scholarly journals Using birth defects surveillance programs for population‐based estimation of sibling recurrence risks

2018 ◽  
Vol 110 (19) ◽  
pp. 1383-1387
Author(s):  
A.J. Agopian ◽  
Jason L. Salemi ◽  
Jean Paul Tanner ◽  
Russell S. Kirby
Keyword(s):  
Birth Defects ◽  
Population Based ◽  
Surveillance Programs

scholarly journals Challenges and Priorities for Surveillance of Stillbirths: A Report on Two Workshops

2009 ◽  
Vol 124 (5) ◽  
pp. 652-659 ◽  
Author(s):  
C. Wes Duke ◽  
Adolfo Correa ◽  
Paul A. Romitti ◽  
Joyce Martin ◽  
Russell S. Kirby
Keyword(s):  
Birth Defects ◽  
Fetal Death ◽  
Population Based ◽  
Pediatric Pathology ◽  
Maternal Fetal Medicine ◽  
Case Identification ◽  
Active Population ◽  
Control And Prevention ◽  
Surveillance Programs ◽  
Key Aspects

Stillbirths, those with and without birth defects, are an important public health topic. The National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention conducted two workshops during April and July 2005. Both workshops explored the challenges of conducting surveillance of stillbirths. Workshop participants considered an approach that added the surveillance of stillbirths, those with and without birth defects, as part of existing population-based birth defects surveillance programs in Iowa and Atlanta. The workshops addressed three key aspects for expanding birth defects programs to conduct active, population-based surveillance on stillbirths: ( 1) case identification and ascertainment, ( 2) data collection, and ( 3) data use and project evaluation. Participants included experts in pediatrics, obstetrics, epidemiology, maternal-fetal medicine, perinatology and pediatric pathology, midwifery, as well as practicing clinicians and pathologists. Expanding existing birth defects surveillance programs to include information of stillbirths could potentially enhance the data available on fetal death reports and also could benefit such programs by improving the ascertainment of birth defects.

Public Health Practice of Population-Based Birth Defects Surveillance Programs in the United States

2016 ◽  
Vol 22 (3) ◽  
pp. E1-E8 ◽  
Author(s):  
Cara T. Mai ◽  
Russell S. Kirby ◽  
Adolfo Correa ◽  
Deborah Rosenberg ◽  
Michael Petros ◽  
...  
Keyword(s):  
Public Health ◽  
United States ◽  
Birth Defects ◽  
Public Health Practice ◽  
The United States ◽  
Population Based ◽  
Health Practice ◽  
Surveillance Programs

scholarly journals Birth defects data from population-based birth defects surveillance programs in the United States, 2007 to 2011: Highlighting orofacial clefts

2014 ◽  
Vol 100 (11) ◽  
pp. 895-904 ◽  
Author(s):  
Cara T. Mai ◽  
Cynthia H. Cassell ◽  
Robert E. Meyer ◽  
Jennifer Isenburg ◽  
Mark A. Canfield ◽  
...  
Keyword(s):  
United States ◽  
Birth Defects ◽  
The United States ◽  
Population Based ◽  
Orofacial Clefts ◽  
Surveillance Programs

scholarly journals Status of population‐based birth defects surveillance programs before and after the Zika public health response in the United States

2018 ◽  
Vol 110 (19) ◽  
pp. 1388-1394
Author(s):  
Marlene Anderka ◽  
Cara T. Mai ◽  
Emily M. Judson ◽  
Peter H. Langlois ◽  
Philip J. Lupo ◽  
...  
Keyword(s):  
Public Health ◽  
United States ◽  
Birth Defects ◽  
The United States ◽  
Population Based ◽  
Public Health Response ◽  
Health Response ◽  
Before And After ◽  
Surveillance Programs

scholarly journals Assessing the Practices of Population-Based Birth Defects Surveillance Programs Using the CDC Strategic Framework, 2012

2015 ◽  
Vol 130 (6) ◽  
pp. 722-730 ◽  
Author(s):  
Cara T. Mai ◽  
Adolfo Correa ◽  
Russell S. Kirby ◽  
Deborah Rosenberg ◽  
Michael Petros ◽  
...  
Keyword(s):  
Birth Defects ◽  
Population Based ◽  
Strategic Framework ◽  
Surveillance Programs
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