Social adjustment of adolescent cancer patients transitioning off active treatment: A short-term prospective mixed methods study

2018 ◽  
Vol 66 (3) ◽  
pp. e27530 ◽  
Author(s):  
Sherilynn F. Chan ◽  
Jennifer A. Hoag ◽  
Jeffrey S. Karst ◽  
Kristin M. Bingen
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Social Adjustment ◽  
Active Treatment ◽  
Mixed Methods Study ◽  
Short Term ◽  
Adolescent Cancer

scholarly journals Satisfaction with Fertility Preservation Decisions among Adolescent Males with Cancer: A Mixed Methods Study

Cancers ◽  
2021 ◽  
Vol 13 (14) ◽  
pp. 3559
Author(s):  
Charleen I. Theroux ◽  
Kylie N. Hill ◽  
Anna L. Olsavsky ◽  
James L. Klosky ◽  
Nicholas D. Yeager ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Fertility Preservation ◽  
Childhood Cancer Survivors ◽  
Mixed Methods Study ◽  
Decision Quality ◽  
Structured Interviews ◽  
Short Term ◽  
Male Adolescents ◽  
Decisional Satisfaction ◽  
Ongoing Support

Half of male childhood cancer survivors experience treatment-related fertility impairment, which can lead to distress. Survivors often regret forgoing fertility preservation (FP), and decisional dissatisfaction is associated with a lower quality of life. This mixed methods study examined short-term FP decisional satisfaction among families of male adolescents newly diagnosed with cancer who received an initial fertility consult and completed an FP values clarification tool. One-two months after the FP decision, thirty-nine families completed the Brief Subjective Decision Quality measure. Decisional satisfaction was compared for participants (mothers, fathers, adolescents) who did and did not attempt to bank. Semi-structured interviews included the following question: How do you/your family feel about the banking decision now/in the future? Decisional quality scores were moderate-high (M = 5.74–6.33 out of 7), with no significant differences between non-attempter (n = 15) and attempter (n = 24) families (adolescents: p = 0.83, d = 0.08; mothers: p = 0.18, d = 0.45; fathers: p = 0.32, d = 0.44). Three qualitative themes emerged among non-attempter families: (1) satisfaction with decision (50% of participants), (2) acceptance of decision (60%), and (3) potential for future regret (40%). Satisfaction with decision was the only theme identified in attempter families (93%). Quantitively, short-term decisional satisfaction was high regardless of the banking attempt. However, the qualitative findings suggest that the experiences of families who did not bank may be more nuanced, as several participants discussed a potential for future regret, highlighting the importance of ongoing support.

scholarly journals Nursing management of fatigue in cancer patients: Mixed methods study

2019 ◽  
Vol 30 ◽  
pp. v844 ◽  
Author(s):  
A. Tolotti ◽  
L. Bonetti ◽  
A. Bordoni ◽  
N. Prieto-Casais ◽  
L. Moser ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Mixed Methods Study ◽  
Nursing Management

scholarly journals How Effective Is Youth Volunteering as an Employment Strategy? A Mixed Methods Study of England

Sociology ◽  
2020 ◽  
Vol 54 (4) ◽  
pp. 763-781
Author(s):  
Bryony Hoskins ◽  
Pauline Leonard ◽  
Rachel Wilde
Keyword(s):  
Mixed Methods ◽  
Citizenship Education ◽  
Qualitative Interviews ◽  
Longitudinal Survey ◽  
Mixed Methods Study ◽  
Short Term ◽  
Mixed Methods Approach ◽  
Negative Effect ◽  
Support Policy ◽  
The Relationship

Volunteering is routinely advocated in British policy as a key mechanism for young people to gain employment, but with little evidence of its viability as a strategy. Indeed, the limited research in this area suggests the link is weak and that access to good quality volunteering is differentiated along class lines. This article draws on a mixed methods approach, using survey data from the Citizenship Education Longitudinal Survey and qualitative interviews, to analyse the relationship between youth volunteering and employment. It finds that volunteering is not unequivocally beneficial for employment, particularly if it does not offer career-related experience or is imposed rather than self-initiated. It can even have a negative effect on employment. Furthermore, social class mediates access to volunteering opportunities most likely to convert into employment. We conclude there is little evidence to support policy assumptions that, in the short term, volunteering has a positive relationship to paid employment.

The impact of music therapy versus music medicine on psychological outcomes and pain in cancer patients: a mixed methods study

2014 ◽  
Vol 23 (5) ◽  
pp. 1261-1271 ◽  
Author(s):  
Joke Bradt ◽  
Noah Potvin ◽  
Amy Kesslick ◽  
Minjung Shim ◽  
Donna Radl ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Music Therapy ◽  
Cancer Patients ◽  
Psychological Outcomes ◽  
Mixed Methods Study ◽  
Music Medicine ◽  
The Impact

scholarly journals Effects of family-based dignity intervention and expressive writing on anticipatory grief of family caregivers of patients with cancer: a study protocol for a four-arm randomized controlled trial and a qualitative process evaluation

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Naima Seyedfatemi ◽  
Tahereh Najafi Ghezeljeh ◽  
Jafar Bolhari ◽  
Masoud Rezaei
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Study Protocol ◽  
Expressive Writing ◽  
Intervention Group ◽  
Mixed Methods Study ◽  
Trial Registration ◽  
Anticipatory Grief ◽  
Family Based

Abstract Background Family caregivers of dying cancer patients are affected by grief experiences and bereavement complications. Several approaches such as psycho-emotional care and an increase in spirituality have been suggested to diminish these complications. However, the knowledge about the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients is limited. This is a study protocol describing a hospital-based mixed-methods study on the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients. Methods This mixed-methods study will be done in an embedded explanatory design with two quantitative and qualitative phases. In the first phase (quantitative), a randomized clinical trial will be done, in which 200 family caregivers of dying cancer patients will be randomly assigned to one of the four groups: family-based single dignity intervention (group 1), expressive writing intervention (group 2), combined family-based single dignity intervention and expressive writing (group 3), and control (group 4). At baseline, 1 week and 2 weeks after the interventions, anticipatory grief will be assessed by a 13-item anticipatory grief scale. After the quantitative phase, the qualitative phase will be conducted through the conventional content analysis approach of Granheim and Lundman, in which an individual semi-structured interview will be taken from participants in the first phase to collect data on their experiences on interventions. Finally, data from the quantitative and qualitative phases will be analyzed and discussed. Discussion Family caregivers of dying cancer patients usually experience depression, anxiety, and psychological distress due to isolation and inadequate social support. Psychological interventions such as dignity and expressive writing interventions may help caregivers to obtain a better understanding of themselves and to increase their abilities to cope with caregiving difficulties. Therefore, there is a need for a comprehensive study confirming the effects of mentioned interventions on family caregivers of dying cancer patients. Trial registration Iranian Registry of Clinical Trials (www.irct.ir) identifier: IRCT20210111050010N1. Date of trial registration: Feb 6, 2021. This is the first version of this protocol.

scholarly journals The impact of a short-term training program on workers’ sterile processing knowledge and practices in 12 Ethiopian hospitals: A mixed methods study

PLoS ONE ◽  
2019 ◽  
Vol 14 (5) ◽  
pp. e0215643 ◽  
Author(s):  
Olive M. Fast ◽  
Hareya Gebremedhin Teka ◽  
Mussie Alemayehu/Gebreselassie ◽  
Christina Marie Danielle Fast ◽  
Dan Fast ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Training Program ◽  
Mixed Methods Study ◽  
Short Term ◽  
Sterile Processing ◽  
The Impact

Who is at risk for palliative care misconceptions and how do we address them? A mixed-methods study of metastatic lung cancer patients.

2019 ◽  
Vol 37 (31_suppl) ◽  
pp. 67-67
Author(s):  
Laurie McLouth ◽  
Jennifer Gabbard ◽  
Beverly J Levine ◽  
Chandylen L Nightingale ◽  
Kate Furgurson ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Palliative Care ◽  
African American ◽  
Mixed Methods ◽  
Health Literacy ◽  
Cancer Patients ◽  
Mixed Methods Study ◽  
Lung Cancer Patients ◽  
Definition Of ◽  
Inadequate Health Literacy

67 Background: A major misperception of palliative care (PC) is that it is only for people who are about to die. We recently identified this misperception as a barrier to PC in metastatic non-small cell lung cancer (mNSCLC) patients, patients who should all receive early PC per guidelines. The goal of this study was to assess patient characteristics associated with misperceptions about PC and to elicit patient perspectives on how to address them. Methods: We conducted a mixed-methods study of mNSCLC patients on immunotherapy or chemo-immunotherapy. A survey assessed sociodemographics, health literacy, and PC misperceptions. Semi-structured interviews queried perceptions of PC, experiences discussing PC with providers, and reactions to our institutional definition of PC. Qualitative data from interviews were analyzed using directed content analysis approach. Results: Sixty patients (Mean age = 63, 40% male; 18% African American, 45% inadequate health literacy) completed the survey. Twelve of the survey participants (Mean age = 65, 50% male, 25% African American, 67% inadequate health literacy; 50% with caregivers participating) also completed a semi-structured interview. Quantitative survey results showed equating PC with death and/or hospice did not differ based on gender, health literacy, rural vs. urban residence, or time since diagnosis (p’s > .05). Qualitative results showed patients and caregivers consistently associated PC with death (e.g., “the next step to the graveyard”) and hospice. Though some patients noted differences between our institution’s definition of PC and their perceptions (e.g., “delivered at any stage”), the definition did not increase interest and sometimes reinforced misperceptions (e.g., “See, that's a death spiral”). To address misconceptions, patients and caregivers suggested distinguishing PC from end of life and hospice, presenting it positively, and discussing it early into treatment. Conclusions: Lung cancer patients may associate PC with death even if they have adequate health literacy. Commonly used definitions of PC may not quell patient fears. PC needs to be presented as a positive service to patients early into treatment.

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