Implementation of a patient education program on multiple sclerosis relapse management

2012 ◽  
Vol 86 (1) ◽  
pp. 91-97 ◽  
Author(s):  
Sascha Köpke ◽  
Tanja Richter ◽  
Jürgen Kasper ◽  
Ingrid Mühlhauser ◽  
Peter Flachenecker ◽  
...  
2009 ◽  
Vol 15 (1) ◽  
pp. 96-104 ◽  
Author(s):  
S Köpke ◽  
J Kasper ◽  
I Mühlhauser ◽  
M Nübling ◽  
C Heesen

Background Contrary to strong recommendations for high-dose intravenous corticosteroid treatment for relapses in multiple sclerosis (MS), uncertainty remains about most aspects of relapse management. Oral corticosteroids administered by physicians or patients themselves or no corticosteroids also appear justifiable. Objective To evaluate an education program that aims to involve patients with MS in decisions on relapse management. Methods In three German MS centers, 150 patients with relapsing MS were randomly assigned to a single, 4-h group session or a standard information leaflet. The primary outcome measure was the proportion of relapses with oral or no corticosteroid therapy as an indicator of patient autonomy in treatment decision making. Other outcomes included perceived decision autonomy, quality of life, and disability status. Results In the intervention group (IG), 108/139 (78%) relapses were treated with oral or no corticosteroids compared with 101/179 (56%) in the control group; P < 0.0001. Patients’ perceived autonomy of treatment decision making was significantly higher in the IG; P < 0.0001. Quality of life, disability status, and adverse events of corticosteroid therapies were comparable. Conclusion The patient education program led to more autonomous decision making in patients with relapsing MS. Relevant changes in relapse management were observed.


PLoS ONE ◽  
2016 ◽  
Vol 11 (10) ◽  
pp. e0165246 ◽  
Author(s):  
Karin Riemann-Lorenz ◽  
Marlene Eilers ◽  
Gloria von Geldern ◽  
Karl-Heinz Schulz ◽  
Sascha Köpke ◽  
...  

2016 ◽  
Vol 26 (9) ◽  
pp. 2074-2081 ◽  
Author(s):  
Wendy A. Brown ◽  
Paul R. Burton ◽  
Kalai Shaw ◽  
Brittany Smith ◽  
Shelley Maffescioni ◽  
...  

2012 ◽  
Vol 7 (4) ◽  
pp. 648-655 ◽  
Author(s):  
Rachel E. Patzer ◽  
Jennie P. Perryman ◽  
Stephen Pastan ◽  
Sandra Amaral ◽  
Julie A. Gazmararian ◽  
...  

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