scholarly journals Health related quality of life in children with congenital heart disease that undergo cardiac surgery during their first year of life

2020 ◽  
Vol 118 (3) ◽  
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Cardiac Surgery ◽  
Congenital Heart ◽  
First Year ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
First Year Of Life

scholarly journals Health-related quality of life in children with surgery for CHD: a study from the Swedish National Registry for Congenital Heart Disease

2016 ◽  
Vol 27 (2) ◽  
pp. 333-343 ◽  
Author(s):  
Birgitta Svensson ◽  
Ewa Idvall ◽  
Fredrik Nilsson ◽  
Petru Liuba
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Cardiac Surgery ◽  
Congenital Heart ◽  
National Registry ◽  
Univentricular Heart ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

AbstractBackgroundAs survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery.MethodsA retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9–17 years; 39% girls). The majority (n=319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100 highest) and given as medians and 10–90th percentiles.ResultsThe overall total score was 95 (88–100). Children with a biventricular heart who had undergone three or more surgeries (n=31; 9%) had the lowest total score of 81 (61–97; p<0.001). Children with two or more surgeries and those with univentricular heart were classified in NYHA II more frequently than children with one or no cardiac surgery (p=0.005 and <0.001, respectively). Children with three or more surgeries and those with univentricular heart needed more help at school (p<0.001). Compared with children with other chronic diseases, children with CHD had a high total score except for children with three or more surgeries who had comparable total scores with children with other chronic diseases.ConclusionChildren with three or more cardiac surgeries and those with a univentricular heart appear to have lower health-related quality of life, cognitive ability, and NYHA classification.

scholarly journals Health-Related Quality of Life and Congenital Heart Disease in Australia

2012 ◽  
Vol 21 ◽  
pp. S293
Author(s):  
K. Eagleson ◽  
R. Justo ◽  
F. Boyle ◽  
R. Ware ◽  
S. Johnson
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Valuing Health Status in the First Year of Life: The Infant Health-Related Quality of Life Instrument

2019 ◽  
Vol 22 (6) ◽  
pp. 721-727 ◽  
Author(s):  
Ruslan Jabrayilov ◽  
Karin M. Vermeulen ◽  
Patrick Detzel ◽  
Livia Dainelli ◽  
Antoinette D.I. van Asselt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Infant Health ◽  
First Year ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
First Year Of Life

Asthma-like symptoms in the first year of life and health-related quality of life at age 12 months: the Generation R study

2011 ◽  
Vol 21 (3) ◽  
pp. 545-554 ◽  
Author(s):  
Ashna D. Mohangoo ◽  
Harry J. de Koning ◽  
Johan C. de Jongste ◽  
Jeanne M. Landgraf ◽  
Johannes C. van der Wouden ◽  
...  
Keyword(s):  
Quality Of Life ◽  
First Year ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
First Year Of Life

Health-Related Quality of Life Outcomes in Children and Adolescents with Congenital Heart Disease

2014 ◽  
Vol 164 (4) ◽  
pp. 781-788.e1 ◽  
Author(s):  
Katelyn Mellion ◽  
Karen Uzark ◽  
Amy Cassedy ◽  
Dennis Drotar ◽  
Gil Wernovsky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Children And Adolescents ◽  
Congenital Heart ◽  
Health Related Quality ◽  
Life Outcomes ◽  
Related Quality ◽  
Health Related
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