What are the unmet supportive care needs among Hong Kong Chinese women with advanced breast cancer? : do they change over time?

2012 ◽  
Author(s):  
Ho-yee, Angel Au
Keyword(s):  
Breast Cancer ◽  
Hong Kong ◽  
Supportive Care ◽  
Advanced Breast Cancer ◽  
Chinese Women ◽  
Supportive Care Needs ◽  
Hong Kong Chinese ◽  
Care Needs ◽  
Change Over Time ◽  
Over Time

Supportive care needs in Hong Kong Chinese women confronting advanced breast cancer

2012 ◽  
Vol 22 (5) ◽  
pp. 1144-1151 ◽  
Author(s):  
Angel Au ◽  
Wendy Lam ◽  
Janice Tsang ◽  
Tsz-kok Yau ◽  
Inda Soong ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Hong Kong ◽  
Supportive Care ◽  
Advanced Breast Cancer ◽  
Chinese Women ◽  
Advanced Breast ◽  
Supportive Care Needs ◽  
Hong Kong Chinese ◽  
Care Needs

scholarly journals Multicentre prospective cohort study of unmet supportive care needs among patients with breast cancer throughout their cancer treatment trajectory in Penang: a PenBCNeeds Study protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e044746
Author(s):  
Noorsuzana Mohd Shariff ◽  
Nizuwan Azman ◽  
Rohayu Hami ◽  
Noor Mastura Mohd Mujar ◽  
Mohammad Farris Iman Leong Bin Abdullah
Keyword(s):  
Breast Cancer ◽  
Cohort Study ◽  
Supportive Care ◽  
Prospective Cohort Study ◽  
Prospective Cohort ◽  
Ethics Committee ◽  
Supportive Care Needs ◽  
Secondary Outcome ◽  
Care Needs ◽  
Over Time

IntroductionProper assessment of unmet supportive care needs of patients with breast cancer and its influencing factors at different treatment intervals will improve the rehabilitation of patients with breast cancer. Therefore, this study aims to determine the prevalence of unmet supportive care needs, changes of needs over time and associated factors during the treatment period.Methods and analysisThis multicentre, prospective cohort study will be conducted in three governmental hospitals and one tertiary cancer institute in Penang, Malaysia. Adult women diagnosed with primary or recurrent tumour, node, metastases stage I–IV breast cancer based on pathological biopsy will be eligible for this study. At least 281 samples are required for this study. Participants will undergo follow-up at three time intervals: T1 at breast cancer diagnosis; T2 at 3 months after diagnosis and T3 at 6 months after diagnosis. Patients will complete a set of questionnaires at each time. The primary outcome of this study includes the changes in supportive care needs over three time points, followed by the secondary outcome examining patients’ characteristics, coping behaviours and positive psychological components as they affect changes in unmet supportive care needs over time.Ethics and disseminationThe study has received ethics approval from the Medical Research and Ethics Committee, Ministry of Health Malaysia (NMRR-19-268-45809 IIR) and the Human Research Ethics Committee of Universiti Sains Malaysia (USM/JEPeM/17100443). The results of the prospective study will be submitted for publication in a peer-reviewed journal.

scholarly journals Healthcare Providers’ Perspectives of the Supportive Care Needs of Women with Advanced Breast Cancer in Ghana

2021 ◽  
Author(s):  
Cynthia Pomaa Akuoko ◽  
Shirley Chambers ◽  
Patsy Yates
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Advanced Breast Cancer ◽  
Healthcare Providers ◽  
Advanced Breast ◽  
Supportive Care Needs ◽  
Multidisciplinary Teams ◽  
Care Needs ◽  
Key Informants ◽  
Care Services

Abstract PurposeThe study sought to understand the supportive care needs of women with advanced breast cancer (ABC) from the perspectives of healthcare professionals (HCPs) and key informants of charitable/non-governmental organisations (NGOs), that provide supportive care services to women with advanced breast cancer, in Ghana.MethodsA qualitative descriptive approach was employed via one-to-one semi-structured interviews with 13 HCPs and key informants of charitable/NGOs in Ghana that provide supportive care services to women with advanced breast cancer. The study was underpinned by Bradshaw’s taxonomy of social needs and Fitch’s supportive care framework. The data were analysed using a deductive content analysis approach.ResultsHealthcare providers and key informants perceived that women with ABC in Ghana have numerous and complex supportive care needs in key areas that align with Fitch’s supportive care framework, including informational, psychological, emotional, physical, practical, social, sexuality and spiritual needs.ConclusionParticipants perceived that women who have ABC in Ghana require ongoing information about their condition, treatments and related effects, as well as spiritual support and guidance particularly due to the fatalistic beliefs they often associate with the condition. Tailored supportive care interventions and services, which address the unique sociocultural circumstances for this cohort, are required. Additional research is needed to explore how multidisciplinary teams can work collaboratively to provide comprehensive support to women in addressing their needs.

scholarly journals Most prevalent unmet supportive care needs in Greek ambulatory advanced breast cancer female patients receiving chemotherapy

2018 ◽  
Vol 29 ◽  
pp. viii690-viii691 ◽  
Author(s):  
A. Psychogyiou ◽  
S. Katsaragakis ◽  
C. Lemonidou ◽  
D. Protogiros ◽  
E. Patiraki
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Advanced Breast Cancer ◽  
Advanced Breast ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Female Patients

A national survey of support and information needs of Australian women living with advanced breast cancer.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 9124-9124
Author(s):  
Linda R. Mileshkin ◽  
Lisa Sheeran ◽  
Kate Robins-Browne ◽  
Michelle Marven ◽  
Karla Gough ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Advanced Breast Cancer ◽  
Information Needs ◽  
Unmet Needs ◽  
Advanced Breast ◽  
Supportive Care Needs ◽  
Medical Oncologist ◽  
Care Needs ◽  
Breast Care Nurse

9124 Background: Improved treatments mean women with advanced breast cancer (ABC) are living longer, sometimes for many years. As a result, these women may experience chronic needs that are different from those with early breast cancer. We aimed to assess the support and information needs of women living with ABC. Methods: A national postal survey was sent to 2,345 women with ABC registered as members of the consumer organizations BCNA and/or BreaCan. Women were asked about their disease, treatment, experiences of care, and to complete the Supportive Care Needs Survey. Results: The response rate was 34% (792 valid responses). Mean age was 57 (range 25-99) with 21% living alone and 27% working. 18% reported living with ABC for >7 years. 656 (85%) were having current treatment: chemotherapy (43%), hormonal therapy (46%), bisphosphonates (49%), and/or trastuzumab (Herceptin) (19%) respectively. 49% of women reported having access to a Breast Care Nurse (BCN) since diagnosis of ABC but only 3% cited a BCN or cancer nurse as their main contact. The majority (76%) cited their medical oncologist as their main contact, 8% cited their family doctor. Women wanted information about: treatment options (84.2%), new treatments (79.2%), symptoms/side effects (78.9%), clinical trials (60.8%), managing pain (57.2%) and financial assistance (38%). Women ≤ 65 had significantly higher levels of unmet needs than those >65 for the 7 items below, including all items from the sexual domain. Conclusions: Women with ABC have many unmet needs with younger women particularly needing more support with sexual needs and anxiety. Women are heavily reliant on their medical oncologist, who may not be equipped or best placed to meet these needs. Models of care need to be developed to address the unmet supportive care needs of women living with ABC. [Table: see text]

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