scholarly journals Review of: Kaposy C. (2018) Choosing Down Syndrome

2019 ◽  
Vol 2 (2) ◽  
pp. 21-22
Author(s):  
Meghan Chevalier
Keyword(s):  
Down Syndrome ◽  
Prenatal Testing ◽  
Pragmatic Approach ◽  
Social Disability ◽  
Children With Down Syndrome ◽  
Non Invasive ◽  
Qualitative Evidence ◽  
The Social

With the advent of Non-Invasive Prenatal Testing, Chris Kaposy believes that more people should choose to parent children with Down Syndrome. Kaposy advocates for the Social Disability Model and recommends a normative pragmatic approach as standard. He makes use of both quantitative and qualitative evidence to support his position.

‘We would have missed out so much had we terminated’: What fathers of a child with Down syndrome think about current non-invasive prenatal testing for Down syndrome

2018 ◽  
Vol 23 (3) ◽  
pp. 290-309 ◽  
Author(s):  
Bethea How ◽  
Andy Smidt ◽  
Nathan J Wilson ◽  
Rebecca Barton ◽  
Chelsea Valentin
Keyword(s):  
Down Syndrome ◽  
Prenatal Testing ◽  
Accurate Diagnosis ◽  
Children With Down Syndrome ◽  
Information Giving ◽  
Non Invasive ◽  
Actual Reality ◽  
Balanced Information ◽  
Depth Interviews ◽  
Thematic Network Analysis

Non-invasive prenatal testing (NIPT) allows early, accurate diagnosis of Down syndrome that has resulted in increased terminations. This qualitative study involved in-depth interviews of fathers of children with Down syndrome about their views on the availability of NIPT. Thematic network analysis revealed that although fathers appreciated an early diagnosis with NIPT, they saw the test as being a predetermined pathway to termination. Fathers felt that expectation to terminate reflects negative societal attitudes towards those with Down syndrome and disability, fearing that NIPT may become a form of eugenics. Fathers retrospectively contrasted these attitudes with the actual reality of raising their children with Down syndrome, which they described as bringing joy to their lives. Findings suggest that although fathers valued NIPT as an information-giving tool that allowed autonomous parental choices about the pregnancy, they believe that it should be accompanied by balanced information about the reality of raising a child with Down syndrome.

scholarly journals What Do Parents of Children with Down Syndrome Think about Non-Invasive Prenatal Testing (NIPT)?

2016 ◽  
Vol 26 (3) ◽  
pp. 522-531 ◽  
Author(s):  
Rachèl V. van Schendel ◽  
Adriana Kater-Kuipers ◽  
Elsbeth H. van Vliet-Lachotzki ◽  
Wybo J. Dondorp ◽  
Martina C. Cornel ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Prenatal Testing ◽  
Children With Down Syndrome ◽  
Non Invasive

Parenting the Child With Down Syndrome: Understanding—but Going Beyond—the “Down Syndrome Advantage”

2020 ◽  
Author(s):  
Robert M. Hodapp ◽  
Ellen G. Casale
Keyword(s):  
Socioeconomic Status ◽  
Down Syndrome ◽  
Behavior Problems ◽  
Prenatal Testing ◽  
Children With Autism ◽  
Facial Features ◽  
Cultural Resources ◽  
Noninvasive Prenatal Testing ◽  
Birth Parents ◽  
Children With Down Syndrome

Compared to parents of children with other types of intellectual disabilities, parents of children with Down syndrome experience less stress and more rewards, although this “Down syndrome advantage” mostly occurs compared to parents of children with autism and before groups are equated. Behaviorally, children with Down syndrome display more sociable interactional styles and baby-faced facial features, along with fewer instances of severe behavior problems. Demographically, parents of children with (versus without) Down syndrome average 5 years older when giving birth; parents are more often well educated, married, of higher socioeconomic status, and they likely provide these children greater financial and cultural resources. In most industrialized societies, rates of Down syndrome seem steady, with easily available, noninvasive prenatal testing counteracted by increasing numbers of women giving birth at older ages. Parenting children with Down syndrome relates to characteristics of children, their parents, and society, all of which intersect in important, underexplored ways.

Non-invasive prenatal testing for Down syndrome

2014 ◽  
Vol 19 (1) ◽  
pp. 9-14 ◽  
Author(s):  
Philip Twiss ◽  
Melissa Hill ◽  
Rebecca Daley ◽  
Lyn S. Chitty
Keyword(s):  
Down Syndrome ◽  
Prenatal Testing ◽  
Non Invasive

scholarly journals Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents

2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Krystyna Popowska
Keyword(s):  
Down Syndrome ◽  
Intellectual Disability ◽  
Speech Communication ◽  
Special Schools ◽  
Children With Down Syndrome ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
The Social ◽  
Intellectual Potential ◽  
E Mail

Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy. 

Advantages and Disadvantages of Different Implementation Strategies of Non-Invasive Prenatal Testing in Down Syndrome Screening Programmes

2015 ◽  
Vol 18 (5) ◽  
pp. 260-271 ◽  
Author(s):  
Elke Mersy ◽  
Christine E.M. de Die-Smulders ◽  
Audrey B.C. Coumans ◽  
Luc J.M. Smits ◽  
Guido M.W.R. de Wert ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Implementation Strategies ◽  
Prenatal Testing ◽  
Advantages And Disadvantages ◽  
Non Invasive ◽  
Down Syndrome Screening

Budget impact of incorporating non-invasive prenatal testing in prenatal screening for Down syndrome in Turkey

2019 ◽  
Vol 8 (4) ◽  
pp. 402-407
Author(s):  
Zeynep Guldem Okem ◽  
Gokcen Orgul ◽  
Berna Tari Kasnakoglu ◽  
Mehmet Cakar ◽  
Mehmet Sinan Beksac
Keyword(s):  
Down Syndrome ◽  
Prenatal Screening ◽  
Budget Impact ◽  
Prenatal Testing ◽  
Non Invasive
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