scholarly journals Survey of Health Care Workers Suggests Unmet Palliative Care Needs in Parkinson's Disease

2015 ◽  
Vol 2 (2) ◽  
pp. 142-148 ◽  
Author(s):  
Siobhan Fox ◽  
Elizabeth Gannon ◽  
Alison Cashell ◽  
W. George Kernohan ◽  
Marie Lynch ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Health Care ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Health Care Workers ◽  
Care Needs ◽  
Care Workers ◽  
Palliative Care Needs

What Do Social Workers Think about the Palliative Care Needs of People with Parkinson's Disease?

2011 ◽  
Vol 43 (1) ◽  
pp. 81-98 ◽  
Author(s):  
M. Waldron ◽  
W. G. Kernohan ◽  
F. Hasson ◽  
S. Foster ◽  
B. Cochrane
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Social Workers ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals RADPAC-PD: A tool to support healthcare professionals in timely identifying palliative care needs of people with Parkinson’s disease

PLoS ONE ◽  
2020 ◽  
Vol 15 (4) ◽  
pp. e0230611 ◽  
Author(s):  
Herma Lennaerts-Kats ◽  
Jenny T. van der Steen ◽  
Zefanja Vijftigschild ◽  
Maxime Steppe ◽  
Marjan J. Meinders ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Healthcare Professionals ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Defining Palliative Care Needs in Parkinson's Disease

2018 ◽  
Vol 6 (2) ◽  
pp. 125-131 ◽  
Author(s):  
Benzi M. Kluger ◽  
Jo Shattuck ◽  
Julie Berk ◽  
Kelly Sebring ◽  
Wallace Jones ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Parkinson's Disease Personified: Patient and Caregiver Perspectives on Palliative Care Needs (FR438)

2020 ◽  
Vol 59 (2) ◽  
pp. 465-466
Author(s):  
Jessica M. Besbris ◽  
Christina L. Vaughan ◽  
Benzi Kluger ◽  
Judy Long ◽  
Arik Johnson ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Care Needs ◽  
Palliative Care Needs

Caring for those who care for the dying: Coping with the demands on palliative care workers

2005 ◽  
Vol 3 (4) ◽  
pp. 325-332 ◽  
Author(s):  
AMI ROKACH
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Health Care Workers ◽  
Care Workers

The article reviews the complex and demanding field of palliative care, noting the sources of the stresses and strains that the health care workers often encounter. It illustrates the multidimensional needs of patients, the reasons why they and/or their families may hamper palliative care, and, mostly, what can be done to deal with and—better yet—prevent palliative workers' burnout.

Dying Fit or Not—Physical Activity as Antidote to Death?

2020 ◽  
pp. 003022282091371
Author(s):  
Hanne Bess Boelsbjerg ◽  
Stinne Glasdam
Keyword(s):  
Physical Activity ◽  
Health Care ◽  
Palliative Care ◽  
Field Study ◽  
Advanced Cancer ◽  
Health Care Professionals ◽  
Care Needs ◽  
Palliative Care Needs ◽  
Empirical Material

Physical activity has increasingly gained attention within palliative care. This article aims to explore how the idea of physical activity influences patients with advanced cancer and health-care professionals’ interactions. The empirical material was gathered as part of an anthropological field study about palliative care needs among 16 patients with advanced cancer, consisting of observations and interviews with patients, relatives, and professionals. Two of the patient cases were analyzed, inspired by Goffman’s theory, showing how patients and health-care professionals interact in relation to physical activity. The findings show that patients played roles either embracing physical activity or distancing it by postponement. Professionals played expert roles of duty and attachment, stressing the importance of physical activity. Thus, they accepted a minimum of physical activity when patients were close to death. Professionals regarded patients’ absence of physical activity as a lack of desire to live; patients regard it as a way to live.

scholarly journals A novel care guide for personalised palliative care – a national initiative for improved quality of care

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Dröfn Birgisdóttir ◽  
Anette Duarte ◽  
Anna Dahlman ◽  
Bengt Sallerfors ◽  
Birgit H. Rasmussen ◽  
...  
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Health Care Professionals ◽  
Care Needs ◽  
Comprehensive Overview ◽  
Pilot Studies ◽  
Early Palliative Care ◽  
The Family ◽  
Palliative Care Needs

Abstract Background Even when palliative care is an integrated part of the healthcare system, the quality is still substandard for many patients and often initiated too late. There is a lack of structured guidelines for identifying and caring for patients; in particular for those with early palliative care needs. A care guide can act as a compass for best practice and support the care of patients throughout their palliative trajectory. Such a guide should both meet the needs of health care professionals and patients and families, facilitating discussion around end-of-life decision-making and enabling them to plan for the remaining time in life. The aim of this article is to describe the development and pilot testing of a novel Swedish palliative care guide. Methods The Swedish Palliative Care Guide (S-PCG) was developed according to the Medical Research Council framework and based on national and international guidelines for good palliative care. An interdisciplinary national advisory committee of over 90 health care professionals together with patient, family and public representatives were engaged in the process. The feasibility was tested in three pilot studies in different care settings. Results After extensive multi-unit and interprofessional testing and evaluation, the S-PCG contains three parts that can be used independently to identify, assess, address, follow up, and document the individual symptoms and care-needs throughout the whole palliative care trajectory. The S-PCG can provide a comprehensive overview and shared understanding of the patients’ needs and possibilities for ensuring optimal quality of life, the family included. Conclusions Based on broad professional cooperation, patients and family participation and clinical testing, the S-PCG provides unique interprofessional guidance for assessment and holistic care of patients with palliative care needs, promotes support to the family, and when properly used supports high-quality personalised palliative care throughout the palliative trajectory. Future steps for the S-PCG, entails scientific evaluation of the clinical impact and effect of S-PCG in different care settings – including implementation, patient and family outcomes, and experiences of patient, family and personnel.

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