Diagnostic Delay in Rheumatoid Arthritis: A Qualitative Study of Symptom Interpretation Before the First Visit to the Doctor

2015 ◽  
Vol 14 (1) ◽  
pp. 26-36 ◽  
Author(s):  
Karen Mølbaek ◽  
Kim Hørslev-Petersen ◽  
Jette Primdahl
Keyword(s):  
Rheumatoid Arthritis ◽  
Qualitative Study ◽  
Diagnostic Delay ◽  
Symptom Interpretation

scholarly journals Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study

PLoS ONE ◽  
2014 ◽  
Vol 9 (12) ◽  
pp. e114350 ◽  
Author(s):  
Francis Berenbaum ◽  
Pierre Chauvin ◽  
Christophe Hudry ◽  
Florence Mathoret-Philibert ◽  
Maud Poussiere ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Qualitative Study

OP0095-HPR Men Living with Rheumatoid Arthritis – a Qualitative Study

2015 ◽  
Vol 74 (Suppl 2) ◽  
pp. 104.3-105
Author(s):  
B.A. Esbensen ◽  
K.V. Jensen ◽  
C.B. Jacobsen
Keyword(s):  
Rheumatoid Arthritis ◽  
Qualitative Study

Occupational balance of women with rheumatoid arthritis: a qualitative study

2004 ◽  
Vol 2 (2) ◽  
pp. 101-112 ◽  
Author(s):  
Tanja Stamm ◽  
Jon Wright ◽  
Klaus Machold ◽  
Gaynor Sadlo ◽  
Josef Smolen
Keyword(s):  
Rheumatoid Arthritis ◽  
Qualitative Study

Sex and Gender Interactions in the Lives of Patients with Spondyloarthritis in Spain: A Quantitative-qualitative Study

2017 ◽  
Vol 44 (10) ◽  
pp. 1429-1435 ◽  
Author(s):  
Mar Blasco-Blasco ◽  
María Teresa Ruiz-Cantero ◽  
Lucero Aida Juárez-Herrera y Cairo ◽  
Vega Jovaní ◽  
Eliseo Pascual
Keyword(s):  
Qualitative Study ◽  
Disease Activity ◽  
Leisure Activities ◽  
Diagnostic Delay ◽  
Well Being ◽  
Sex And Gender ◽  
Traditional Gender Roles ◽  
Contextual Support ◽  
Partner Relationships ◽  
And Gender

Objective.To illustrate the experiences and contextual support perceived by men and women with spondyloarthritis (SpA) in relation to their demanding productive and reproductive roles.Methods.A quantitative-qualitative study of 96 men and 54 women with SpA was conducted at the Alicante University General Hospital, in a Spanish Mediterranean city, from March 2013 to February 2014. Descriptive and qualitative content analyses compared working lives and family/partner relationships of male and female patients.Results.Working life: both women (55.6%) and men (51.04%) were similarly affected, but women had worse disease activity (5.4 vs 4.0, p = 0.01) and less antitumor necrosis factor-α therapy (56.7% vs 77.6%, p < 0.05). Different patterns were found by gender: women mostly practiced presenteeism whereas men practiced absenteeism, women took antiinflammatories prior to work and men after work, employers suggested more frequently the beneficial actions for men, and some women withdrew permanently from the labor market. Family/partner relationships: women were more affected (57.4%) than men (41.7%), with worse results for diagnostic delay (11.2 vs 6.4 yrs, p = 0.02), disease activity (5.8 vs 3.6, p < 0.001), and physical function (5.2 vs 3.8, p = 0.02). Gender role conflicts emerged, with women developing strategies to face compulsory housework whereas men avoided them; women regretted neglecting their children and men not sharing leisure activities with them.Conclusion.Our study highlights the vital complexity in which patients with SpA are immersed, especially for women in a country where a mix of new and traditional gender roles coexist. Awareness of its existence is crucial when professionals strive to provide healthcare focused on their well-being in addition to medical therapy.

scholarly journals Corrigendum to: Patient and Rheumatologist Perspectives on Tapering DMARDs in Rheumatoid Arthritis: A Qualitative Study

Rheumatology ◽  
2021 ◽  
Author(s):  
Glen S Hazlewood ◽  
Adalberto Loyola-Sanchez ◽  
Vivian Bykerk ◽  
Pauline M Hull ◽  
Deborah Marshall ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Qualitative Study

scholarly journals Insights on mental health when living with rheumatoid arthritis: a descriptive qualitative study of threads on the Reddit website

2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Jamie Y. E. Park ◽  
Alyssa M. Howren ◽  
Eileen Davidson ◽  
Mary A. De Vera
Keyword(s):  
Rheumatoid Arthritis ◽  
Mental Health ◽  
Qualitative Study ◽  
Suicide Ideation ◽  
Health Resources ◽  
Online Forums ◽  
The Social ◽  
News Website ◽  
Social News ◽  
Descriptive Qualitative

Abstract Background Reddit is a highly visited social news and discussion website where individuals anonymously ask questions, post opinions and share experiences, which provide a valuable pool of publicly available data. Our objective was to systematically search and analyze threads on the social news website, Reddit, to understand experiences of individuals with rheumatoid arthritis (RA) regarding their mental health. Methods We conducted a patient-oriented descriptive qualitative study. We identified threads from two subreddits, “r/Thritis” and “r/Rheumatoid”, using keywords such as “mood”, “mental health”, “stressed”, “depressed”, “anxious” over a 1-year period between June 2018 and June 2019. For included threads, we extracted the title, original post, and corresponding comments and responses. We applied thematic analysis using an inductive approach. Results Of 81 threads identified, we included 27. We identified four themes: 1) Navigating the management of RA explores how the physical impacts of the disease, lack of health resources/support and the complexity of medications affect mental health; 2) Experiencing impact on relationships and social isolation includes experiencing misconceptions of RA, feeling misunderstood and feeling guilt; 3) Experiencing loss, touches on the helplessness brought by challenges with performing self-defining activities such as self-care, work, and childbearing/parenting; and finally, 4) Experiencing emotional struggles captures how tension between fighting through and despair has led some to suicide ideation and thoughts of death. Conclusions Online forums and communities such as Reddit have created opportunities for individuals with RA to share experiences on mental health matters, which they may not necessarily be able to share with others.

scholarly journals ‘Unpacking’ pathways to lymphoma and myeloma diagnosis: Do experiences align with the Model of Pathways to Treatment? Findings from a UK qualitative study with patients and relatives

BMJ Open ◽  
2020 ◽  
Vol 10 (2) ◽  
pp. e034244
Author(s):  
Debra Howell ◽  
Ruth Hart ◽  
Alexandra Smith ◽  
Una Macleod ◽  
Russell Patmore ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Information Seeking ◽  
Help Seeking ◽  
Healthcare Professionals ◽  
Diagnostic Delay ◽  
Population Based ◽  
Qualitative Description ◽  
Linear Sequence ◽  
Time To Diagnosis ◽  
The Impact

ObjectivesTo explore alignment of experiences before lymphoma and myeloma diagnosis with the appraisal, help seeking and diagnostic intervals in the Model of Pathways to Treatment (MPT).DesignA qualitative study using in-depth semistructured interviews with patients and relatives. Interviews were transcribed verbatim, anonymised and analysed using qualitative description.SettingA UK population-based haematological malignancy patient cohort.ParticipantsFifty-five patients (35 lymphoma, 20 myeloma: diagnosed 2014–2016) and 28 relatives participated, within around a year of the patient’s diagnosis. Patients were selected from those in the cohort who had returned a questionnaire about their symptoms and help seeking, and consented to contact for further research. Sampling was purposive, to achieve maximum variation in age, sex and time to diagnosis.ResultsParticipants described time from symptom onset to diagnosis as ranging from several weeks to years. Pathways largely aligned with MPT components and help seeking could lead to the rapid investigations and identification of abnormalities. However, symptoms could be vague and/or inadvertently interpreted as other conditions, which if perpetuated, could cause diagnostic delay. The latter was associated with chaotic pathways, with activities rarely occurring only once or in a linear sequence. Rather, intermittent or ongoing processes were described, moving forward and backwards through intervals. This is ‘unpacked’ within five themes: (1) appraisal and reappraisal; (2) patient-initiated self-management/treatment; (3) initial help seeking; (4) re-presentation; and (5) patient-initiated actions, decisions and emotions during re-presentation. Within these themes, various healthcare professionals were consulted, often many times, as symptoms persisted/progressed. Input from family/friends was described as substantial, as was the extent to which information seeking occurred.ConclusionLymphoma and myeloma pathways align with the MPT, but do not fully capture the repetition and complexity described by participants. Time to diagnosis was often prolonged, despite the best efforts of patients, relatives and healthcare professionals. The impact of National Health Service England’s Multi-diagnostic Disciplinary Centres on time to haematological cancer diagnosis remains to be seen.

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