-related gonadal damage provides important information for targeting prevention methods. The genomic aspects of ovarian damage after chemotherapy are not fully understood. Several studies have demonstrated that gene alterations related to follicular apoptosis or accelerated follicle activation are related to ovarian insufficiency and susceptibility to ovarian damage following chemotherapy. This may accelerate follicular apoptosis and follicle reservoir utilization and damage the ovarian stroma via multiple molecular reactions after chemotherapy. This review highlights the importance of genomic considerations in chemotherapy-induced ovarian damage and multidisciplinary oncofertility strategies for providing high-quality care to young female cancer patients.


Author(s):  
Alfred J. Finch ◽  
John E. Lochman ◽  
W. Michael Nelson III ◽  
Michael C. Roberts

Chapter 5 provides an overview of a clinician's functional competencies with regard to psychological interventions with children and adolescents, and focuses on levels of intervention competency that permit a psychologist to provide good quality care to the child clients and their families–level of competency that is expected to be attained by well-trained psychologists in the years shortly after they have received their terminal degrees. It first briefly covers basic procedural issues in establishing the therapy contract, and then discusses types of therapeutic procedures that psychologists may competently use with their clients.


2020 ◽  
Vol 11 (6) ◽  
pp. 944-950 ◽  
Author(s):  
Nadine Bol ◽  
Annemiek J. Linn ◽  
Ellen M.A. Smets ◽  
Mathilde G.E. Verdam ◽  
Julia C.M. van Weert

2012 ◽  
Vol 30 (10) ◽  
pp. 1072-1079 ◽  
Author(s):  
Mary Beth Landrum ◽  
Nancy L. Keating ◽  
Elizabeth B. Lamont ◽  
Samuel R. Bozeman ◽  
Steven H. Krasnow ◽  
...  

Purpose The Veterans Health Administration (VHA) provides high-quality preventive chronic care and cancer care, but few studies have documented improved patient outcomes that result from this high-quality care. We compared the survival rates of older patients with cancer in the VHA and fee-for-service (FFS) Medicare and examined whether differences in the stage at diagnosis, receipt of guideline-recommended therapies, and unmeasured characteristics explain survival differences. Patients and Methods We used propensity-score methods to compare all-cause and cancer-specific survival rates for men older than age 65 years who were diagnosed or received their first course of treatment for colorectal, lung, lymphoma, or multiple myeloma in VHA hospitals from 2001 to 2004 to similar FFS-Medicare enrollees diagnosed in Surveillance, Epidemiology, and End Results (SEER) areas in the same time frame. We examined the role of unmeasured factors by using sensitivity analyses. Results VHA patients versus similar FFS SEER-Medicare patients had higher survival rates of colon cancer (adjusted hazard ratio [HR], 0.87; 95% CI, 0.82 to 0.93) and non–small-cell lung cancer (NSCLC; HR, 0.91; 95% CI, 0.88 to 0.95) and similar survival rates of rectal cancer (HR, 1.05; 95% CI, 0.95 to 1.16), small-cell lung cancer (HR, 0.99; 95% CI, 0.93 to 1.05), diffuse large–B-cell lymphoma (HR, 1.02; 95% CI, 0.89 to 1.18), and multiple myeloma (HR, 0.92; 95% CI, 0.83 to 1.03). The diagnosis of VHA patients at earlier stages explained much of the survival advantages for colon cancer and NSCLC. Sensitivity analyses suggested that additional adjustment for the severity of comorbid disease or performance status could have substantial effects on estimated differences. Conclusion The survival rate for older men with cancer in the VHA was better than or equivalent to the survival rate for similar FFS-Medicare beneficiaries. The VHA provision of high-quality care, particularly preventive care, can result in improved patient outcomes.


2000 ◽  
Vol 18 (15) ◽  
pp. 2902-2907 ◽  
Author(s):  
Elizabeth A. Barnes ◽  
John Hanson ◽  
Catherine M. Neumann ◽  
Cheryl L. Nekolaichuk ◽  
Eduardo Bruera

PURPOSE: The purpose of this study was to assess the satisfaction and information needs of primary care physicians (PCPs) regarding communication with radiation oncologists (ROs), with respect to patients who receive palliative radiotherapy (RT). A selected objective was to evaluate the agreement between PCPs’ expectations and the content of the RO letter sent after completion of RT. PCPs’ knowledge of the role of palliative RT and their awareness of available patient support services were also determined. METHODS: The PCPs of patients discharged from the Cross Cancer Institute after receiving palliative RT were surveyed using a mail-out questionnaire. Questions regarding communication, RT knowledge, and awareness of support services were asked. The corresponding RO letter was reviewed. RESULTS: A total of 148 PCPs were identified and were mailed questionnaires, with 114 (77%) responding. Overall, 80% (87 of 109) of PCPs found the RO letter to be useful in patient management. However, there was poor (< 53%) agreement between PCPs’ expectations and the actual content of the RO letter. Knowledge of the indications and effectiveness of palliative RT was limited, with PCPs obtaining a median score of 4 of a possible 8. Only 27% (31 of 114) of PCPs were aware of all five of the patient support services listed. CONCLUSION: Results show that although the majority of PCPs found the RO letter useful, they believed that the letter lacked important information while containing unnecessary details. Communication between PCPs and ROs needs improvement, especially considering that PCPs seem to have limited knowledge of palliative RT.


2020 ◽  
pp. 331-344 ◽  
Author(s):  
Alexandra S. Rashedi ◽  
Saskia F. de Roo ◽  
Lauren M. Ataman ◽  
Maxwell E. Edmonds ◽  
Adelino Amaral Silva ◽  
...  

Purpose Oncofertility focuses on providing fertility and endocrine-sparing options to patients who undergo life-preserving but gonadotoxic cancer treatment. The resources needed to meet patient demand often are fragmented along disciplinary lines. We quantify assets and gaps in oncofertility care on a global scale. Methods Survey-based questionnaires were provided to 191 members of the Oncofertility Consortium Global Partners Network, a National Institutes of Health–funded organization. Responses were analyzed to measure trends and regional subtleties about patient oncofertility experiences and to analyze barriers to care at sites that provide oncofertility services. Results Sixty-three responses were received (response rate, 25%), and 40 were analyzed from oncofertility centers in 28 countries. Thirty of 40 survey results (75%) showed that formal referral processes and psychological care are provided to patients at the majority of sites. Fourteen of 23 respondents (61%) stated that some fertility preservation services are not offered because of cultural and legal barriers. The growth of oncofertility and its capacity to improve the lives of cancer survivors around the globe relies on concentrated efforts to increase awareness, promote collaboration, share best practices, and advocate for research funding. Conclusion This survey reveals global and regional successes and challenges and provides insight into what is needed to advance the field and make the discussion of fertility preservation and endocrine health a standard component of the cancer treatment plan. As the field of oncofertility continues to develop around the globe, regular assessment of both international and regional barriers to quality care must continue to guide process improvements.


2010 ◽  
Vol 14 (4) ◽  
pp. 271-277 ◽  
Author(s):  
Gloria O'Connor ◽  
Vivien Coates ◽  
Siobhan O'Neill

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