scholarly journals Defining Palliative Care Needs in Parkinson's Disease

2018 ◽  
Vol 6 (2) ◽  
pp. 125-131 ◽  
Author(s):  
Benzi M. Kluger ◽  
Jo Shattuck ◽  
Julie Berk ◽  
Kelly Sebring ◽  
Wallace Jones ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Care Needs ◽  
Palliative Care Needs

What Do Social Workers Think about the Palliative Care Needs of People with Parkinson's Disease?

2011 ◽  
Vol 43 (1) ◽  
pp. 81-98 ◽  
Author(s):  
M. Waldron ◽  
W. G. Kernohan ◽  
F. Hasson ◽  
S. Foster ◽  
B. Cochrane
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Social Workers ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Survey of Health Care Workers Suggests Unmet Palliative Care Needs in Parkinson's Disease

2015 ◽  
Vol 2 (2) ◽  
pp. 142-148 ◽  
Author(s):  
Siobhan Fox ◽  
Elizabeth Gannon ◽  
Alison Cashell ◽  
W. George Kernohan ◽  
Marie Lynch ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Health Care ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Health Care Workers ◽  
Care Needs ◽  
Care Workers ◽  
Palliative Care Needs

scholarly journals RADPAC-PD: A tool to support healthcare professionals in timely identifying palliative care needs of people with Parkinson’s disease

PLoS ONE ◽  
2020 ◽  
Vol 15 (4) ◽  
pp. e0230611 ◽  
Author(s):  
Herma Lennaerts-Kats ◽  
Jenny T. van der Steen ◽  
Zefanja Vijftigschild ◽  
Maxime Steppe ◽  
Marjan J. Meinders ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Healthcare Professionals ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Parkinson's Disease Personified: Patient and Caregiver Perspectives on Palliative Care Needs (FR438)

2020 ◽  
Vol 59 (2) ◽  
pp. 465-466
Author(s):  
Jessica M. Besbris ◽  
Christina L. Vaughan ◽  
Benzi Kluger ◽  
Judy Long ◽  
Arik Johnson ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals What makes palliative care needs “complex”? A multisite sequential explanatory mixed methods study of patients referred for specialist palliative care

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Anne M. Finucane ◽  
Connie Swenson ◽  
John I. MacArtney ◽  
Rachel Perry ◽  
Hazel Lamberton ◽  
...  
Keyword(s):  
Palliative Care ◽  
Focus Groups ◽  
Healthcare Professionals ◽  
Psychological Needs ◽  
Care Providers ◽  
Specialist Palliative Care ◽  
Care Needs ◽  
Complex Needs ◽  
Sequential Explanatory ◽  
Palliative Care Needs

Abstract Background Specialist palliative care (SPC) providers tend to use the term ‘complex’ to refer to the needs of patients who require SPC. However, little is known about complex needs on first referral to a SPC service. We examined which needs are present and sought the perspectives of healthcare professionals on the complexity of need on referral to a hospice service. Methods Multi-site sequential explanatory mixed method study consisting of a case-note review and focus groups with healthcare professionals in four UK hospices. Results Documentation relating to 239 new patient referrals to hospice was reviewed; and focus groups involving 22 healthcare professionals conducted. Most patients had two or more needs documented on referral (96%); and needs were recorded across two or more domains for 62%. Physical needs were recorded for 91% of patients; psychological needs were recorded for 59%. Spiritual needs were rarely documented. Referral forms were considered limited for capturing complex needs. Referrals were perceived to be influenced by the experience and confidence of the referrer and the local resource available to meet palliative care needs directly. Conclusions Complexity was hard to detail or to objectively define on referral documentation alone. It appeared to be a term used to describe patients whom primary or secondary care providers felt needed SPC knowledge or support to meet their needs. Hospices need to provide greater clarity regarding who should be referred, when and for what purpose. Education and training in palliative care for primary care nurses and doctors and hospital clinicians could reduce the need for referral and help ensure that hospices are available to those most in need of SPC input.

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