scholarly journals Managing the unmet psychosocial and information needs of patients with cancer

2010 ◽  
pp. 45 ◽  
Author(s):  
Kathleen Kathleen Abrahamson ◽  
Morgan Durham ◽  
Rebekah Fox
Keyword(s):  
Information Needs ◽  
Patients With Cancer

scholarly journals Tailored communication for older patients with cancer: Using cluster analysis to identify patient profiles based on information needs

2020 ◽  
Vol 11 (6) ◽  
pp. 944-950 ◽  
Author(s):  
Nadine Bol ◽  
Annemiek J. Linn ◽  
Ellen M.A. Smets ◽  
Mathilde G.E. Verdam ◽  
Julia C.M. van Weert
Keyword(s):  
Cluster Analysis ◽  
Older Patients ◽  
Information Needs ◽  
Patients With Cancer ◽  
Tailored Communication ◽  
Patient Profiles

Communication Between Primary Care Physicians and Radiation Oncologists Regarding Patients With Cancer Treated With Palliative Radiotherapy

2000 ◽  
Vol 18 (15) ◽  
pp. 2902-2907 ◽  
Author(s):  
Elizabeth A. Barnes ◽  
John Hanson ◽  
Catherine M. Neumann ◽  
Cheryl L. Nekolaichuk ◽  
Eduardo Bruera
Keyword(s):  
Primary Care ◽  
Support Services ◽  
Primary Care Physicians ◽  
Information Needs ◽  
Palliative Radiotherapy ◽  
Patient Support ◽  
Patients With Cancer ◽  
Radiation Oncologists ◽  
Actual Content

PURPOSE: The purpose of this study was to assess the satisfaction and information needs of primary care physicians (PCPs) regarding communication with radiation oncologists (ROs), with respect to patients who receive palliative radiotherapy (RT). A selected objective was to evaluate the agreement between PCPs’ expectations and the content of the RO letter sent after completion of RT. PCPs’ knowledge of the role of palliative RT and their awareness of available patient support services were also determined. METHODS: The PCPs of patients discharged from the Cross Cancer Institute after receiving palliative RT were surveyed using a mail-out questionnaire. Questions regarding communication, RT knowledge, and awareness of support services were asked. The corresponding RO letter was reviewed. RESULTS: A total of 148 PCPs were identified and were mailed questionnaires, with 114 (77%) responding. Overall, 80% (87 of 109) of PCPs found the RO letter to be useful in patient management. However, there was poor (< 53%) agreement between PCPs’ expectations and the actual content of the RO letter. Knowledge of the indications and effectiveness of palliative RT was limited, with PCPs obtaining a median score of 4 of a possible 8. Only 27% (31 of 114) of PCPs were aware of all five of the patient support services listed. CONCLUSION: Results show that although the majority of PCPs found the RO letter useful, they believed that the letter lacked important information while containing unnecessary details. Communication between PCPs and ROs needs improvement, especially considering that PCPs seem to have limited knowledge of palliative RT.

Exploring the information needs of patients with cancer of the rectum

2010 ◽  
Vol 14 (4) ◽  
pp. 271-277 ◽  
Author(s):  
Gloria O'Connor ◽  
Vivien Coates ◽  
Siobhan O'Neill
Keyword(s):  
Information Needs ◽  
Cancer Of The Rectum ◽  
Patients With Cancer

scholarly journals The Preferences of Patients With Cancer Regarding Apps to Help Meet Their Illness-Related Information Needs: Qualitative Interview Study

10.2196/14187 ◽  
2019 ◽  
Vol 7 (7) ◽  
pp. e14187 ◽  
Author(s):  
Rebecca Richards ◽  
Paul Kinnersley ◽  
Kate Brain ◽  
John Staffurth ◽  
Fiona Wood
Keyword(s):  
Information Exchange ◽  
Information Needs ◽  
Patients With Cancer ◽  
Related Information ◽  
App Development ◽  
South Wales ◽  
Qualitative Interview Study ◽  
Semistructured Interviews ◽  
Potential Benefits ◽  
Question Prompt List

Background The shift from inpatient to outpatient and community cancer care means that more patients with cancer need to manage their condition at home, without the direct supervision of their clinician. Subsequently, research has reported that many patients with cancer have unmet information needs during their illness. Mobile devices, such as mobile phones and tablet computers, provide an opportunity to deliver information to patients remotely. Before designing an app intervention to help patients with cancer to meet their information needs, in-depth qualitative research is required to gain an understanding of the views of the target users. Objective We aimed to develop an app intervention to help patients meet their illness-related information needs in noninpatient settings. This study explored the information needs of patients with cancer and their preferences for an app and desired app features. Specifically, the perceived acceptability of an app, desired app features, and the potential benefits and disadvantages of, and barriers to, an app were explored. Methods Qualitative, one-on-one semistructured interviews were conducted with patients with urological, colorectal, breast, or gynecological cancers (N=23) across two hospitals in South Wales. Interviews were audio-taped, transcribed, and analyzed using a thematic analysis. Results Findings indicated that barriers to information exchange and understanding in consultations, and identification of reliable information sources between consultations, appeared to contribute to patients’ unmet information needs. Consequently, app feature suggestions included a question prompt list, a glossary of cancer terms, a resources feature, and a contacts feature. Anticipated benefits of this type of app included a more informed patient, improved quality of life, decreased anxiety, and increased confidence to participate in their care. The anticipated barriers to app use are likely to be temporary or can be minimized with regard to these findings during app development and implementation. Conclusions This study highlights the desire of patients with cancer for an app intervention to help them meet their information needs during and between consultations with their clinicians. This study also highlights the anticipated acceptability and benefits of this type of intervention; however, further research is warranted.

scholarly journals Desire for Information and Preference for Participation in Treatment Decisions in Patients With Cancer Presenting to the Department of General Surgery in a Tertiary Care Hospital in India

2018 ◽  
pp. 1-10 ◽  
Author(s):  
Sushmitha Dharani Sankar ◽  
Baskaran Dhanapal ◽  
Gomathi Shankar ◽  
Balamourougan Krishnaraj ◽  
Sandhya Karra ◽  
...  
Keyword(s):  
Decision Making ◽  
Information Needs ◽  
Group Performance ◽  
Performance Status ◽  
Tertiary Care ◽  
Eastern Cooperative Oncology Group ◽  
Treatment Decisions ◽  
Care Hospital ◽  
Cross Sectional Survey ◽  
Patients With Cancer

Purpose Providing appropriate information to patients about their illness helps them to cope with the diagnosis. Shared decision making is a key concept in managing patients with cancer. There are no data available about the desire for information and preference for participation in treatment decisions among Indian patients with cancer. The objective of this study was to estimate the proportion of patients who have information needs and to study the patient preference for participation in treatment decisions and the factors associated with them. Methods A cross-sectional survey was conducted among patients with cancer older than 18 years. They were interviewed with a questionnaire after signing an informed consent. The association of sex, educational level, residence, diagnosis (type of cancer), Eastern Cooperative Oncology Group performance status, and treatment status with information needs and decision-making preference was analyzed using χ2 test Results Approximately 81% of patients said that they had an absolute need to know if the illness was cancer, and > 70% of patients either had an absolute need to know or would like to know about the prognosis, treatment options, and adverse effects. Regarding the decision-making preferences, 97% wanted their treating physicians to make the decision regarding their treatment, and 66% preferred to share decision making with their family. Conclusion The majority of the patients with cancer expressed a need for knowing whether they had cancer. When it comes to treatment decisions, most of them preferred a passive role, and the majority wanted to involve their families in the decision-making process. We recommend that the treating physician should elicit the patient’s preference in participating in treatment decisions and their preference about involving their family in making treatment decisions

Information needs and awareness of diagnosis in patients with cancer receiving chemotherapy: a report from Greece

2002 ◽  
Vol 16 (4) ◽  
pp. 315-321 ◽  
Author(s):  
Gregoris Iconomou ◽  
Anna Viha ◽  
Angelos Koutras ◽  
Apostolos G Vagenakis ◽  
Haralabos P Kalofonos
Keyword(s):  
Information Needs ◽  
Patients With Cancer

scholarly journals Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory (Preprint)

2020 ◽  
Author(s):  
Maclean Thiessen ◽  
Shane Sinclair ◽  
Patricia A Tang ◽  
Shelley Raffin Bouchal
Keyword(s):  
Grounded Theory ◽  
Information Needs ◽  
Information Access ◽  
Personal Projects ◽  
Related Data ◽  
Patients With Cancer ◽  
Quality Of Life Research ◽  
Classic Grounded Theory ◽  
Personal Project ◽  
Living With Cancer

BACKGROUND Information has been identified as a commonly unmet supportive care need for those living with cancer (ie, patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of health care, is an example of an important informational need. A suitable theory to guide the development of interventions designed to meet this informational need has not been identified by the authors. OBJECTIVE The aim of this study is to generate a grounded theory capable of guiding the development of interventions designed to assist those living with cancer in meeting their informational needs. METHODS Classic grounded theory was used to analyze data collected through digitally recorded one-on-one audio interviews with 31 patients with cancer and 29 friends and family members. These interviews focused on how the participants had accessed and used information to plan their lives and what barriers they faced in obtaining and using this information. RESULTS The theory that emerged consisted of 4 variables: personal projects, cancer as a source of disruption to personal projects, information as the process of accessing and interpreting cancer-related data (CRD) to inform action, and CRD quality as defined by accessibility, credibility, applicability, and framing. CRD quality as a moderator of personal project disruption by cancer is the core concept of this theory. CONCLUSIONS Informational resources providing accessible, credible, applicable, and positively framed CRD are likely key to meeting the information needs of those affected by cancer. Web-based informational resources delivering high-quality CRD focused on assisting individuals living with cancer in maintaining and planning their personal projects are predicted to improve quality of life. Research is needed to develop and integrate resources informed by this theoretical framework into clinical practice.

scholarly journals The preferences of patients with cancer regarding an app to help them to meet their illness-related information needs: a qualitative interview study. (Preprint)

2019 ◽  
Author(s):  
Rebecca Richards ◽  
Paul Kinnersley ◽  
Kate Brain ◽  
John Staffurth ◽  
Fiona Wood
Keyword(s):  
Information Exchange ◽  
Information Needs ◽  
Structured Interviews ◽  
Patients With Cancer ◽  
Related Information ◽  
South Wales ◽  
Qualitative Interview Study ◽  
Inpatient Settings ◽  
Potential Benefits ◽  
Question Prompt List

BACKGROUND The shift from inpatient to outpatient and community cancer care means that more patients with cancer are required to manage their condition at home, without the direct supervision of their clinician. Subsequently, research has reported that many patients with cancer have unmet information needs during their illness. Mobile devices, such as mobile phones and tablet computers, provide an opportunity to deliver information to patients remotely. We aimed to develop an app intervention to help patients to meet their illness-related information needs in non-inpatient settings. In-depth qualitative research was required in order to gain an understanding of the views of the target users prior to design of the intervention. OBJECTIVE This study aimed to explore the information needs of patients with cancer and their preferences for an app and desired app features. Specifically, the perceived acceptability of an app, desired app features and the potential benefits and disadvantages of, and barriers to, an app were explored. METHODS Qualitative, one-to-one semi-structured interviews were conducted with patients with urological, colorectal, breast or gynecological cancers (n=23) across two hospitals in South Wales. Interviews were audio-taped, transcribed and analyzed using thematic analysis. RESULTS Findings indicated that barriers to information exchange and understanding in consultations, and identification of reliable information sources between consultations, appeared to contribute to patients’ unmet information needs. Consequently, app feature suggestions included a question prompt list, glossary of cancer terms, resources feature and a contacts feature. Anticipated benefits of this type of app included a more informed patient, improved quality of life, decreased anxiety and increased confidence to participate in their care. The anticipated barriers to app use are likely to be temporary or can be minimized with consideration of these findings during app development and implementation. CONCLUSIONS This study highlights cancer patients’ desire for an app intervention to help them to meet their information needs during and between consultations with their clinicians. This study also highlights the anticipated acceptability and benefits of this type of intervention, however further research is warranted.

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