Using active birth defects surveillance programs to supplement data on fetal death reports: Improving surveillance data on stillbirths

2008 ◽  
Vol 82 (11) ◽  
pp. 799-804 ◽  
Author(s):  
Wes Duke ◽  
Laura Williams ◽  
Adolfo Correa
Keyword(s):  
Birth Defects ◽  
Fetal Death ◽  
Surveillance Data ◽  
Surveillance Programs

scholarly journals Challenges and Priorities for Surveillance of Stillbirths: A Report on Two Workshops

2009 ◽  
Vol 124 (5) ◽  
pp. 652-659 ◽  
Author(s):  
C. Wes Duke ◽  
Adolfo Correa ◽  
Paul A. Romitti ◽  
Joyce Martin ◽  
Russell S. Kirby
Keyword(s):  
Birth Defects ◽  
Fetal Death ◽  
Population Based ◽  
Pediatric Pathology ◽  
Maternal Fetal Medicine ◽  
Case Identification ◽  
Active Population ◽  
Control And Prevention ◽  
Surveillance Programs ◽  
Key Aspects

Stillbirths, those with and without birth defects, are an important public health topic. The National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention conducted two workshops during April and July 2005. Both workshops explored the challenges of conducting surveillance of stillbirths. Workshop participants considered an approach that added the surveillance of stillbirths, those with and without birth defects, as part of existing population-based birth defects surveillance programs in Iowa and Atlanta. The workshops addressed three key aspects for expanding birth defects programs to conduct active, population-based surveillance on stillbirths: ( 1) case identification and ascertainment, ( 2) data collection, and ( 3) data use and project evaluation. Participants included experts in pediatrics, obstetrics, epidemiology, maternal-fetal medicine, perinatology and pediatric pathology, midwifery, as well as practicing clinicians and pathologists. Expanding existing birth defects surveillance programs to include information of stillbirths could potentially enhance the data available on fetal death reports and also could benefit such programs by improving the ascertainment of birth defects.

scholarly journals Putting birth defects surveillance data to action

2020 ◽  
Author(s):  
Russell S. Kirby ◽  
Marilyn L. Browne
Keyword(s):  
Birth Defects ◽  
Surveillance Data

scholarly journals Value of sharing and networking among birth defects surveillance programs: an ICBDSR perspective

2018 ◽  
Vol 9 (4) ◽  
pp. 411-415 ◽  
Author(s):  
Eva Bermejo-Sánchez ◽  
Lorenzo D. Botto ◽  
Marcia L. Feldkamp ◽  
Boris Groisman ◽  
Pierpaolo Mastroiacovo
Keyword(s):  
Birth Defects ◽  
Surveillance Programs

scholarly journals Using birth defects surveillance programs for population‐based estimation of sibling recurrence risks

2018 ◽  
Vol 110 (19) ◽  
pp. 1383-1387
Author(s):  
A.J. Agopian ◽  
Jason L. Salemi ◽  
Jean Paul Tanner ◽  
Russell S. Kirby
Keyword(s):  
Birth Defects ◽  
Population Based ◽  
Surveillance Programs

Assessment of U.S. Embrittlement Trend Equations Considering the Latest Available Surveillance Data

2004 ◽  
Author(s):  
William L. Server ◽  
Randy G. Lott ◽  
Stan T. Rosinski
Keyword(s):  
Statistical Test ◽  
Surveillance Data ◽  
Surveillance Program ◽  
Correlation Model ◽  
Pressurized Water Reactor ◽  
Pressurized Water ◽  
Water Reactor ◽  
Correlation Models ◽  
Pressurized Thermal Shock ◽  
Surveillance Programs

The mechanistically-guided embrittlement correlation model adopted in ASTM E 900-02 was based on a database of U.S. surveillance results current through calendar year 1998. There exists now an extensive amount of new surveillance data that includes a large amount of boiling water reactor (BWR) results from an integrated, supplemental surveillance program designed to augment the plant-specific BWR surveillance programs. These recent data allow a statistical test of the ASTM E 900-02 embrittlement correlation, as well as the NRC correlation model currently being used in the pressurized thermal shock (PTS) re-evaluation effort and the older Regulatory Guide 1.99, Revision 2 correlation. Even though the ASTM E 900-02 embrittlement correlation is a simplified version of the NRC model, a comparison of the two embrittlement correlation models utilizing the new database has proven to be revealing. Based on the new BWR data, both models are inadequate in their ability to predict BWR results; this inadequacy has even more significance for extrapolation outside of the database for BWR heat-up and cool-down curves, as well as some pressurized water reactor (PWR) heat-up curves. Other aspects of the two models, as revealed from this preliminary look at the new data, are presented.

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