Pursuing germline genome sequencing to reduce illness uncertainty may involve additional uncertainties for cancer patients: A mixed‐methods study

2021 ◽  
Author(s):  
Nicci Bartley ◽  
Megan Best ◽  
Phyllis Butow
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Genome Sequencing ◽  
Mixed Methods Study ◽  
Illness Uncertainty

scholarly journals Nursing management of fatigue in cancer patients: Mixed methods study

2019 ◽  
Vol 30 ◽  
pp. v844 ◽  
Author(s):  
A. Tolotti ◽  
L. Bonetti ◽  
A. Bordoni ◽  
N. Prieto-Casais ◽  
L. Moser ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Mixed Methods Study ◽  
Nursing Management

The impact of music therapy versus music medicine on psychological outcomes and pain in cancer patients: a mixed methods study

2014 ◽  
Vol 23 (5) ◽  
pp. 1261-1271 ◽  
Author(s):  
Joke Bradt ◽  
Noah Potvin ◽  
Amy Kesslick ◽  
Minjung Shim ◽  
Donna Radl ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Music Therapy ◽  
Cancer Patients ◽  
Psychological Outcomes ◽  
Mixed Methods Study ◽  
Music Medicine ◽  
The Impact

scholarly journals Effects of family-based dignity intervention and expressive writing on anticipatory grief of family caregivers of patients with cancer: a study protocol for a four-arm randomized controlled trial and a qualitative process evaluation

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Naima Seyedfatemi ◽  
Tahereh Najafi Ghezeljeh ◽  
Jafar Bolhari ◽  
Masoud Rezaei
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Study Protocol ◽  
Expressive Writing ◽  
Intervention Group ◽  
Mixed Methods Study ◽  
Trial Registration ◽  
Anticipatory Grief ◽  
Family Based

Abstract Background Family caregivers of dying cancer patients are affected by grief experiences and bereavement complications. Several approaches such as psycho-emotional care and an increase in spirituality have been suggested to diminish these complications. However, the knowledge about the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients is limited. This is a study protocol describing a hospital-based mixed-methods study on the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients. Methods This mixed-methods study will be done in an embedded explanatory design with two quantitative and qualitative phases. In the first phase (quantitative), a randomized clinical trial will be done, in which 200 family caregivers of dying cancer patients will be randomly assigned to one of the four groups: family-based single dignity intervention (group 1), expressive writing intervention (group 2), combined family-based single dignity intervention and expressive writing (group 3), and control (group 4). At baseline, 1 week and 2 weeks after the interventions, anticipatory grief will be assessed by a 13-item anticipatory grief scale. After the quantitative phase, the qualitative phase will be conducted through the conventional content analysis approach of Granheim and Lundman, in which an individual semi-structured interview will be taken from participants in the first phase to collect data on their experiences on interventions. Finally, data from the quantitative and qualitative phases will be analyzed and discussed. Discussion Family caregivers of dying cancer patients usually experience depression, anxiety, and psychological distress due to isolation and inadequate social support. Psychological interventions such as dignity and expressive writing interventions may help caregivers to obtain a better understanding of themselves and to increase their abilities to cope with caregiving difficulties. Therefore, there is a need for a comprehensive study confirming the effects of mentioned interventions on family caregivers of dying cancer patients. Trial registration Iranian Registry of Clinical Trials (www.irct.ir) identifier: IRCT20210111050010N1. Date of trial registration: Feb 6, 2021. This is the first version of this protocol.

Who is at risk for palliative care misconceptions and how do we address them? A mixed-methods study of metastatic lung cancer patients.

2019 ◽  
Vol 37 (31_suppl) ◽  
pp. 67-67
Author(s):  
Laurie McLouth ◽  
Jennifer Gabbard ◽  
Beverly J Levine ◽  
Chandylen L Nightingale ◽  
Kate Furgurson ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Palliative Care ◽  
African American ◽  
Mixed Methods ◽  
Health Literacy ◽  
Cancer Patients ◽  
Mixed Methods Study ◽  
Lung Cancer Patients ◽  
Definition Of ◽  
Inadequate Health Literacy

67 Background: A major misperception of palliative care (PC) is that it is only for people who are about to die. We recently identified this misperception as a barrier to PC in metastatic non-small cell lung cancer (mNSCLC) patients, patients who should all receive early PC per guidelines. The goal of this study was to assess patient characteristics associated with misperceptions about PC and to elicit patient perspectives on how to address them. Methods: We conducted a mixed-methods study of mNSCLC patients on immunotherapy or chemo-immunotherapy. A survey assessed sociodemographics, health literacy, and PC misperceptions. Semi-structured interviews queried perceptions of PC, experiences discussing PC with providers, and reactions to our institutional definition of PC. Qualitative data from interviews were analyzed using directed content analysis approach. Results: Sixty patients (Mean age = 63, 40% male; 18% African American, 45% inadequate health literacy) completed the survey. Twelve of the survey participants (Mean age = 65, 50% male, 25% African American, 67% inadequate health literacy; 50% with caregivers participating) also completed a semi-structured interview. Quantitative survey results showed equating PC with death and/or hospice did not differ based on gender, health literacy, rural vs. urban residence, or time since diagnosis (p’s > .05). Qualitative results showed patients and caregivers consistently associated PC with death (e.g., “the next step to the graveyard”) and hospice. Though some patients noted differences between our institution’s definition of PC and their perceptions (e.g., “delivered at any stage”), the definition did not increase interest and sometimes reinforced misperceptions (e.g., “See, that's a death spiral”). To address misconceptions, patients and caregivers suggested distinguishing PC from end of life and hospice, presenting it positively, and discussing it early into treatment. Conclusions: Lung cancer patients may associate PC with death even if they have adequate health literacy. Commonly used definitions of PC may not quell patient fears. PC needs to be presented as a positive service to patients early into treatment.

scholarly journals Focusing on cancer patients' intentions to use psychooncological support: A longitudinal, mixed-methods study

2018 ◽  
Vol 27 (6) ◽  
pp. 1656-1663 ◽  
Author(s):  
T. Tondorf ◽  
A. Grossert ◽  
S.I. Rothschild ◽  
M.T. Koller ◽  
C. Rochlitz ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Mixed Methods Study

Development of death education training content for adult cancer patients: A mixed methods study

2018 ◽  
Vol 27 (23-24) ◽  
pp. 4400-4410 ◽  
Author(s):  
Song xian Zhao ◽  
Wan min Qiang ◽  
Xiao na Zheng ◽  
Zhi qin Luo
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Mixed Methods Study ◽  
Death Education ◽  
Training Content ◽  
Education Training
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