scholarly journals Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

2017 ◽  
Vol 7 (10) ◽  
pp. e00810 ◽  
Author(s):  
Hormoz Sanaeinasab ◽  
Mohsen Saffari ◽  
Mahrokh Hashempour ◽  
Ali-Akbar Karimi Zarchi ◽  
Waleed A. Alghamdi ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Education Program ◽  
Transactional Model ◽  
Coping Effectiveness

Evaluation of a Teleconference-Delivered Energy Conservation Education Program for People with Multiple Sclerosis

2007 ◽  
Vol 74 (4) ◽  
pp. 337-347 ◽  
Author(s):  
Marcia Finlayson ◽  
Christa Holberg
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Education Program ◽  
Leadership Skills ◽  
Group Cohesion ◽  
Occupational Therapists ◽  
Conservation Education ◽  
Group Leadership ◽  
Delivery Format ◽  
Technical Issues

Background. Little is known about the strengths and limitations of teleconference delivery for energy conservation education for people with multiple sclerosis (MS). This study evaluated such a program to address this gap. Methods. Data were collected from 28 individuals with MS who participated in a teleconference-delivered energy conservation education program. Participants shared their perspectives on the course and its delivery format. Session notes from the three occupational therapists who delivered the program were also reviewed. Findings. Participants found the format to be convenient and relaxed, and the content to be relevant to their everyday lives. Technical issues, lack of time for sharing, and lack of time to practice strategies were limitations. Although the format challenged the occupational therapists' group leadership skills, they were surprised at the extent of group cohesion that developed using this format. Implications. Feedback from both people with MS and occupational therapists suggests that providing energy conservation education by teleconference is acceptable, practical, and worth pursuing in the future.

Coping with general and disease-related stressors by patients with multiple sclerosis: relationships to psychological distress

1997 ◽  
Vol 3 (3) ◽  
pp. 191-196 ◽  
Author(s):  
VM Jean ◽  
WW Beatty ◽  
RH Paul ◽  
L. Mullins
Keyword(s):  
Multiple Sclerosis ◽  
Psychological Distress ◽  
Coping Strategies ◽  
Coping Styles ◽  
Perceived Efficacy ◽  
Coping Effectiveness

This study examined the relationships between coping styles and psychological distress in a non-institutionalized sample of individuals with multiple sclerosis (MS). The MS sample completed a measure of psychological distress and identified coping strategies utilized for stressors that were disease-related and general in nature. They also self-reported their perceived efficacy of the coping strategies utilized for both stressors. Individuals with MS exhibited greater levels of depression and other indices of psychological distress than demographically matched controls but the patterns of coping strategies endorsed and the ratings of coping effectiveness were similar for the two groups. When coping with disease-related stressors, individuals with MS utilized coping strategies that were more emotion-focused and dependent but no less effective than when the same patients coped with general stressors. Within the MS group, high levels of psychological distress were positively correlated with the use of emotion-focused coping strategies, but were unrelated to the use of problem-focused strategies. Most individuals with MS appear to be able to modify their coping strategies to adapt to varying sorts of stressors.

Patient education program to enhance decision autonomy in multiple sclerosis relapse management: a randomized-controlled trial

2009 ◽  
Vol 15 (1) ◽  
pp. 96-104 ◽  
Author(s):  
S Köpke ◽  
J Kasper ◽  
I Mühlhauser ◽  
M Nübling ◽  
C Heesen
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Decision Making ◽  
Patient Education ◽  
Education Program ◽  
Treatment Decision ◽  
Treatment Decision Making ◽  
Patient Education Program ◽  
Disability Status

Background Contrary to strong recommendations for high-dose intravenous corticosteroid treatment for relapses in multiple sclerosis (MS), uncertainty remains about most aspects of relapse management. Oral corticosteroids administered by physicians or patients themselves or no corticosteroids also appear justifiable. Objective To evaluate an education program that aims to involve patients with MS in decisions on relapse management. Methods In three German MS centers, 150 patients with relapsing MS were randomly assigned to a single, 4-h group session or a standard information leaflet. The primary outcome measure was the proportion of relapses with oral or no corticosteroid therapy as an indicator of patient autonomy in treatment decision making. Other outcomes included perceived decision autonomy, quality of life, and disability status. Results In the intervention group (IG), 108/139 (78%) relapses were treated with oral or no corticosteroids compared with 101/179 (56%) in the control group; P < 0.0001. Patients’ perceived autonomy of treatment decision making was significantly higher in the IG; P < 0.0001. Quality of life, disability status, and adverse events of corticosteroid therapies were comparable. Conclusion The patient education program led to more autonomous decision making in patients with relapsing MS. Relevant changes in relapse management were observed.

scholarly journals Effects of Cognition on Quiz Performance, Behavior Change, and Vitality After Energy Conservation Course Among People With Multiple Sclerosis

2007 ◽  
Vol 9 (1) ◽  
pp. 13-21 ◽  
Author(s):  
Marcia Finlayson ◽  
Eynat Shevil ◽  
Ping Luo ◽  
Hua Yun Chen ◽  
Virgil Mathiowetz
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Behavior Change ◽  
Education Program ◽  
Cognitive Abilities ◽  
Word List ◽  
Cognitive Status ◽  
Conservation Education ◽  
Conservation Strategies ◽  
Actual Behavior

This secondary analysis of randomized control trial data evaluated the influence of cognitive abilities on the outcomes of people with multiple sclerosis (MS) who participated in a 6-week community-based energy conservation education program. Baseline measures of cognitive status included the four scales from the Neuropsychological Screening Battery for MS: Consistent Long-Term Retrieval Test (CLTR), Word List Generation Test (WLGT), Paced Auditory Serial Addition Test (PASAT), and Spatial Recall Test (SRT). Scores on knowledge quizzes, number of energy conservation strategies used postintervention, and change in SF-36 vitality subscale postintervention were analyzed via multiple regression and generalized estimating equation models. After adjusting for age, education, and sex, only SRT influenced scores on the knowledge quizzes and change in the level of vitality postintervention. CLTR, WLGT, and PASAT scores influenced the use of energy conservation strategies, after similar adjustment. In conclusion, cognitive abilities have a differential influence on outcomes in an energy conservation education program for people with MS. Actual behavior change postintervention was influenced the most by cognitive abilities.

scholarly journals Der Einfluss eines selbstregulierten sportlichen Trainings auf Personen mit Multipler Sklerose

2021 ◽  
Vol 27 (01) ◽  
pp. 66-75
Author(s):  
P. Reuter-Mielisch ◽  
S. Woschek ◽  
C. Lutz ◽  
P. Schubert ◽  
C. T. Haas
Keyword(s):  
Multiple Sclerosis ◽  
Exercise Training ◽  
Education Program ◽  
Self Efficacy ◽  
Walking Ability ◽  
Walk Test ◽  
Severity Scale ◽  
Fatigue Severity ◽  
Functional Gait ◽  
Minute Walk

Zusammenfassung Einleitung: Eine Vielzahl an Studien weist darauf hin, dass Sport einen positiven Effekt auf verschiedene Symptome der Multiplen Sklerose (MS) hat. Das Ziel dieser Studie war es herauszufinden, welchen Einfluss ein selbstreguliertes sportliches Training auf den Gang, die Gehfähigkeit, die Selbstwirksamkeit, die sportbezogene Selbstwirksamkeit und die Fatigue von MS-Erkrankten hat. Patienten und Methoden: Zunächst erfolgte eine sportorientierte Kompaktschulung (SpoKs) im Wochenend-Workshop-Design für die teilnehmenden MS-Erkrankten, um sie auf eine selbstgesteuerte Trainingsphase vorzubereiten. Daraufhin trainierten die Probanden eigenständig für 12 Wochen. Für die Messungen wurden das Functional Gait Assessment (FGA), der 10-Meter-Gehtest (10MWT), der 6-Minuten-Gehtest (6MWT), die Multiple Sclerosis Self-efficacy Scale (MSSES), die Skala für die Selbstwirksamkeit zur sportlichen Aktivität (SSA) und die Fatigue Severity Scale (FSS) vor (T0) und 12 Wochen nach Beginn der Schulung (T1) durchgeführt. Ergebnisse: Die Ergebnisse zeigten bei allen motorischen Tests signifikante Unterschiede zwischen T0 und T1 (FGA [p < 0,001], 6MWT [p < 0,05], 10MWTs [p < 0,001], 10MWTf [p < 0,05]). Zusätzlich ist eine signifikante Verbesserung der FSS (p < 0,05) nach dem Interventionszeitraum zu erkennen. Hinsichtlich der MSSES- und SSA-Skala zeigten sich keine signifikanten Veränderungen. Diskussion: Ein selbstreguliertes sportliches Training stellt eine Option dar, den Gang und die Gehfähigkeit bei MS-Patienten zu verbessern. Zudem hat es mildernde Effekte auf die Fatigue- Symptomatik dieser Patientengruppe. Künftige Studien sollten den Ansatz des selbstregulierten Trainings aufgreifen, um weitere positive Effekte aufzudecken. Schlüsselwörter: Multiple Sklerose, Sport, Patientenschulung, selbstreguliertes Training Abstract Introduction: Numerous studies indicate a positive effect of exercise training on various symptoms in multiple sclerosis (MS). The aim of this study was to find out the impact of a self-regulated exercise training on gait, walking ability, self-efficacy, self-efficacy towards physical exercise, and fatigue in people with MS. Materials and methods: Initially, the participants completed an education program to be prepared for a period of self-regulated exercise. After the education program, the patients were encouraged to perform selfregulated exercises for twelve weeks. Measurements, using functional gait assessment (FGA), the 10-minute walk test (10MWT), 6-minute walk test (6MWT), Multiple Sclerosis Self-Efficacy Scale (MSSES), self-efficacy towards physical exercise scale (SSA) and Fatigue Severity Scale (FSS), were performed before (T0) and 12 weeks after the education program (T1). Results: All results of the physical tests showed a significant change between T0 and T1 (FGA (p < 0.001), 6MWT (p < 0.05), 10MWTs (p < 0.001), 10MWTf (p < 0.05)). In addition, there was a significant improvement in FSS (p < 0.05) after the intervention period. There were no significant changes on the MSSES and SSA scales. Discussion: Self-regulated exercise training is an option for improving gait and walking ability in patients with MS. Additionally, there were mitigating effects on fatigue in this patient sample. Future studies should continue to investigate the approach of self-regulated training to reveal further positive effects. Keywords: multiple sclerosis, exercise training, patient education, selfregulated exercise training

Implementation of a patient education program on multiple sclerosis relapse management

2012 ◽  
Vol 86 (1) ◽  
pp. 91-97 ◽  
Author(s):  
Sascha Köpke ◽  
Tanja Richter ◽  
Jürgen Kasper ◽  
Ingrid Mühlhauser ◽  
Peter Flachenecker ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Patient Education ◽  
Education Program ◽  
Multiple Sclerosis Relapse ◽  
Patient Education Program

scholarly journals Development and Preliminary Evaluation of a 3-Week Inpatient Energy Management Education Program for People with Multiple Sclerosis–Related Fatigue

2019 ◽  
Vol 21 (6) ◽  
pp. 265-274 ◽  
Author(s):  
Ruth Hersche ◽  
Andrea Weise ◽  
Gisela Michel ◽  
Jürg Kesselring ◽  
Marco Barbero ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Energy Management ◽  
Education Program ◽  
Behavioral Change ◽  
Management Education ◽  
Inpatient Rehabilitation ◽  
Inpatient Setting ◽  
Evidence Based ◽  
Fatigue Management

Abstract Background: Energy conservation strategies and cognitive behavioral therapy techniques are valid parts of outpatient fatigue management education in people with multiple sclerosis (MS). In many European countries, multidisciplinary rehabilitation for people with MS is chiefly delivered in specialized rehabilitation centers, where they benefit from short intensive inpatient rehabilitation annually. However, no evidence-based and standardized fatigue management education program compatible with the inpatient setting is available. Methods: Based on a literature search and the expertise of occupational therapists (OTs), a manualized group-based Inpatient Energy Management Education (IEME) program for use during 3-week inpatient rehabilitation that incorporates energy conservation and cognitive behavioral management approaches was developed. An IEME pilot program operated by trained OTs included 13 people with MS-related fatigue. The experiences of the IEME users and OTs were collected during focus groups to refine the program's materials and verify its feasibility in the inpatient setting. Results: The program was feasible in an inpatient setting and met the needs of the people with MS. Targeted behaviors were taught to all participants in a clinical context. In-charge OTs were able to effect behavioral change through IEME. Conclusions: Users evaluated the evidence-based IEME program positively. The topics, supporting materials, and self-training tasks are useful for the promotion and facilitation of behavioral change. The next step is a clinical trial to investigate the efficacy of IEME and to evaluate relevant changes in self-efficacy, fatigue impact, and quality of life after patients return home.

Sign in / Sign up

Export Citation Format

Share Document