scholarly journals Stakeholder engagement in dementia care research: Identification of stakeholders and their perspectives on participatory research

2020 ◽  
Vol 16 (S7) ◽  
Author(s):  
Antonia Kowe ◽  
Stefanie Köhler ◽  
Olga A Klein ◽  
Corinna Lüthje ◽  
Stefan J Teipel
Keyword(s):  
Participatory Research ◽  
Stakeholder Engagement ◽  
Dementia Care ◽  
Care Research

scholarly journals Engagement with a diverse Stakeholder Advisory Council for research in dementia care

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Sara S. Masoud ◽  
Ashlie A. Glassner ◽  
Neela Patel ◽  
Mayra Mendoza ◽  
Deborah James ◽  
...  
Keyword(s):  
Stakeholder Engagement ◽  
Social Care ◽  
Family Care ◽  
Research Process ◽  
Dementia Care ◽  
Advisory Council ◽  
Structured Interviews ◽  
Care Research ◽  
Care Partners ◽  
Health And Social Care

Abstract Background The inclusion of stakeholders throughout the research process has been gaining recognition as an approach that can improve the quality and impact of research. Stakeholder engagement for dementia care research has been identified as a national priority, though evaluation of engagement strategies and their impact has been limited. In dementia care research, stakeholders can include individuals living with dementia, family care partners, and health and social care professionals in dementia care. A Stakeholder Advisory Council (SAC) was established to identify priorities for dementia care research that are most important to stakeholders. Strategies to build capacity for research and facilitate engagement among the SAC were used to identify the research priorities. This study describes the experiences of SAC members engaged in the research process. Methods To evaluate stakeholder engagement, semi-structured interviews were conducted with members of the SAC to understand their experiences and perspectives on the strategies used to facilitate engagement and build capacity for research. Interviews were recorded, transcribed, and thematically analyzed using a mixed inductive and deductive approach. Findings were presented to members of the SAC to determine whether they felt their perspectives and experiences were accurately represented. Final domains and themes presented here were approved by the SAC. Results Interviews (N = 11) were conducted with members of the SAC representing each stakeholder group; persons living with dementia (n = 2); family care partners (n = 4), and health and social care professionals in dementia care (n = 5). Ten themes were categorized into four overarching domains: accessibility, council infrastructure, values and environment, and benefits of involvement. Conclusions Findings from this qualitative study are a resource for researchers seeking to collaborate with diverse stakeholder groups to represent their perspectives in research, including individuals living with dementia. The domains and themes identified here support the inclusion of diverse stakeholders in the research process, centering engagement and capacity building strategies around individuals living with dementia.

scholarly journals Engagement with a Diverse Stakeholder Advisory Council for Research in Dementia Care

2021 ◽  
Author(s):  
Sara Suzanne Masoud ◽  
Ashlie A. Glassner ◽  
Neela Patel ◽  
Mayra Mendoza ◽  
Deborah James ◽  
...  
Keyword(s):  
Stakeholder Engagement ◽  
Social Care ◽  
Family Care ◽  
Research Process ◽  
Dementia Care ◽  
Advisory Council ◽  
Structured Interviews ◽  
Care Research ◽  
Care Partners ◽  
Health And Social Care

Abstract Background The inclusion of stakeholders throughout the research process has been gaining recognition as an approach that can improve the quality and impact of research. Stakeholder engagement for dementia care research has been identified as a national priority, though evaluation of engagement strategies and their impact has been limited. In dementia care research, stakeholders can include individuals living with dementia, family care partners, and health and social care professionals in dementia care. A Stakeholder Advisory Council (SAC) was established to identify priorities for dementia care research that are most important to stakeholders. Strategies to build capacity for research and facilitate engagement among the SAC were used to identify the research priorities. This study describes the experiences of SAC members engaged in the research process. Methods To evaluate stakeholder engagement, semi-structured interviews were conducted with members of the SAC to understand their experiences and perspectives on the strategies used to facilitate engagement and build capacity for research. Interviews were recorded, transcribed, and thematically analyzed using a mixed inductive and deductive approach. Findings were presented to members of the SAC to determine whether they felt their perspectives and experiences were accurately represented. Final domains and themes presented here were approved by the SAC. Results Interviews (N=11) were conducted with members of the SAC representing each stakeholder group; persons living with dementia (n=2); family care partners (n=4), and health and social care professionals in dementia care (n=5). Ten themes were categorized into four overarching domains: accessibility, council infrastructure, values and environment, and benefits of involvement. Conclusions Findings from this qualitative study are a resource for researchers seeking to collaborate with diverse stakeholder groups to represent their perspectives in research, including individuals living with dementia. The domains and themes identified here support the inclusion of diverse stakeholders in the research process, centering engagement and capacity building strategies around individuals living with dementia.

scholarly journals Evolution of a Community-Based Participatory Approach in a Rural and Remote Dementia Care Research Program

2014 ◽  
Vol 8 (3) ◽  
pp. 337-345 ◽  
Author(s):  
Debra Morgan ◽  
Margaret Crossley ◽  
Norma Stewart ◽  
Andrew Kirk ◽  
Dorothy Forbes ◽  
...  
Keyword(s):  
Research Program ◽  
Participatory Approach ◽  
Dementia Care ◽  
Rural And Remote ◽  
Community Based ◽  
Care Research

Stakeholder Engagement in OT Research: Raising the Standard for Dementia Care

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505144p1-7512505144p1
Author(s):  
Jenny Martinez ◽  
Catherine Piersol ◽  
Lauren Terhorst ◽  
Sherrie Holloway ◽  
Felicia Chew ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Nursing Home ◽  
Stakeholder Engagement ◽  
Nursing Home Residents ◽  
Dementia Care ◽  
Pragmatic Clinical Trial ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. This presentation will characterize our experiences integrating stakeholder engagement into a multisite pragmatic clinical trial focused on optimizing care for nursing home residents with dementia. We will discuss our methods for building OT capacity to conduct research that includes the voices of stakeholders. Primary Author and Speaker: Jenny Martinez Additional Authors and Speakers: Catherine Piersol Contributing Authors: Lauren Terhorst, Sherrie Holloway, Felicia Chew, and Natalie Elizabeth Leland

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