Strategies for Measuring Quality of Life among Pediatric Solid-Organ Transplant Recipients

2014 ◽  
Vol 24 (3) ◽  
pp. 247-256 ◽  
Author(s):  
Rachel A. Annunziato ◽  
Meera Parbhakar ◽  
Jacqueline Helcer ◽  
Kathryn Kapoor ◽  
Kristen Henkel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Solid Organ ◽  
Transplant Recipients ◽  
Organ Transplant Recipients ◽  
Solid Organ Transplant Recipients

Baseline Quality of Life and Anxiety in Solid Organ Transplant Recipients: A Pilot Study

2006 ◽  
Vol 32 (12) ◽  
pp. 1480-1485 ◽  
Author(s):  
FIONA O'REILLY ◽  
CARMEN TRAYWICK ◽  
MICHELLE L. PENNIE ◽  
JOVONNE K. FOSTER ◽  
SUEPHY C. CHEN
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Solid Organ ◽  
Transplant Recipients ◽  
Organ Transplant Recipients ◽  
Solid Organ Transplant Recipients

Baseline Quality of Life and Anxiety in Solid Organ Transplant Recipients

2006 ◽  
Vol 32 (12) ◽  
pp. 1480-1485 ◽  
Author(s):  
FIONA OʼREILLY ◽  
CARMEN TRAYWICK ◽  
MICHELLE L. PENNIE ◽  
JOVONNE K. FOSTER ◽  
SUEPHY C. CHEN
Keyword(s):  
Quality Of Life ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Solid Organ ◽  
Transplant Recipients ◽  
Organ Transplant Recipients ◽  
Solid Organ Transplant Recipients

A Canadian Survey on Adverse Symptoms Experienced by Solid Organ Transplant Recipients

2020 ◽  
Vol 30 (3) ◽  
pp. 254-264
Author(s):  
Shirin Aladwan ◽  
Jennifer J. Harrison ◽  
David F. Blackburn ◽  
Jeff Taylor ◽  
Tom D. Blydt-Hansen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medication Adherence ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Solid Organ ◽  
Transplant Recipients ◽  
Organ Transplant Recipients ◽  
Solid Organ Transplant Recipients ◽  
Sleep Difficulties

Introduction: Adverse symptoms experienced by solid organ transplant recipients remain largely unexplored despite their purported frequency. Objective: To characterize patient perspectives on adverse symptoms, identifying the most problematic symptoms and the perceived cause and treatability, and to evaluate their impact on quality of life (QoL) and medication adherence. Methods: An electronic survey was distributed to members of the Canadian Transplant Association, to characterize perceptions on symptom experience (Modified Transplant Symptom Occurrence and Distress Scale), and QoL (Short Form-12), medication adherence (Basel Assessment of Adherence to Immunosuppressive Medications Scale), demographics, and clinical situation. Results: The questionnaire was distributed to 249 solid organ transplant recipients and achieved a 51% response rate (N = 127). Respondents reported a mean of 25 (standard deviation 10) adverse symptoms each. In women, the most prevalent and distressing symptoms were tiredness, lack of energy, sleep difficulties, difficulty concentrating or memory problems, diarrhea, joint pain, and depression. In men, they were tiredness, flatulence, lack of energy, sleep difficulties, and erectile problems. With the exception of flatulence, these symptoms were more often perceived to be caused by medical conditions rather than by immunosuppressants or other medications. Quality of life was similar to the general public, with mean physical and mental component scores of 47.4 (9.9) and 52.1 (8.2), respectively (relative to a US average of 50 [10]). However, QoL scores inversely correlated to the number of symptoms reported and were higher in patients who perceived all symptoms to be treatable. Conclusion: Adverse symptoms may impact patient well-being. Perceived cause and treatability should be further explored.

scholarly journals Behavioural and pharmaceutical interventions for the prevention of skin cancers in solid organ transplant recipients: a systematic review of randomised controlled trials

BMJ Open ◽  
2020 ◽  
Vol 10 (5) ◽  
pp. e029265 ◽  
Author(s):  
Laura J James ◽  
Valeria Saglimbene ◽  
Germaine Wong ◽  
Allison Tong ◽  
Laurence Don Wai Luu ◽  
...  
Keyword(s):  
Skin Cancer ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Skin Cancer Prevention ◽  
Controlled Trials ◽  
Solid Organ ◽  
Transplant Recipients ◽  
Organ Transplant Recipients ◽  
Solid Organ Transplant Recipients

ObjectivesSolid organ transplant recipients are at increased risk of skin cancer, affecting more than 50% of recipients. We aimed to determine the effectiveness of interventions for behavioural change for sun protection or skin cancer prevention in solid organ transplant recipients.DesignSystematic review.Data sourcesWe searched MEDLINE, Embase, the Cochrane Central Register of Controlled Trials (CENTRAL) and CINAHL from inception to November 2019.Eligibility criteriaWe included randomised controlled trials that evaluated the effect of behavioural or pharmaceutical interventions on behavioural change or skin cancer prevention in solid organ transplant recipients.Data extraction and synthesisRisks of bias and evidence certainty were assessed using Cochrane and the Grading of Recommendations Assessment Development and Evaluation framework.ResultsTwenty trials (n=2295 participants) were included. It is uncertain whether behavioural interventions improve sun protection behaviour (n=3, n=414, standardised mean difference (SMD) 0.89, 95% CI −0.84 to 2.62, I2=98%) and knowledge (n=4, n=489, SMD 0.50, 95% CI 0.12 to 0.87, I2= 76%) as the quality of evidence is very low. We are uncertain of the effects of mammalian target of rapamaycin inhibitors on the incidence of non-melanocytic skin cancer (n=5, n=1080, relative risk 0.46, 95% CI 0.28 to 0.75, I2 =72%) as the quality of evidence is very low.ConclusionsBehavioural and pharmaceutical preventive interventions may improve sun protective behaviour and knowledge, and reduce the incidence of non-melanocytic skin cancer, but the overall quality of the evidence is very low and insufficient to guide decision-making and clinical practice.PROSPERO registration numberCRD42017063962.

Health-related quality of life in parents of pediatric solid organ transplant recipients in Japan

2015 ◽  
Vol 19 (3) ◽  
pp. 332-341 ◽  
Author(s):  
Ryota Kikuchi ◽  
Minoru Ono ◽  
Koichiro Kinugawa ◽  
Miyoko Endo ◽  
Koichi Mizuta ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Solid Organ ◽  
Health Related Quality ◽  
Transplant Recipients ◽  
Related Quality ◽  
Health Related ◽  
Solid Organ Transplant Recipients

scholarly journals Health-Related Quality of Life in Solid Organ Transplant Recipients With vs Without Keratinocyte Carcinoma

2020 ◽  
Vol 156 (4) ◽  
pp. 464 ◽  
Author(s):  
Melvin Frie ◽  
Coby Annema ◽  
Emily S. X. Knijff ◽  
Stephan J. L. Bakker ◽  
Adelita V. Ranchor ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Organ Transplant ◽  
Solid Organ Transplant ◽  
Solid Organ ◽  
Health Related Quality ◽  
Transplant Recipients ◽  
Related Quality ◽  
Health Related ◽  
Solid Organ Transplant Recipients
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