scholarly journals Development and implementation of an integrated chronic disease model in South Africa: lessons in the management of change through improving the quality of clinical practice

2015 ◽  
Vol 15 (4) ◽  
Author(s):  
Ozayr Mahomed ◽  
Shaidah Asmall
2015 ◽  
pp. 1227-1241
Author(s):  
Leonor Teixeira ◽  
Vasco Saavedra ◽  
Carlos Ferreira ◽  
Beatriz Sousa Santos

This chapter outlines a study that examines the role of Information and Communication Technologies (ICTs) in management of a rare and chronic disease, hemophilia. Evidence in literature shows how the adoption of ICTs can improve the management of chronic conditions. Furthermore, these tools may also give response to rare diseases' needs, while greatly improving the quality of life of those patients. A Web-based application that was developed to facilitate communication between Healthcare Professionals (HCPs) and patients in a specific Hemophilia Treatment Center (HTC), to improve the utility and quality of clinical data and treatment information, as well as to help the management of resources involved in a specific rare chronic disease, represents a practical case presented in this chapter. This technological solution allows the management of inherited bleeding disorders, integrating, diffusing, and archiving large sets of data relating to the clinical practice of hemophilia care, more specifically the clinical practice at the Hematology Service of Coimbra Hospital Center.


2018 ◽  
Vol 70 (4) ◽  
pp. 576-582 ◽  
Author(s):  
Josiane M. da Silva ◽  
Jéssica L. M. Conegundes ◽  
Nícolas C. C. Pinto ◽  
Renata F. Mendes ◽  
Maria Christina M. N. Castañon ◽  
...  

2005 ◽  
Vol 3 (6) ◽  
pp. 772 ◽  

Cancer- and treatment-related anemia has received increasing attention, particularly because relationships between anemia and quality of life (QOL) or treatment outcomes are under investigation. This guideline recognizes the multiple etiologies of cancer- and treatment-related anemia, but specifically addresses the treatment of anemia caused by the myelosuppressive effects of chemotherapy and the anemia associated with chronic disease. It provides guidelines for the use of erythropoietic agents in patients with cancer who are receiving chemotherapy. For the most recent version of the guidelines, please visit NCCN.org


2005 ◽  
Vol 69 (9) ◽  
pp. 1058-1063 ◽  
Author(s):  
Barbara F. Gooch ◽  
Dolores M. Malvitz ◽  
Susan O. Griffin ◽  
William R. Maas

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