scholarly journals Integrated health and social care for people with dementia and their informal caregivers, research results

2018 ◽  
Vol 18 (s2) ◽  
pp. 183
Author(s):  
Marjolein Scholten ◽  
Marieke Perry ◽  
Marjolein Van der Marck ◽  
Rose-Marie Droës ◽  
Hanny Groenewoud
Keyword(s):  
Social Care ◽  
Informal Caregivers ◽  
Research Results ◽  
People With Dementia ◽  
Health And Social Care ◽  
Integrated Health

scholarly journals A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability (Preprint)

2017 ◽  
Author(s):  
Paraskevi Zafeiridi ◽  
Kevin Paulson ◽  
Rosie Dunn ◽  
Emma Wolverson ◽  
Caroline White ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Social Care ◽  
Informal Caregivers ◽  
Dropout Rate ◽  
Ease Of Use ◽  
Perceived Usefulness ◽  
Web Based ◽  
People With Dementia ◽  
Health And Social Care ◽  
Administration Time

BACKGROUND The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) reduce caregiver burden, (3) reduce the financial costs for care, and (4) reduce administration time for health and social care professionals. OBJECTIVE The objective of this study was to evaluate the usability and usefulness of CAREGIVERSPRO-MMD platform for PwD or mild cognitive impairment (MCI), informal caregivers, and health and social care professionals with respect to a wider strategy followed by the project to enhance the user-centered approach. A secondary aim of the study was to collect recommendations to improve the platform before the future pilot study. METHODS A mixed methods design was employed for recruiting PwD or MCI (N=24), informal caregivers (N=24), and professionals (N=10). Participants were asked to rate their satisfaction, the perceived usefulness, and ease of use of each function of the platform. Qualitative questions about the improvement of the platform were asked when participants provided low scores for a function. Testing occurred at baseline and 1 week after participants used the platform. The dropout rate from baseline to the follow-up was approximately 10% (6/58). RESULTS After 1 week of platform use, the system was useful for 90% (20.75/23) of the caregivers and for 89% (5.36/6) of the professionals. When users responded to more than 1 question per platform function, the mean of satisfied users per function was calculated. These user groups also provided positive evaluations for the ease of use (caregivers: 82%, 18.75/23; professionals: 97%, 5.82/6) and their satisfaction with the platform (caregivers: 79%, 18.08/23; professionals: 73%, 4.36/6). Ratings from PwD were lower than the other groups for usefulness (57%, 13/23), ease of use (41%, 9.4/23), and overall satisfaction (47%, 11/23) with the platform (P<.05). Qualitative comments related to both improvements for functionality and the platform interface. CONCLUSIONS Although caregivers and professionals were overall satisfied with the platform, further adaptations were recommended by PwD. This reiterates the importance of the involvement of end users in the development of Web-based interventions. Recommendations from users in this paper apply for the interface and functionality of a wider range of Web-based support interventions.

scholarly journals The Return Home Program: integrated health and social care for post-stroke patients

2016 ◽  
Vol 16 (6) ◽  
pp. 219
Author(s):  
Aina Plaza ◽  
Marta Fabà ◽  
Marco Inzitari ◽  
Mercè Salvat ◽  
Patricio Hernández ◽  
...  
Keyword(s):  
Social Care ◽  
Stroke Patients ◽  
Home Program ◽  
Post Stroke ◽  
Health And Social Care ◽  
Integrated Health ◽  
Return Home

scholarly journals 211 - Changes to post-diagnostic dementia support in England and Wales during the COVID-19 pandemic

2021 ◽  
Vol 33 (S1) ◽  
pp. 13-13
Author(s):  
Alison Wheatley ◽  
Marie Poole ◽  
Louise Robinson
Keyword(s):  
Social Care ◽  
Third Sector ◽  
Full Time ◽  
England And Wales ◽  
Team Meetings ◽  
Use Of Technology ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Impact ◽  
Diagnostic Support

Background:The COVID-19 pandemic precipitated widespread change across health and social care in England and Wales. A series of lockdowns and UK Government guidance designed to reduce the spread of COVID-19 which emphasised social distancing and increased use of personal protective equipment led to changes such as increased use of remote consultation technologies and the closure of services deemed non-essential. This included many services for people with dementia and their families, such as day centres and dementia cafes.Objective:To explore the changes made to services during the pandemic and the impact of these changes on the delivery of good post-diagnostic dementia support.Method:Professionals who had previously been recruited to the ongoing PriDem qualitative study were approached for follow up interview. Eighteen interviews with a total of 21 professionals working in health, social care and the third sector were conducted using telephone or video conferencing.Interviews were audio recorded, transcribed and checked prior to thematic analysis.Results:Key themes emerging from preliminary analysis of the data include: uncertainty about the future and the need to adapt quickly to shifting guidance; changing job roles and ways of working; the emotional and physical impact of the pandemic on staff working with people with dementia and their families; and the impact of changes made (e.g. increased PPE, remote working) on the ability to deliver post-diagnostic support. However, there were also some unintended positive outcomes of the changes. These included the ability to include family members living at a distance in remote consultations, allowing for more robust history-taking, as well as the uptake of technology to facilitate cross-sector and multidisciplinary working between professionals.Conclusion:Delivering post-diagnostic dementia support during COVID-19 was challenging and forced dementia services to make adaptations. Participants expected that some of these changes would be incorporated into post-pandemic work, for example increased use of technology for multidisciplinary team meetings or blended approaches to patient-facing services involving both virtual and face to face work as appropriate. However, most participants agreed that it was not appropriate nor desirable to provide fully remote post-diagnostic support on a full time basis.

Supporting people with dementia during the COVID-19 pandemic

2021 ◽  
Vol 32 (2) ◽  
pp. 65-68
Author(s):  
Linda Nazarko
Keyword(s):  
Primary Care Practice ◽  
Social Care ◽  
Practice Nurse ◽  
Informal Support ◽  
Care Practice ◽  
Physical And Mental Health ◽  
Practice Nurses ◽  
People With Dementia ◽  
Care Workers ◽  
Health And Social Care

People with dementia have experienced great disruption to their lives due to the pandemic. Linda Nazarko highlights the way individuals have been affected and how the practice nurse can support them People with dementia and their caregivers have been severely affected by the COVID-19 pandemic. Isolation, a reduction in formal and informal support, and disruption to routine have contributed to feelings of loneliness and anxiety in people with dementia and their caregivers. The pandemic has led to staff shortages in health and social care, changes of care workers and a reduction in the level of support provided. These changes have affected the physical and mental health of people with dementia and increased their reliance on primary care. Practice nurses have a key role to play in supporting affected individuals.

Providing Integrated Health and Social Care for Older Persons in Italy

2019 ◽  
pp. 371-414
Author(s):  
Giorgia Nesti ◽  
Stefano Campostrini ◽  
Stefano Garbin ◽  
Paola Piva ◽  
Patrizia Di Santo ◽  
...  
Keyword(s):  
Older Persons ◽  
Social Care ◽  
Health And Social Care ◽  
Integrated Health

scholarly journals Towards Trust and Governance in Integrated Health and Social Care Platforms

2017 ◽  
pp. 219-231 ◽  
Author(s):  
William Buchanan ◽  
Christoph Thuemmler ◽  
Grzegorz Spyra ◽  
Adrian Smales ◽  
Biraj Prajapati
Keyword(s):  
Social Care ◽  
Health And Social Care ◽  
Integrated Health
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