scholarly journals Evolution of a Community-Based Participatory Approach in a Rural and Remote Dementia Care Research Program

Author(s):  
Debra Morgan ◽  
Margaret Crossley ◽  
Norma Stewart ◽  
Andrew Kirk ◽  
Dorothy Forbes ◽  
...  
Author(s):  
Lu Xiao ◽  
Trina Joyce Sajo

Librarian 2.0 adopts user-centered approach. This paper reports the case study of a community-based participatory approach for training librarian 2.0. The findings suggest that this approach allows the students to practice user-centered interactions, identify and integrate the user’s needs into design decisions, and develop ways of collecting the user’s feedbacks.Les bibliothécaires 2.0 adoptent une approche centrée sur l’utilisateur. Cet article présente une étude de cas sur une approche participative et communautaire visant à former les bibliothécaires 2.0. Les résultats suggèrent que cette approche permet aux étudiants d’interagir avec les usagers, d’identifier les besoins, de les intégrer dans leur processus décisionnel et de développer des moyens de recueillir les commentaires des usagers. 


2021 ◽  
Author(s):  
Shivani Mathur Gaiha ◽  
Marcia Zorrilla ◽  
Ira Sachnoff ◽  
Stephen Smuin ◽  
Adrienne Lazaro ◽  
...  

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 60-61
Author(s):  
Johan Suen

Abstract For holistic interventions and research on dementia, it is fundamental to understand care experiences from the perspectives of carers, care recipients, and care professionals. While research on care dyads and triads have highlighted the effects of communication and interactional aspects on care relationships, there is a lack of knowledge on how individual-contextual and relational factors shape the provision and receipt of care in terms of decision-making processes, resource allocation, and expectations of care outcomes. Thus, this paper sheds light on (i) how carers negotiate care provision with other important life domains such as employment, household/family roles and conflicts, as well as their own health problems, life goals, values, and aspirations for ageing; (ii) how older adults with dementia perceive support and those who provide it; (iii) the structural constraints faced by care professionals in delivering a team-based mode of dementia care; and, taken together, (iv) how community-based dementia care is impeded by barriers at the individual, relational, and institutional levels. Findings were derived from semi-structured interviews and observational data from fieldwork conducted with 20 persons with dementia (median age = 82), 20 of their carers (median age = 60), and 4 professional care providers. All respondents were clients and staff of a multidisciplinary and community-based dementia care system in Singapore. Our analysis indicates the impact of dementia care is strongly mediated by the interplay between institutional/familial contexts of care provision and the various ‘orientations’ to cognitive impairment and seeking support, which we characterised as ‘denial/acceptance’, ‘obligated’, ‘overprotective’, and ‘precariously vulnerable’.


Author(s):  
Jennifer M. Reckrey ◽  
Kathrin Boerner ◽  
Emily Franzosa ◽  
Evan Bollens-Lund ◽  
Katherine A. Ornstein

2021 ◽  
pp. 096100062110651
Author(s):  
Jiamin Dai ◽  
Joan C. Bartlett ◽  
Karyn Moffatt

Growing dementia-friendly library services are contributing to community-based dementia care. Emerging community programs in libraries and museums provide notable opportunities for promoting engagement and inclusivity, but these programs have yet to receive in-depth assessments and analyses to guide future research and practice. This paper presents a case study examining a social and storytelling program for people with dementia run by a Canadian public library. It investigates two research questions: How can public library programs contribute to community-based dementia care? And what are public libraries’ strengths and challenges in running programs for people with dementia? The study involves participant observations of the program and semi-structured interviews with people with dementia, caregivers, and program facilitators (librarians and Alzheimer Society coordinators). Through thematic analysis of fieldnotes and transcripts, the study reveals how this inclusive platform supports engagement, fosters relationships, helps caregivers, and reaches broader communities. This research further uncovers the librarians’ diversified roles as demonstrated through their collaboration with professionals, preparation and research, and facilitation of the sessions. This paper advances librarianship research on enriching community-based dementia care, including furthering inclusivity and engagement and extending accessible library services. By analyzing library programming for the dementia community and assessing its strengths and challenges, the paper highlights librarians’ awareness of the community’s evolving needs and their collaboration with other professionals. It offers practical insights on useful resources and emerging best practices that will hopefully inspire other initiatives in which information professionals can help improve the well-being of vulnerable populations.


2009 ◽  
Vol 5 (5) ◽  
pp. e2-e3 ◽  
Author(s):  
L. Carlson ◽  
J. Abbey ◽  
E. Palk ◽  
S. Wise

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