Assessing quality of life in obstetric fistula patients: Validation of the urogenital distress inventory (UDI‐6) and Incontinence Impact Questionnaire (IIQ‐7) in Lingala and Kikongo in DR Congo

2019 ◽  
Vol 38 (7) ◽  
pp. 1994-2000
Author(s):  
Matthieu Nkumu Loposso ◽  
Jean Ndundu ◽  
Dolores Mbunzu ◽  
Tala Matala ◽  
Augustin Maole Punga ◽  
...  
2008 ◽  
Vol 6 (1) ◽  
pp. 0-0 ◽  
Author(s):  
Aušra Černiauskienė ◽  
Feliksas Jankevičius

Aušra Černiauskienė, Feliksas JankevičiusVilniaus universiteto ligoninės Santariškių klinikų Urologijos centras,Santariškių g. 2, LT-08661 VilniusEl paštas: [email protected] Darbo tikslas – parinkti ir pagrįsti šlapimo nelaikymo simptomų ir gyvenimo kokybės klausimynus, vertinant moterų šlapimo nelaikymo paplitimą, nustatant jo rūšį, įtaką moters gyvenimo kokybei, ir panaudoti juos šios ligos diagnostikai, gydymui, rezultatams po operacijos įvertinti.Išanalizuoti literatūroje pateikti Europos urologų asociacijos, trečiojo tarptautinio šlapimo nelaikymo pasitarimo 2004 metų rekomenduojami klausimynai šlapimo nelaikymo simptomams ir gyvenimo kokybei įvertinti. Išsiaiškinti šių klausimynų pranašumai ir trūkumai. Pasirinktos trumposios formos dviejų klausimynų: šlapimo ir lyties organų ligų sukelto neigiamo poveikio aprašo (UDI-6 – Urogenital Distress Inventory) ir šlapimo nelaikymo poveikio klausimyno (IIQ-7 – Incontinence Impact Questionnaire).UDI-6 klausimynas padeda nustatyti šlapimo nelaikymo simptomus, IIQ-7 – analizuoti šlapimo nelaikymo poveikį gyvenimo kokybei. Šių klausimynų struktūra, forma ir turinys logiški. Jie trumpi, papildo vienas kitą. Klausimynų analizė ir įvertinimas parodė, kad jie gerai parengti, detalūs ir patikimi. Šie klausimynai suprantami ir gali būti taikomi tirti Lietuvos pacientėms.Literatūros duomenimis, šiais klausimynais moterims lengva naudotis, jie yra patikimi ir juos galima pateikti kaip moterų šlapimo nelaikymo simptomų ir poveikio gyvenimo kokybei įvertinimo priemonę. Jie padės nustatyti moterų šlapimo nelaikymo simptomus, šlapimo nelaikymo rūšis, įtaką gyvenimo kokybei ir bus naudingi skiriant gydymą, stebint tokias pacientes po operacijos įvairioje klinikinėje aplinkoje, tiriant šios ligos paplitimą Lietuvoje. Pagrindiniai žodžiai: šlapimo nelaikymas, gyvenimo kokybė, klausimynai Questionnaires for the diagnostics and treatment of female urinary incontinence and the quality of life assessment Aušra Černiauskienė, Feliksas JankevičiusCentre of Urology, Santariškių Clinics, Vilnius University Hospital,Santariškių str. 2, LT-08661 Vilnius, LithuaniaE-mail: [email protected] The purpose of the study was to justify the selection of the questionnaires on female urinary incontinence symptoms and quality of life and women’s quality of life and to use the questionnaires in incontinence diagnostics, treatment, and assessment of post-operative results.The questionnaires for the assessment of the urinary incontinence symptoms and quality of life, recommended by the European association of urology and the International Consultation on Incontinence 2004, have been examined. Upon studing both the advantages and drawbacks, two questionnaires have been selected: UDIž6 Urogenital Distress Inventory Short Form and IIQ-7 Incontinence Impact Questionnaire Short Form.The UDI-6 questionnaire helps clarify the urinary incontinence symptoms, while the IIQ-7 questionnaire assists the analysis of the effect of urinary incontinence on quality of life. The questionnaires are logical in their structure, form and content. Both questionnaires are short and complement each other. An analysis has show that the questionnaires are well-compiled, detailed and reliable; they are understandable and can be adapted to the inverstigation of patients in Lithuania.According to the literature, the questionnaires can be readily used by women, they are reliable and can be presented as a tool for assessing the symptoms of urinary incontinence in women and the impact of the symptoms upon their quality of life. The questionnaires will be helpful for determining the symptoms and types of female urinary incontinence, assessing the related diostress, administering medical treatment, monitoring post-opretive patients in different clinical environments, and studying the prevalence of the disease in Lithuania. Key words: urinary incontinence, quality of life, questionnaires


2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Katarzyna Skorupska ◽  
Magdalena Emilia Grzybowska ◽  
Agnieszka Kubik-Komar ◽  
Tomasz Rechberger ◽  
Pawel Miotla

Abstract Purpose Urogenital Distress Inventory-6 (UDI-6), Incontinence Impact Questionnaire-7 (IIQ-7) and The International Consultation on Incontinence (ICIQ-SF) Short Form are used to diagnose individuals with urinary incontinence (UI) and to assess the impact of the dysfunction on patient quality of life. While ICIQ-SF has fixed cutoff values—UDI-6 and IIQ-7 do not. We aimed to find the cutoff scores for UDI-6 and IIQ-7 in women with UI. Methods The study involved 205 women aged between 31 and 83 years—155 with, and 50 without UI symptoms. All participants completed all three questionnaires: ICIQ-SF, UDI-6 and IIQ-7. Patients were categorized according to their ICIQ-SF scores, as symptomatic ICIQ-SF ≥ 6 (n = 134) and asymptomatic ICIQ < 6 (n = 60). The Receiver Operating Characteristics (ROC) curve was used to test how well UDI-6 allowed a discrimination between patients suffering from UI and those who do not. Area under Curve (AUC) statistic was calculated to measure the UDI-6 and IIQ-7 Total Score efficiency. Results The cutoff values were selected. On the basis of the ROC curve analysis, the UDI-6 Total Score of 33.33 and IIQ-7 Total Score of 9.52 were determined to be the optimal cutoff for distinguishing between symptomatic and asymptomatic women (AUC = 0.94-UDI-6 and 0.91-IIQ-7). Conclusions For UDI-6 scores more than 33.33 indicate higher distress caused by UI symptoms. Moreover, the higher impact of UI on health- related quality of life is seen in women who scored 9 or more in the IIQ-7 questionnaire, and such women felt impaired quality of life. Trial registration number NCT04433715, 11.06.2020 “retrospectively registered”.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Tilahun Fufa Debela ◽  
Zerihun Asefa Hordofa ◽  
Aster Berhe Aregawi ◽  
Demisew Amenu Sori

Abstract Background The consequences of obstetric fistula on affected women are more than the medical condition. It has extensive physical, psychological, social, and economic consequences on them. Obstetric fistula affects the entire health and entire life of women. Women suffering from obstetric fistula are often abandoned by her partner, relatives, and the community. This study aimed to determine the quality of life of obstetrics fistula patients before and after surgical repair. Methods Institutional-based prospective, before and after study design was conducted in the Jimma University Medical Center from November 1, 2019–October 30, 2020. A face-to-face interview was conducted with fistula patients who visited Jimma University Medical center, fistula clinic during the study period. All fistula patients were included in the study. Accordingly, 78 women who underwent surgical repair were interviewed. The means and the standard deviation were computed using conventional statistics formulas. The unpaired t-test was used to compare two independent means, and one-way analysis of variance (ANOVA) was used to compare the quality of life before repair and after a successful repair. Linear regression analysis was done for identifying determinants of quality of life. A P value of 0.05 will be considered statistical significance. Result The overall quality of life of women was 58.17 ± 7.2 before the surgical repair and 71.20 ± 10.79 after surgical repair. The result indicates there is a significant difference in the mean value of pre and post-operative (P < 0.001). The overall satisfaction of women with their health status before the surgical repair was 22.5 ± 1.30and it has increased to 53.0 ± .90after surgical repair. The physical health dimension score was 16.51 ± 5.27 before the surgical repair while it has increased to 21.77 ± 5.38 after the surgical repair. The score of the social domain before the surgical repair was 5.19 ± 1.34 and it has increased to 7.13 ± 3.67 after the surgical repair. The score of the environmental health domain was 17.41 ± 2.89 before the surgery while it also increased to 21.65 ± 4.04 after the surgical repair. The results have shown there was a significant difference in the mean values of pre and post-operatives in both social and environmental scores (P < 0.001). The score of the psychological health domain before the surgery was 19.06 ± 1.46 and it was increased to 19.84 ± 3.21 after the surgical repair. The result showed there is a significant difference in mean value pre and post-operative (P = 0.048), though it is a slight improvement compared to other domains. Conclusion The overall quality of life of the patient with fistula was improved after successful surgical repair. Although all domains of quality of life had shown significant improvement after successful surgical repair, the psychological domain showed slight improvement.


2020 ◽  
Author(s):  
Biruktawit Matiwos ◽  
Getachew Tesfaw ◽  
Asmare Belete ◽  
Dessie Abebaw ◽  
shegaye shumet

Abstract BackgroundThe physical, emotional and social suffering associated with continuous leakage of urine has a profound impact on women quality of life. The aim of this study was to assess quality of life and associated factors among obstetric fistula patients in Ethiopia, has a significant role for further intervention.ObjectiveTo assess quality of life and associated factors among obstetric fistula patients in Ethiopia, 2017.MethodsIn this cross-sectional study, 289 women with obstetric fistula were recruited for interviews, using the systematic random sampling technique. The World Health Organization Quality of Life – Brief (WHOQOL-BREF) Version was used to assess quality of life. The Jacob perceived stigma scale and the Oslo-3 social support instruments were used to assess the factors. We computed simple and multiple linear regression analysis to assess factors associated with quality of life. P-value < 0.05 was declared statistically significant.ResultOf 289 women studied, only 12.1% felt satisfied with their general state of health and quality of life. In the physical health domain, the mean quality of life score was 40.78 ± .78. In the psychological domain, the mean quality of life score was 39.96 ± .82. In the social and environmental domain, the mean quality of life score was 32.9 ± .95, 36.45 ± .8 respectively. Duration of incontinence (unstandard β=-3.8,95% CI(-6.95,-.62), patients coming for surgical procedure (β=-4.4, 95% CI(-7.64,-1.2), poor social support(β= -6.14, 95%CI (-8.8,-3.4), Co-morbid anxiety(β= -4, 95% CI (-7,-1.1) and depression(β=-9.2, 95% CI (-12,-6.4) were negatively associated with physical domain of quality of life. Co-morbid anxiety (β= -11,95% CI (-14.8,-7.3), employment(β = 9.1,95%CI(.5, 17.6), number of children(β = 2.1,95%CI(.8, 3.4), and depression(β= -6.3,95%CI(-9.7,-2.9) were associated with a psychological domain. Duration of incontinence (β=-8.1,95%CI(-12.82,-3.4), poor social support(β= -7.8(-12,-3.6), patients coming for surgical procedure (β= -12,95%CI(-17.4,-6.4) and co-morbid anxiety(β= -9.2,95%CI(-13.8, 4.5) were negatively associated with social domain of quality of life. Number of children present (β = 2.4,95%CI(.82, 3.6), and poor social support(β= -5.5,95%CI(-9.5,-1.5) were significantly associated with an environmental domain of quality of life.Conclusion and recommendationCo-morbid depression and anxiety, poor social support, duration of urine incontinence, employment, number of children, and duration of hospital stay were factors significantly associated with domains of QOL. Treating co-morbid depression and anxiety, strong social support and controlling urine incontinence is necessary to increase women’s domain of quality of life.


2020 ◽  
Author(s):  
Biruktawit Matiwos ◽  
Getachew Tesfaw ◽  
Asmare Belete ◽  
Dessie Abebaw ◽  
shegaye shumet

Abstract Background: The physical, emotional and social suffering associated with continuous leakage of urine has a profound impact on women quality of life. The aim of this study was to assess quality of life and associated factors among obstetric fistula patients in Ethiopia, has a significant role for further intervention. Objective: To assess quality of life and associated factors among obstetric fistula patients in Ethiopia, 2017. Methods: In this cross-sectional study, 289 women with obstetric fistula were recruited for interviews, using the systematic random sampling technique. The World Health Organization Quality of Life – Brief (WHOQOL-BREF) Version was used to assess quality of life. The Jacob perceived stigma scale and the Oslo-3 social support instruments were used to assess the factors. We computed simple and multiple linear regression analysis to assess factors associated with quality of life. P-value <0.05 was declared statistically significant.Result: Of 289 women studied, only 12.1% felt satisfied with their general state of health and quality of life. In the physical health domain, the mean quality of life score was 40.78±.78. In the psychological domain, the mean quality of life score was 39.96±.82. In the social and environmental domain, the mean quality of life score was 32.9±.95, 36.45±.8 respectively. Duration of incontinence (unstandard β=-3.8,95% CI(-6.95,-.62), patients coming for surgical procedure (β=-4.4, 95% CI(-7.64,-1.2), poor social support(β= -6.14, 95%CI (-8.8,-3.4), Co-morbid anxiety(β= -4, 95% CI (-7,-1.1) and depression(β=-9.2, 95% CI (-12,-6.4) were negatively associated with physical domain of quality of life. Co-morbid anxiety (β= -11,95% CI (-14.8,-7.3), employment(β= 9.1,95%CI(.5, 17.6), number of children(β= 2.1,95%CI(.8, 3.4), and depression(β= -6.3,95%CI(-9.7,-2.9) were associated with a psychological domain. Duration of incontinence (β=-8.1,95%CI(-12.82,-3.4), poor social support(β= -7.8(-12,-3.6), patients coming for surgical procedure (β= -12,95%CI(-17.4,-6.4) and co-morbid anxiety(β= -9.2,95%CI(-13.8, 4.5) were negatively associated with social domain of quality of life. Number of children present (β=2.4,95%CI(.82, 3.6), and poor social support(β= -5.5,95%CI(-9.5,-1.5) were significantly associated with an environmental domain of quality of life. Conclusion and recommendation: Co-morbid depression and anxiety, poor social support, duration of urine incontinence, employment, number of children, and duration of hospital stay were factors significantly associated with domains of QOL. Treating co-morbid depression and anxiety, strong social support and controlling urine incontinence is necessary to increase women’s domain of quality of life.


2020 ◽  
Vol 2020 ◽  
pp. 1-8
Author(s):  
Samuel Kakembo ◽  
Christine Atuhairwe ◽  
Ivan Mugisha Taremwa

Background. Obstetric fistula (OF) remains a silent neglected maternal challenge associated with devastating life consequences. Living with OF presents far-reaching physical, social, psychosocial, and emotional concerns, which negatively impact a woman’s quality of life. This study evaluated the quality of life among obstetric fistula patients in Masaka district, Uganda. Method. A cross-sectional study was conducted among 63 women diagnosed with OF at Kitovu Mission Hospital. Data were collected using a questionnaire, observation, in-depth interviews, and focus group discussions. Data were analyzed at univariate, bivariate, and multivariate levels, where the ordinal logistic regression model was applied. The qualitative data was transcribed and analyzed using qualitative content analysis. Results. Majority (87%) of the women diagnosed with OF reportedly had a poor quality of life. Bivariate analysis indicated that level of education (P<0.001), employment status (P<0.001), energy for everyday life (P<0.001), capacity to work (P<0.001), satisfaction with personal relationships (P<0.001), feelings of loneliness (P<0.001), negative feelings (P=0.002), and self-confidence (P<0.001) were significantly associated with good QoL. Multivariate analysis showed increased odds of good QoL increased among women with self-confidence (OR = 32.320; CI = 2.019–517.467), formal education (OR = 9.9497; CI = 1.075–92.048), women who did not experience difficulties in mobility (OR = 19.144; CI = 0.149–2456.770), and women who were satisfied with their personal relationships (OR = 5.785; CI = 0.447–74.824). Conclusion. A holistic fistula treatment approach is required that takes into consideration all aspects of life to address the consequences of obstetric fistula to realize improved quality of life among patients.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Biruktawit Matiwos ◽  
Getachew Tesfaw ◽  
Asmare Belete ◽  
Dessie Abebaw Angaw ◽  
Shegaye Shumet

Abstract Background Obstetric fistula is an abnormal opening between the vagina and bladder or rectum. Women affected by obstetric fistula are often abandoned by their husbands, stigmatized by the community, physically debilitated and blamed for their conditions. These factors lead the victims to low self esteem, depression and prolonged emotional trauma. The physical, emotional and social suffering associated with continuous leakage of urine has a profound impact on women quality of life. The aim of this study was to assess quality of life and associated factors among obstetric fistula patients in Ethiopia, and it will have a significant role for further intervention. Objective To assess quality of life and associated factors among obstetric fistula patients in Ethiopia, 2017. Methods Institution based cross-sectional study design was conducted at fistula centers in Ethiopia. Systematic sampling technique was used to recruit a total of 289 women with obstetric fistula. The World Health Organization Quality of Life—Brief (WHOQOL-BREF) Version was used to assess quality of life. We computed simple and multiple linear regression analysis to assess factors associated with quality of life and P-value < 0.05 was declared statistically significant. Adjusted unstandardized β coefficient of multiple linear regressions was used to describe associated factors of quality of life. Result Of 289 women studied, only 12.1% felt satisfied with their general state of health and quality of life. In the physical health domain, the mean quality of life score was 40.78 ± .78. In the psychological domain, the mean quality of life score was 39.96 ± .82. In the social and environmental domain, the mean quality of life score was 32.9 ± .95, 36.45 ± .8, respectively. Duration of incontinence (β =  − 3.8,95% CI(− 6.95, − .62), patients coming for surgical procedure (β =  − 4.4, 95% CI(− 7.64, − 1.2), poor social support(β =  − 6.14, 95%CI (− 8.8, − 3.4), co-morbid anxiety (β =  − 4, 95% CI (− 7,-1.1) and depression (β =  − 9.2, 95% CI (− 12, − 6.4) were negatively associated with physical domain of quality of life. Co-morbid anxiety (β =  − 11,95% CI (− 14.8, − 7.3), employment (β = 9.1,95% CI (.5, 17.6), number of children(β = 2.1,95%CI(.8, 3.4), and depression(β =  − 6.3,95%CI(− 9.7, − 2.9) were associated with a psychological domain. Duration of incontinence (β =  − 8.1, 95%CI(− 12.82, − 3.4), poor social support (β =  − 7.8(− 12, − 3.6), patients coming for surgical procedure (β =  − 12, 95%CI (− 17.4, − 6.4) and co-morbid anxiety (β =  − 9.2, 95% CI (− 13.8, 4.5) were negatively associated with social domain of quality of life. Number of children present (β = 2.4, 95%CI (.82, 3.6), and poor social support (β =  − 5.5, 95%CI (− 9.5, − 1.5) were significantly associated with an environmental domain of quality of life. Conclusion and recommendation Co-morbid depression and anxiety, poor social support, duration of urine incontinence, employment, number of children, and duration of hospital stay were factors significantly associated with domains of QOL. Treating co-morbid depression and anxiety, and social support are necessary to increase women’s quality of life. In addition, it is better to have a plane of income generation victims, and awareness creation about early treatment of the problem for community by the concerned body to improve women quality of life.


Sign in / Sign up

Export Citation Format

Share Document