An application of the Toronto Childhood Cancer Stage Guidelines in three population‐based cancer registries: The case of central nervous tumors

2020 ◽  
Vol 67 (6) ◽  
Author(s):  
Carlotta Sacerdote ◽  
Maria Luisa Mosso ◽  
Daniela Alessi ◽  
Franco Merletti ◽  
Giovanna Tagliabue ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Cancer Stage

scholarly journals Epidemiological analysis of childhood cancer in Japan based on population-based cancer registries, 1993–2009

2017 ◽  
Vol 47 (7) ◽  
pp. 660-663 ◽  
Author(s):  
Hiroyuki Ishihara ◽  
Yuko Ohno ◽  
Makoto Fujii ◽  
Junichi Hara ◽  
Midori Soda
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Epidemiological Analysis

scholarly journals Epidemiology of Childhood Cancer in Indonesia: Study of 14 Population Based Cancer Registries

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 67s-67s
Author(s):  
J. Agustina ◽  
D.T. Sinulingga ◽  
E. Suzanna ◽  
E. Tehuteru ◽  
R. Ramadhan ◽  
...  
Keyword(s):  
Quality Control ◽  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Quality Data ◽  
Lower Percentage ◽  
Cancer Center ◽  
Ministry Of Health ◽  
Cancer Burden ◽  
National Quality

Background: Childhood cancer was about 3%-5% cases of all cases. Dharmais National Cancer Hospital was pointed out by Ministry of Health as National Quality Control of Cancer Burden Data in 2016. To provide national cancer burden data, Ministry of Health established 14 population based cancer registries in 2016, located in 14 provinces in Indonesia. The coverage area was 26 districts/municipalities in each selected provinces with total coverage number of population was 14% of Indonesia. Aim: This study was to describe quality data of 14 population based cancer registries in Indonesia and to describe the epidemiology of childhood cancer during 2008-2012. Methods: We used 14 population based cancer registries data that collected in Office of National Quality Control of Cancer Burden Data, Dharmais National Cancer Center, within age 0-19 years old during 2008-2012. We analyzed quality data of 14 population based cancer registries data based on WHO-IARC rules for cancer registry data. Results: There were 4156 cases. The average of percentage microscopic verification was 59%, 7 out of 7 provinces had lower percentage of microscopic verification. The highest was South Sulawesi (98%) followed by Central Java (92.9%), and East Borneo (79.4%). Most of them had over 25% of DCO. DKI Jakarta had the highest incidence age-standardized rate (7.1) followed by Bali (4.9) and North Sulawesi (4.8). The most frequent childhood cancer cases were in male (57%), between 10-14 years old. Both in male and female had similar rank of the most frequent cases, other malignant epithelial (22.4%: 17.2%), leukemia (19.3%: 14.3%), and other and unspecified malignant tumor (9.4%: 8.4%). Conclusion: The coverage and quality data of childhood cancer in 14 population based cancer registries data were low. Each population based cancer registries should improve the process of cancer registration.

scholarly journals Collection and Reporting of National Cancer Stage at Diagnosis Data in Australia (STaR Project)

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 67s-67s
Author(s):  
R. Long ◽  
A. Woods ◽  
C. Biondi ◽  
J. Luzuriaga ◽  
C. Anderiesz ◽  
...  
Keyword(s):  
Pediatric Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
National Standard ◽  
Cancer Stage ◽  
Stage At Diagnosis ◽  
Business Rules ◽  
Cancer Outcomes ◽  
National Data ◽  
First Time

Background: Stage at diagnosis is an important prognostic factor for cancer, providing contextual information for interpreting population health indicators such as mortality from cancer and cancer survival. Australian population-based cancer registries (PBCRs) routinely collect information on cancer incidence and mortality. The need for high quality, comprehensive national data on stage at diagnosis to supplement these data are widely recognized in Australia. The collection and dissemination of quality national stage data will enhance the: • ability to better monitor cancer outcomes, inform cancer control policy; • understand variations across different populations; and • identify where further research and targeted strategies may be required to improve cancer outcomes. Linking data on cancer stage at diagnosis with other administrative cancer data will also allow for a better understanding of the relationship between stage at diagnosis, treatments received, patterns of cancer recurrence, and survival outcomes. Aim: To strengthen national data capacity by collecting and reporting cancer stage at diagnosis for Cancer Australia's Stage, Treatment and Recurrence (STaR) project. Methods: Working with state and territory population-based cancer registries (PBCRs) and the Australian Pediatric Cancer Registry, Cancer Australia supported the development and testing of Business Rules for the collection of national cancer stage at diagnosis for: • The top 5 incident cancers based on the Tumor, Node, and Metastasis (TNM) staging system. These rules were endorsed by the Australasian Association of Cancer Registries (AACR) as a national standard in May 2016; and • Childhood cancers, with a separate set of Business Rules for 16 childhood cancer types based on the Toronto Pediatric Cancer Stage Guidelines. These rules were supported by the AACR as a national standard. Results: Using the AACR-endorsed Business Rules, comprehensive national cancer stage at diagnosis data for the top 5 incident cancers (for 2011) have been collected in Australia for the first time. Over 90% of incidence cases were able to be assigned a value for registry-derived (RD) stage at diagnosis for melanoma (97%), prostate (97%), and female breast (94%) cancers. Lower staging completeness was found for colorectal cancers (88%), and for lung cancers (72%). Business Rules for the collection of stage at diagnosis data for pediatric cancers have also been developed; 93% of sample cases diagnosed in the period 2006-2010 were able to be staged, ranging from 84% for nonrhabdomyosarcoma to 100% for hepatoblastoma. Conclusion: The Business Rules enabled the uniform collection of cancer stage at diagnosis data for the first time in Australia. The collection of these data will allow for the linkage of stage at diagnosis to other sources of information, including patterns of treatments applied, and enable reporting of survival and recurrence outcomes by stage.

Childhood Cancer Survival Trends in Europe: A EUROCARE Working Group Study

2005 ◽  
Vol 23 (16) ◽  
pp. 3742-3751 ◽  
Author(s):  
Gemma Gatta ◽  
Riccardo Capocaccia ◽  
Charles Stiller ◽  
Peter Kaatsch ◽  
Franco Berrino ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Eastern Europe ◽  
Cancer Survival ◽  
Wilms Tumor ◽  
Germ Cell Tumors ◽  
Cancer Registries ◽  
Population Based ◽  
West Germany ◽  
Cns Tumors ◽  
Childhood Cancer Survival

Purpose EUROCARE collected data from population-based cancer registries in 20 European countries. We used this data to compare childhood cancer survival time trends in Europe. Patients and Methods Survival in 44,129 children diagnosed under the age of 15 years during 1983 to 1994 was analyzed. Sex- and age-adjusted 5-year survival trends for 10 common cancers and for all cancers combined were estimated for five regions (West Germany, the United Kingdom, Eastern Europe, Nordic countries, and West and South Europe) and Europe as a whole. Europe-wide trends for 14 rare cancers were estimated. Results For all cancers combined, 5-year survival increased from 65% for diagnoses in 1983 to 1985 to 75% in 1992 to 1994. Survival improved for all individual cancers except melanoma, osteosarcoma, and thyroid carcinoma; although for retinoblastoma, chondrosarcoma, and fibrosarcoma, improvements were not significant. The most marked improvements (50% to 66%) occurred in Eastern Europe. For common cancers, the greatest improvements were for leukemia and lymphomas, with risk of dying reducing significantly by 5% to 6% per year. Survival for CNS tumors improved significantly from 57% to 65%, with risk reducing by 3% per year. Risk reduced by 4% per year for neuroblastoma and 3% per year for Wilms’ tumor and rhabdomyosarcoma. The survival gap between regions reduced over the period, particularly for acute nonlymphocytic leukemia, CNS tumors, and rhabdomyosarcoma. For rare Burkitt’s lymphoma, hepatoblastoma, gonadal germ cell tumors, and nasopharyngeal carcinoma, risk reductions were at least 10% per year. Conclusion These gratifying improvements in survival can often be plausibly related to advances in treatment. The prevalence of European adults with a history of childhood cancer will inevitably increase.

scholarly journals Assessing the feasibility and validity of the Toronto Childhood Cancer Stage Guidelines: a population-based registry study

2018 ◽  
Vol 2 (3) ◽  
pp. 173-179 ◽  
Author(s):  
Joanne F Aitken ◽  
Danny R Youlden ◽  
Andrew S Moore ◽  
Peter D Baade ◽  
Leisa J Ward ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Population Based ◽  
Cancer Stage ◽  
Registry Study ◽  
Population Based Registry

scholarly journals Paediatric cancer stage in population-based cancer registries: the Toronto consensus principles and guidelines

2016 ◽  
Vol 17 (4) ◽  
pp. e163-e172 ◽  
Author(s):  
Sumit Gupta ◽  
Joanne F Aitken ◽  
Ute Bartels ◽  
James Brierley ◽  
Mae Dolendo ◽  
...  
Keyword(s):  
Cancer Registries ◽  
Population Based ◽  
Cancer Stage ◽  
Paediatric Cancer

Childhood cancer incidence in India: A review of population-based cancer registries

2014 ◽  
Vol 51 (3) ◽  
pp. 218-220 ◽  
Author(s):  
L. Satyanarayana ◽  
Smitha Asthana ◽  
S. Preeti Labani
Keyword(s):  
Childhood Cancer ◽  
Cancer Incidence ◽  
Cancer Registries ◽  
Population Based

Survival of Childhood Cancer Patients in Italy, 1978–1989

1997 ◽  
Vol 83 (1) ◽  
pp. 426-489 ◽  
Author(s):  
Corrado Magnani ◽  
Guido Pastore ◽  
Arduino Verdecchia ◽  
Riccardo Capocaccia ◽  
Roberta De Angelis ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registries ◽  
Population Based ◽  
Bone Neoplasm ◽  
Malignant Neoplasms ◽  
Italian Population ◽  
Central Nervous System Neoplasms ◽  
Acute Lymphatic Leukaemia ◽  
The Uk ◽  
Nervous System Neoplasms

In the framework of the ITACARE project, a cooperative investigation conducted on the data from the Italian population-based cancer registries, survival of patients with childhood malignant neoplasms was studied. The study included 1,768 cases diagnosed at age 0–14 plus 29 osteosarcoma cases diagnosed at age 15–19. Cases were collected over the period 1978–1989, or more limited periods for some participating registries. A total of 1,138 cases were from the Childhood Cancer Registry of Piedmont and 659 from the registries operating in the provinces of Varese, Parma, Modena, Forlì and Ravenna, Florence, Latina, Ragusa and in the cities of Genova and Torino (the last contributed only for bone neoplasm diagnosed at age 15–19). Overall 5-year survival was 54% for malignancies diagnosed in 1978–1981, 60% for the period 1982–1985, and 69% for the period 1986–1989. The range among registries of 5-year survival for cases diagnosed in 1986–1989 was 55–78%. Most diagnostic categories presented an improved prognosis for the cases diagnosed more recently. For cases diagnosed in 1986–1989, 5-year survival was: 74% for acute lymphatic leukaemia, 40% for acute non-lymphatic leukaemia, 65% for central nervous system neoplasms (76% for astrocytoma, 75% for ependymoma and 85% for medulloblastoma), 66% for osteosarcoma, 55% for Ewing's sarcoma, 87% for Hodgkin's disease, 64% for non-Hodgkin's lymphoma, 74% for rhabdomyosarcoma, 64% for neuroblastoma, 78% for nephroblastoma and 100% for retinoblastoma. Italian survival was similar to that observed in other population-based surveys in the UK and USA.

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