scholarly journals Childhood cancer registries in Ontario, Canada: Lessons learned from a comparison of two registries

2003 ◽  
Vol 105 (1) ◽  
pp. 88-91 ◽  
Author(s):  
Mark L. Greenberg ◽  
Ronald D. Barr ◽  
Bruna DiMonte ◽  
Eva McLaughlin ◽  
Corin Greenberg
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries ◽  
Lessons Learned

scholarly journals Implementing Yogyakarta Pediatric Cancer Registry for 16 years

2019 ◽  
Vol 59 (4) ◽  
pp. 188-94
Author(s):  
Sri Mulatsih ◽  
Adnina Hariningrum ◽  
Ignatius Purwanto ◽  
Rizki Oktasari
Keyword(s):  
Childhood Cancer ◽  
Cancer Registry ◽  
Pediatric Cancer ◽  
Lymphoblastic Leukemia ◽  
Myeloproliferative Disorders ◽  
Cancer Registries ◽  
Clinical Aspects ◽  
Cancer Registry Data ◽  
Kaplan Meier ◽  
Standard Risk

Background A hospital-based cancer registry can be used as a guide to decision-making. Considering the limited cancer registry data in the population, the Yogyakarta Pediatric Cancer Registry (YPCR) is one of the pioneers of hospital-based pediatric cancer registries in Indonesia. The YPCR was started in 2000 in Dr. Sardjito Hospital. Objective To describe the characteristics of childhood cancer and the outcomes by analyzing overall survival (OS) and event-free survival (EFS) based on data from Yogyakarta Pediatric Cancer Registry. Methods Data were collected from the YPCR for the period of 2000 to 2016. Childhood cancers were classified into 12 groups based on the 3rd edition International Classification for Childhood Cancer (ICCC). Incidence, frequency, and distribution of cases were grouped by sex, age, and patients’ place of residence. Incidence was further analyzed using SPSS software. Kaplan-Meier test was used to analyze OS and EFS. Results Within the study period, 2,441 children aged 0-18 years were diagnosed with cancer. The highest incidence was found in the 1-5-year age group. The most common diagnoses found were leukemia, myeloproliferative disorders, and myelodysplastic disease (58%); lymphoma and reticuloendothelial neoplasm (8%); retinoblastoma (6%); soft tissue and other extra-osseous sarcomas (5%); as well as neuroblastoma and other peripheral nervous cell tumors (5%). The OSs of acute lymphoblastic leukemia (ALL), high risk ALL (HR-ALL), and standard risk (SR-ALL) were 31.8%, 18.5%, and 43.9%, respectively. The EFSs of ALL, HR-ALL, and SR-ALL were 23.9%, 14.7%, and 32.4%, respectively. For solid tumors, the OS was 13.7% and EFS was 6.4%. Conclusion The number of new cases of childhood cancer has increased in the last few years. The Yogyakarta Pediatric Cancer Registry (YPCR), which serves as a hospital-based pediatric cancer registry, has an important role to evaluate clinical and non-clinical aspects of childhood cancer.

scholarly journals Establishing a Cancer Registry in a Resource-Constrained Region: Process Experience From Ghana

2020 ◽  
pp. 610-616
Author(s):  
Joel Yarney ◽  
Naomi O. Ohene Oti ◽  
Benedict N. L. Calys-Tagoe ◽  
Richard K. Gyasi ◽  
Isaac Agyeman Duah ◽  
...  
Keyword(s):  
Cancer Registry ◽  
Good Governance ◽  
Focal Point ◽  
Cancer Control ◽  
Cancer Registries ◽  
Lessons Learned ◽  
External Support ◽  
Administrative Structure ◽  
Policy Document ◽  
Control Plan

PURPOSE In a review of cancer incidence across continents (GLOBOCAN 2012), data sources from Ghana were classified as Frequencies, the lowest classification for inclusion, signifying the worst data quality for inclusion in the analysis. Recognizing this deficiency, the establishment of a population-based cancer registry was proposed as part of a broader cancer control plan. METHODS The registry was examined under the following headings: policy, data source, and administrative structure; external support and training; and definition of geographic coverage. RESULTS The registry was set up based on the Ghana policy document on the strategy for cancer control. The paradigm shift ensured subscription to one data collection software (CanReg 5) in the country. The current approach consists of trained registrars based in the registry who conduct active data abstraction at the departments and units of the hospital and pathologic services. To ensure good governance, an administrative structure was created, including an advisory board, a technical committee, and registry staff. External support for the establishment of the Accra Cancer Registry has come mainly from Stanford University and the African Cancer Registry Network, in collaboration with the University of Ghana. Unlike previous attempts, this registry has a well-defined population made up of nine municipal districts. CONCLUSION The Accra Cancer Registry was established as a result of the lessons learned from failed previous attempts and aim to provide a model for setting up other cancer registries in Ghana. It will eventually be the focal point where all the national data can be collated.

scholarly journals Epidemiological analysis of childhood cancer in Japan based on population-based cancer registries, 1993–2009

2017 ◽  
Vol 47 (7) ◽  
pp. 660-663 ◽  
Author(s):  
Hiroyuki Ishihara ◽  
Yuko Ohno ◽  
Makoto Fujii ◽  
Junichi Hara ◽  
Midori Soda
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Epidemiological Analysis

Birth and maternal characteristics, and childhood cancer in the United States: An ecological study.

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. 10061-10061
Author(s):  
Guilherme Abreu Pereira ◽  
Carlos Rodriguez-Galindo ◽  
A. Lindsay Frazier ◽  
Paolo Boffetta ◽  
Karina Braga Ribeiro
Keyword(s):  
Childhood Cancer ◽  
Cancer Incidence ◽  
Maternal Age ◽  
Ecological Study ◽  
State Level ◽  
Cancer Registries ◽  
The United States ◽  
Chronic Hypertension ◽  
Lymphoid Leukemia ◽  
Maternal Characteristics

10061 Background: Childhood cancer is rare, yet it represents a major cause of mortality in this age group. Its etiology is largely unknown. The aim of this study was to identify associations between pre- and perinatal characteristics and cancer development in children below age 5. Methods: We developed an ecological study correlating birth information and childhood cancer incidence in 0-4 year old at the State level. The following variables were analyzed: birth weight (BW), preterm birth, maternal age, plurality, maternal smoking, chronic hypertension (CH), diabetes mellitus (DM), pregnancy associated hypertension (PH) and eclampsia. Birth characteristics were obtained from Centers for Disease Control and Prevention (CDC) database (1995-2009), and childhood cancer incidence data from the National Program of Cancer Registries (NPCR) and the Surveillance, Epidemiology and End Results (SEER) program (1999-2009). Spearman correlation coefficients were calculated with SAS 9.2 (Cary, NC). Bonferroni correction was applied for multiple comparisons, ie, only results with p£0.01 were considered significant. Results: Acute lymphoid leukemia (ALL) (r=0.47, p <0.001), astrocytoma (AST) (r=0.59, p <0.001), neuroblastoma (NB) (r=0.48, p <0.001) and rhabdomyosarcoma (RMS) (r=0.51, p=0.003) were positively correlated with high BW (>4000g). ALL (r=0.46, p <0.001) was also positively correlated with advanced maternal age (40+ years). Moreover, a positive correlation was found between plurality and NB (r=0.50, p <0.001). Regarding maternal conditions, the following positive correlations were identified: DM with AST (r=0.40, p=0.009), NB (r=0.38, p=0.01) and WT (r=0.38, p=0.01). Conclusions: Well established correlations were replicated and new associations were suggested (e.g., AST and DM). In spite of the limitation of an ecological approach, this study provided new hypotheses to be explored in further analytical studies based on individual data.

scholarly journals Epidemiology of Childhood Cancer in Indonesia: Study of 14 Population Based Cancer Registries

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 67s-67s
Author(s):  
J. Agustina ◽  
D.T. Sinulingga ◽  
E. Suzanna ◽  
E. Tehuteru ◽  
R. Ramadhan ◽  
...  
Keyword(s):  
Quality Control ◽  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Quality Data ◽  
Lower Percentage ◽  
Cancer Center ◽  
Ministry Of Health ◽  
Cancer Burden ◽  
National Quality

Background: Childhood cancer was about 3%-5% cases of all cases. Dharmais National Cancer Hospital was pointed out by Ministry of Health as National Quality Control of Cancer Burden Data in 2016. To provide national cancer burden data, Ministry of Health established 14 population based cancer registries in 2016, located in 14 provinces in Indonesia. The coverage area was 26 districts/municipalities in each selected provinces with total coverage number of population was 14% of Indonesia. Aim: This study was to describe quality data of 14 population based cancer registries in Indonesia and to describe the epidemiology of childhood cancer during 2008-2012. Methods: We used 14 population based cancer registries data that collected in Office of National Quality Control of Cancer Burden Data, Dharmais National Cancer Center, within age 0-19 years old during 2008-2012. We analyzed quality data of 14 population based cancer registries data based on WHO-IARC rules for cancer registry data. Results: There were 4156 cases. The average of percentage microscopic verification was 59%, 7 out of 7 provinces had lower percentage of microscopic verification. The highest was South Sulawesi (98%) followed by Central Java (92.9%), and East Borneo (79.4%). Most of them had over 25% of DCO. DKI Jakarta had the highest incidence age-standardized rate (7.1) followed by Bali (4.9) and North Sulawesi (4.8). The most frequent childhood cancer cases were in male (57%), between 10-14 years old. Both in male and female had similar rank of the most frequent cases, other malignant epithelial (22.4%: 17.2%), leukemia (19.3%: 14.3%), and other and unspecified malignant tumor (9.4%: 8.4%). Conclusion: The coverage and quality data of childhood cancer in 14 population based cancer registries data were low. Each population based cancer registries should improve the process of cancer registration.

Pediatric Cancer Registry in Turkey 2009-2018 (TPOG & TPHD).

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e21510-e21510
Author(s):  
M. Tezer Kutluk ◽  
Akif Yeşilipek
Keyword(s):  
Childhood Cancer ◽  
Children And Adolescents ◽  
Cancer Registry ◽  
Pediatric Cancer ◽  
Health Care Professionals ◽  
Survival Rates ◽  
Age Distribution ◽  
Soft Tissue Sarcomas ◽  
Cancer Registries ◽  
Term Survival

e21510 Background: In Children and adolescents aged 0-14, each year more than 200.000 new cancer cases are expected at global level. For the planning and implementation of an effective pediatric cancer control program, pediatric cancer registries are essential. The long term survival rates have been improved to 85% in high income countries, however it is still less than this in LMICs. This work presents the most updated results of the pediatric cancer registry in Turkey. Methods: Turkish Pediatric Oncology Group and Turkish Pediatric Hematology Association has established the Pediatric Cancer Registry in 2002. The childhood cancer cases registered between 2009-2018 was included in this analysis. International Childhood Cancer Classification System was used for the classification. Essential demographic findings, ICD-O-3 morphology and topography codes were recorded for each case. Results: During the 10 years from 2009 to 2018, 15713 cases were registered. For all cases, median age was 6.7 year (0-17; M/F 8838/6867, 3 hermaphrodite, 5 unknown). Age distribution was 0-4 yrs, 40.7%; 5-9 yrs, 24.4%; 10-14 yrs, 23.2%; 15-19 yrs, 11.7%) The distribution of the tumor types were [number of cases, percentage of total, median age yrs, M/F]: Leukemia (4368, 27.8%, 5.4, 2519/1849); Lymphoma & other RES tumors (2996, 19.1%, 9.7, 2012/979, 1 hermaphrodite & 4 unknown); CNS [brain & spinal] (2089, 13.3%, 7.1, 1142/947); Symphatetic system (1243, 7.9%, 2.4, 650/593); Retinoblastoma (358, 2.3%, 1.4, 204/154); Renal (788, 5.0%, 3.3, 369/419); Liver (260, 1.7%, 1.8, 143/117); Malignant bone (1030, 6.6%, 12.6, 566/464); Soft tissue sarcomas (1052, 6.7%, 7.4, 611/441); Germ cell (971, 6.2%, 8.4, 346/622, 2 hermaphrodite, 1 unknown); Carcinoma & other malignant epithelial (462, 2.9%, 13.7, 226/236); Other/non-specific malignant (96, 0.5%, 7.8, 50/46). Five year survival rate was found as 70.8%. Conclusions: This registry has been used widely among health care professionals since its establishment in 2002. Survival rates for children and adolescents has been improved to 70%. This level of survival is at the acceptable level for an upper middle income country. This registry became a useful source for investigator and decision makers at national and international level.

An application of the Toronto Childhood Cancer Stage Guidelines in three population‐based cancer registries: The case of central nervous tumors

2020 ◽  
Vol 67 (6) ◽  
Author(s):  
Carlotta Sacerdote ◽  
Maria Luisa Mosso ◽  
Daniela Alessi ◽  
Franco Merletti ◽  
Giovanna Tagliabue ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Cancer Stage

Incidence of childhood cancer in France: National Children Cancer Registries, 2000–2004

2010 ◽  
Vol 19 (3) ◽  
pp. 173-181 ◽  
Author(s):  
Brigitte Lacour ◽  
Aurélie Guyot-Goubin ◽  
Sandra Guissou ◽  
Stéphanie Bellec ◽  
Emmanuel Désandes ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries

Childhood Cancer Survival Trends in Europe: A EUROCARE Working Group Study

2005 ◽  
Vol 23 (16) ◽  
pp. 3742-3751 ◽  
Author(s):  
Gemma Gatta ◽  
Riccardo Capocaccia ◽  
Charles Stiller ◽  
Peter Kaatsch ◽  
Franco Berrino ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Eastern Europe ◽  
Cancer Survival ◽  
Wilms Tumor ◽  
Germ Cell Tumors ◽  
Cancer Registries ◽  
Population Based ◽  
West Germany ◽  
Cns Tumors ◽  
Childhood Cancer Survival

Purpose EUROCARE collected data from population-based cancer registries in 20 European countries. We used this data to compare childhood cancer survival time trends in Europe. Patients and Methods Survival in 44,129 children diagnosed under the age of 15 years during 1983 to 1994 was analyzed. Sex- and age-adjusted 5-year survival trends for 10 common cancers and for all cancers combined were estimated for five regions (West Germany, the United Kingdom, Eastern Europe, Nordic countries, and West and South Europe) and Europe as a whole. Europe-wide trends for 14 rare cancers were estimated. Results For all cancers combined, 5-year survival increased from 65% for diagnoses in 1983 to 1985 to 75% in 1992 to 1994. Survival improved for all individual cancers except melanoma, osteosarcoma, and thyroid carcinoma; although for retinoblastoma, chondrosarcoma, and fibrosarcoma, improvements were not significant. The most marked improvements (50% to 66%) occurred in Eastern Europe. For common cancers, the greatest improvements were for leukemia and lymphomas, with risk of dying reducing significantly by 5% to 6% per year. Survival for CNS tumors improved significantly from 57% to 65%, with risk reducing by 3% per year. Risk reduced by 4% per year for neuroblastoma and 3% per year for Wilms’ tumor and rhabdomyosarcoma. The survival gap between regions reduced over the period, particularly for acute nonlymphocytic leukemia, CNS tumors, and rhabdomyosarcoma. For rare Burkitt’s lymphoma, hepatoblastoma, gonadal germ cell tumors, and nasopharyngeal carcinoma, risk reductions were at least 10% per year. Conclusion These gratifying improvements in survival can often be plausibly related to advances in treatment. The prevalence of European adults with a history of childhood cancer will inevitably increase.

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