scholarly journals Processing of Novel Electronic Health Data to Support Public Health Surveillance

2013 ◽  
Vol 5 (1) ◽  
Author(s):  
Peter Hicks ◽  
Henry Rolka ◽  
Mark Wooster ◽  
Lynette Brammer
Keyword(s):  
Public Health ◽  
Public Health Surveillance ◽  
Health Data ◽  
Health Surveillance ◽  
Electronic Health

Disaggregation of Latina/o Child and Adult Health Data: A Systematic Review of Public Health Surveillance Surveys in the United States

2021 ◽  
Vol 40 (1) ◽  
pp. 61-79
Author(s):  
Carmela Alcántara ◽  
Shakira F. Suglia ◽  
Irene Perez Ibarra ◽  
A. Louise Falzon ◽  
Elliot McCullough ◽  
...  
Keyword(s):  
Public Health ◽  
United States ◽  
Systematic Review ◽  
Public Health Surveillance ◽  
The United States ◽  
Health Data ◽  
Health Surveillance ◽  
Adult Health

scholarly journals Transforming Public Health Surveillance Through Open Public Health Information

2018 ◽  
Vol 10 (1) ◽  
Author(s):  
Janelle Kibler ◽  
Scott McNabb ◽  
James Lavery ◽  
Ziad Memish ◽  
Affan Shaikh ◽  
...  
Keyword(s):  
Public Health ◽  
Health Information ◽  
Public Health Surveillance ◽  
Public Health Practice ◽  
Health Data ◽  
Health Surveillance ◽  
Health Practice ◽  
Public Health Data ◽  
Health Authorities ◽  
Public Health Information

ObjectiveThe goal of this editorial is to shed light on the lack of transparency that exists in the sharing of Public Health data and to reverse this presumption in favour of open public health information properly vetted and openly accessible. Open public health information is a critical step to revitalize public health practice and is a human right.IntroductionPublic health practice that prevents, detects, and responds to communicable and noncommunicable disease threats is hindered by poor access to public health data and information. This includes timely sharing of case-based information, respecting patent and publication rights, and the ethical sharing of specimens. Disagreements about information shared and under what circumstances plus who has right to the data, clinical specimens, and their derivative products impede research and countermeasures. Delayed or inaction by public health authorities undermines trust and exacerbates the crisis. Evident in 2014 by the delayed Public Health Emergency of International Concern declaration of the Ebola virus outbreak in West Africa by the World Health Organization, the governing presumption is that access to public health information should be restricted, constrained, or even hoarded; this is a failed approach. This lack of transparency prevents information availability when and where it is needed and obstructs public health efforts to efficiently and ethically prevent, detect, and respond to emerging threats. A better way forward is to reverse this presumption in favour of open public health information properly vetted and openly accessible. Open public health information is a critical step to revitalize public health practice and is a human right.While there is limited global consensus among scientists and public health practitioners on best practices to guide national health authorities, researchers, NGOs, and industry as they navigate the ethical, political, technical, and economic challenges associated with the sharing of essential public health information (e.g., pathogen isolates, clinical specimens, and patient-related data), grounding this discussion on the guiding principles of open public health information can help navigate the complex privacy, security, communication, and access needs, and ensure that collaboration and sharing occur in a manner that is ethically and socially just, efficient, and equitable. Built on existing governance frameworks such as the International Health Regulations (IHRs) and the Pandemic Influenza Preparedness Framework (PIP), open public health can transform public health surveillance, allowing for the rapid sharing of data and products during outbreaks for mutual benefit and enhanced global health security.MethodsThis abstract represents a larger editorial style manuscript, thus no methods were developed in the abstract.ResultsThis editorial style manuscript aims to reverse the presumption that public health data is damaging to one in favour of open public health information properly vetted and openly accessible.ConclusionsSimilar to other open movements (i.e., open data, open government, open development, and open science) that seek to address the world’s greatest challenges through transparency, collaboration, reuse of and free access to ideas, open public health offers an ideal solution to overcome the challenges in the 21st century.

RiskScape: A Data Visualization and Aggregation Platform for Public Health Surveillance Using Routine Electronic Health Record Data

2020 ◽  
pp. e1-e8
Author(s):  
Noelle M. Cocoros ◽  
Chaim Kirby ◽  
Bob Zambarano ◽  
Aileen Ochoa ◽  
Karen Eberhardt ◽  
...  
Keyword(s):  
Public Health ◽  
Electronic Health Record ◽  
Public Health Surveillance ◽  
Data Communication ◽  
Automated Analysis ◽  
Health Surveillance ◽  
Health Record ◽  
Clinical Practices ◽  
Electronic Health Record Data ◽  
Electronic Health

Automated analysis of electronic health record (EHR) data is a complementary tool for public health surveillance. Analyzing and presenting these data, however, demands new methods of data communication optimized to the detail, flexibility, and timeliness of EHR data. RiskScape is an open-source, interactive, Web-based, user-friendly data aggregation and visualization platform for public health surveillance using EHR data. RiskScape displays near-real-time surveillance data and enables clinical practices and health departments to review, analyze, map, and trend aggregate data on chronic conditions and infectious diseases. Data presentations include heat maps of prevalence by zip code, time series with statistics for trends, and care cascades for conditions such as HIV and HCV. The platform’s flexibility enables it to be modified to incorporate new conditions quickly—such as COVID-19. The Massachusetts Department of Public Health (MDPH) uses RiskScape to monitor conditions of interest using data that are updated monthly from clinical practice groups that cover approximately 20% of the state population. RiskScape serves an essential role in demonstrating need and burden for MDPH’s applications for funding, particularly through the identification of inequitably burdened populations. (Am J Public Health. Published online ahead of print December 22, 2020: e1–e8. https://doi.org/10.2105/AJPH.2020.305963 )

Public Health Data Collection and Implementation of the Revised Common Rule

2019 ◽  
Vol 47 (2) ◽  
pp. 232-237 ◽  
Author(s):  
Lisa M. Lee
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Historical Development ◽  
Public Health Surveillance ◽  
Health Data ◽  
Health Surveillance ◽  
Common Rule ◽  
The Public ◽  
Public Health Data ◽  
First Time

For the first time, the revised Common Rule specifies that public health surveillance activities are not research. This article reviews the historical development of the public health surveillance exclusion and implications for other foundational public health practices.

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