scholarly journals Clinical Characteristics and Factors Associated With Disability and Impaired Quality of Life in Children With Juvenile Systemic Sclerosis: Results From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry

2018 ◽  
Vol 70 (12) ◽  
pp. 1806-1813 ◽  
Author(s):  
Brandi E. Stevens ◽  
Kathryn S. Torok ◽  
Suzanne C. Li ◽  
Nicole Hershey ◽  
Megan Curran ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Clinical Characteristics ◽  
Rheumatology Research ◽  
Factors Associated ◽  
Childhood Arthritis ◽  
Juvenile Systemic Sclerosis ◽  
Research Alliance ◽  
Impaired Quality

scholarly journals Digital ulcers in systemic sclerosis: their epidemiology, clinical characteristics, and associated clinical and economic burden

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Kathleen Morrisroe ◽  
Wendy Stevens ◽  
Joanne Sahhar ◽  
Gene-Siew Ngian ◽  
Nava Ferdowsi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Ambulatory Care ◽  
Clinical Characteristics ◽  
Hospital Admissions ◽  
Healthcare Services ◽  
Healthcare Resource Utilization ◽  
Digital Ulcers ◽  
Diffuse Disease

Abstract Background To determine the frequency and clinical characteristics of systemic sclerosis-related digital ulcers, and associated direct health care costs, quality of life, and survival. Methods Digital ulcers (DUs) were defined as an area with a visually discernible depth and a loss of continuity of epithelial coverage. DU severity was calculated based on the physician reported highest number of new DUs at clinical review (mild = 1–5 DUs, moderate 6–10 DUs, severe > 10 DUs). Healthcare use was captured through data linkage, wherein SSc clinical data captured prospectively in a dedicated clinical database were linked with health services databases to capture hospital admissions, emergency department (ED) presentations and ambulatory care (MBS) utilization and cost for the period 2008–2015. Healthcare cost determinants were estimated using logistic regression. Results Among 1085 SSc patients, 48.6% experienced a DU over a mean follow-up of 5.2 ± 2.5 years. Those who developed DUs were more likely to have diffuse disease subtype (34.9% vs 18.2%, p < 0.001), anti-Scl-70 antibody (18.9% vs 9.3%, p < 0.001), and a younger age at SSc onset (43.6 ± 13.9 vs 48.8 ± 14.0 years, p < 0.001) in addition to reduced health-related quality of life (HRQoL) measured by the SF-36 but without a significant impact on survival. SSc patients with a history of a DU utilized significantly more healthcare resources per annum than those without a DU, including hospitalizations, ED presentation, and ambulatory care services. Total healthcare services, excluding medications, were associated with an annual excess cost per DU patient of AUD$12,474 (8574-25,677), p < 0.001, driven by hospital admission and ED presentation costs. Conclusion DUs place a large burden on the patient and healthcare system through reduced HRQoL and increased healthcare resource utilization and associated cost.

scholarly journals Impaired quality of life in patients with systemic sclerosis compared to the general population and chronic dermatoses

2014 ◽  
Vol 7 (1) ◽  
pp. 594 ◽  
Author(s):  
Agnes Bretterklieber ◽  
Clemens Painsi ◽  
Alexander Avian ◽  
Nora Wutte ◽  
Elisabeth Aberer
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
General Population ◽  
Impaired Quality

scholarly journals Factors Associated with Impaired Quality of Life in Adult Patients Suffering from Ichthyosis

2014 ◽  
Vol 94 (3) ◽  
pp. 344-346 ◽  
Author(s):  
I Dreyfus ◽  
E Bourrat ◽  
A Maruani ◽  
D Bessis ◽  
C Chiavérini ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Adult Patients ◽  
Factors Associated ◽  
Impaired Quality

scholarly journals Risk factors associated with health-related quality of life in pediatric asthma

2021 ◽  
Vol 104 (2) ◽  
pp. 003685042110136
Author(s):  
Miaomiao Shi ◽  
Lei Liang ◽  
Yu Wang ◽  
Yangze Yu
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Low Income ◽  
Clinical Characteristics ◽  
Pediatric Asthma ◽  
Activity Limitation ◽  
Life Questionnaire ◽  
Related Factors ◽  
Factors Associated

To evaluate the quality of life (QOL) of children with asthma and analyze the related factors. A total of 360 children diagnosed with asthma were enrolled. We conducted the pediatric asthma quality of life questionnaire (PAQLQ). The differences in clinical characteristics between the two groups were compared. Clinical characteristics were compared between high and low QOL. More female was observed in low QOL group ( p = 0.013). Patients with higher income ( p = 0.003) were shown with higher QOL. Female patients presented significantly lower values for activity limitation ( p = 0.016) and emotional function ( p = 0.016) as compared to male patients. For patients who have low income, the QOL scores for dimensions of activity limitation was significantly worse than those have higher income ( p = 0.001). Univariable results showed that gender ( p = 0.013) and income ( p = 0.001) were factors associated with QOL in asthma children. However, multivariate analysis suggested that only gender (OR = 0.558, p = 0.008) and income (OR = 1.762, p < 0.001) were the independent factors that affected the QOL levels. In this study, we found that the QOL dimensions of pediatric asthma differed between various subpopulations. For patients with risk factors of poor QOL, target intervention is advised in order to increase QOL.

scholarly journals Sociodemographic and Clinical Characteristics Associated with Improvements in Quality of Life for Participants with Opioid Use Disorder

Healthcare ◽  
2022 ◽  
Vol 10 (1) ◽  
pp. 167
Author(s):  
Assaf Gottlieb ◽  
Christine Bakos-Block ◽  
James R. Langabeer ◽  
Tiffany Champagne-Langabeer
Keyword(s):  
Quality Of Life ◽  
Clinical Characteristics ◽  
Opioid Use Disorder ◽  
Opioid Use ◽  
Professional Counseling ◽  
Factors Associated ◽  
Multiple Dimensions ◽  
Average Improvement ◽  
Engagement System

Background: The Houston Emergency Opioid Engagement System was established to create an access pathway into long-term recovery for individuals with opioid use disorder. The program determines effectiveness across multiple dimensions, one of which is by measuring the participant’s reported quality of life (QoL) at the beginning of the program and at successive intervals. Methods: A visual analog scale was used to measure the change in QoL among participants after joining the program. We then identified sociodemographic and clinical characteristics associated with changes in QoL. Results: 71% of the participants (n = 494) experienced an increase in their QoL scores, with an average improvement of 15.8 ± 29 points out of a hundred. We identified 10 factors associated with a significant change in QoL. Participants who relapsed during treatment experienced minor increases in QoL, and participants who attended professional counseling experienced the largest increases in QoL compared with those who did not. Conclusions: Insight into significant factors associated with increases in QoL may inform programs on areas of focus. The inclusion of counseling and other services that address factors such as psychological distress were found to increase participants’ QoL and success in recovery.

scholarly journals Factors associated with quality of life in systemic sclerosis: a cross-sectional study

2019 ◽  
Vol 28 (12) ◽  
pp. 3347-3354
Author(s):  
Matylda Sierakowska ◽  
Halina Doroszkiewicz ◽  
Justyna Sierakowska ◽  
Marzena Olesińska ◽  
Agnieszka Grabowska-Jodkowska ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Factors Associated

OP0060 Impaired Quality of Life in Systemic Sclerosis and Patient Perception of the Disease: A Large International Survey

2015 ◽  
Vol 74 (Suppl 2) ◽  
pp. 90.2-90
Author(s):  
C. Frantz ◽  
J. Avouac ◽  
O. Distler ◽  
F. Amrouche ◽  
D. Godard ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Patient Perception ◽  
International Survey ◽  
Impaired Quality
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