scholarly journals Debating “Good” Care: The Challenges of Dementia Care in Shanghai, China

2020 ◽  
Vol 41 (1) ◽  
pp. 52-68
Author(s):  
Yan Zhang
Keyword(s):  
Dementia Care ◽  
Specific Form ◽  
Good Care ◽  
Public Concern ◽  
Care Model ◽  
Confucian Values ◽  
Humanitarian Ethics ◽  
State Actors ◽  
Relational Care

The increasing number of dementia sufferers in China has transformed dementia care from a private issue to a public concern. Nationwide dementia-friendly campaigns have intensified debates about what constitutes “good” care. In response to these campaigns, the Shanghai government proposes a systematic care model, which stresses the need for dementia-care units and professionalization. Non-state actors, however, focus on the relational care model, which integrates western humanitarian ethics with Confucian values. This article employs cultural and structural frameworks to examine why and how a specific form of “good” care is constructed in China. The debates about the establishment of dementia-care units and the professionalization of eldercare enable us to understand how politics shape certain forms of care.

scholarly journals Primary dementia care based on the individual needs of the patient: study protocol of the cluster randomized controlled trial, DemStepCare

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Isabella Bablok ◽  
◽  
Harald Binder ◽  
Dominikus Stelzer ◽  
Klaus Kaier ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Controlled Trial ◽  
Dementia Care ◽  
Cluster Randomized Controlled Trial ◽  
Control Group ◽  
Care Model ◽  
Randomized Controlled ◽  
Individual Needs ◽  
Cluster Randomized ◽  
The Individual

Abstract Background Most people with dementia (PwD) are cared for at home, with general practitioners (GPs) playing a key part in the treatment. However, primary dementia care suffers from a number of shortcomings: Often, diagnoses are made too late and therapies by GPs do not follow the guidelines. In cases of acute crises, PwD are too often admitted to hospital with adverse effects on the further course of the disease. The aim of this study is to implement and evaluate a new GP-based, complex dementia care model, DemStepCare. DemStepCare aims to ensure demand-oriented, stepped care for PwD and their caregivers. Methods/design In a cluster randomized controlled trial, the care of PwD receiving a complex intervention, where the GP is supported by a multi-professional team, is compared to (slightly expanded) usual care. GPs are clustered by GP practice, with 120 GP practices participating in total. GP practices are randomized to an intervention or a control group. 800 PwD are to be included per group. Recruitment takes place in Rhineland-Palatinate, Germany. In addition, a second control group with at least 800 PwD will be formed using aggregated routine data from German health insurance companies. The intervention comprises the training of GPs, case management including repeated risk assessment of the patients’ care situation, the demand-oriented service of an outpatient clinic, an electronic case record, external medication analyses and a link to regional support services. The primary aims of the intervention are to positively influence the quality of life for PwD, to reduce the caregivers’ burden, and to reduce the days spent in hospital. Secondary endpoints address medication adequacy and GPs’ attitudes and sensitivity towards dementia, among others. Discussion The GP-based dementia care model DemStepCare is intended to combine a number of promising interventions to provide a complex, stepped intervention that follows the individual needs of PwD and their caregivers. Its effectiveness and feasibility will be assessed in a formative and a summative evaluation. Trial registration German Register of Clinical Trials (Deutsches Register Klinischer Studien, DRKS), DRKS00023560. Registered 13 November 2020 - Retrospectively registered. HTML&TRIAL_ID=DRKS00023560.

Ireland

2019 ◽  
pp. 181-188
Author(s):  
Catherine Dolan ◽  
Brian Lawlor
Keyword(s):  
Economic Burden ◽  
Medical Model ◽  
Dementia Care ◽  
Acute Hospital ◽  
Care Model ◽  
Relevant Research ◽  
Diagnosis Of Dementia ◽  
Standards And Guidelines ◽  
The Republic ◽  
Traditional Medical Model

This chapter examines the prevalence and pathways to the diagnosis of dementia, as well as dementia care infrastructure, in the Republic of Ireland. The economic burden of dementia in Ireland is explored, including both formal and informal costs. Dementia care in the community, residential, and acute hospital settings is described. Associated policy, legislation, standards, and guidelines relevant to dementia care in Ireland are addressed. Current funding structures are examined. The contributions of dementia-specific educational efforts and relevant research in Ireland are highlighted. Challenges encountered in moving from a more traditional medical model of dementia care to a psycho-social, person-centred care model in Ireland, including inequitable funding allocation, are outlined.

P2-275: DEMENTIA CARE INTEGRATION BETWEEN PRIMARY CARE PROVIDER AND TERTIARY HOSPITALIST: AN INNOVATIVE DEMENTIA SHARED CARE MODEL

2014 ◽  
Vol 10 ◽  
pp. P577-P577
Author(s):  
Mei Sian Chong ◽  
Colin Tan ◽  
Cindy Yeo ◽  
Kang Yih Low ◽  
Philomena Anthony ◽  
...  
Keyword(s):  
Primary Care ◽  
Care Provider ◽  
Primary Care Provider ◽  
Dementia Care ◽  
Shared Care ◽  
Care Model ◽  
Care Integration ◽  
Shared Care Model

scholarly journals Dementia care model: Promoting personhood through co-production

2019 ◽  
Vol 81 ◽  
pp. 59-73 ◽  
Author(s):  
Alessandro Bosco ◽  
Justine Schneider ◽  
Donna Maria Coleston-Shields ◽  
Martin Orrell
Keyword(s):  
Dementia Care ◽  
Care Model

scholarly journals The Use of Integrated Concept Mapping to Develop the Dementia Care Model by Community Participation

2014 ◽  
Vol 17 (7) ◽  
pp. A771
Author(s):  
R. Hanrinth ◽  
N. Sooksai ◽  
P. Rangseekajee ◽  
S. Namtatsanee ◽  
C. Wisedsorn ◽  
...  
Keyword(s):  
Community Participation ◽  
Concept Mapping ◽  
Dementia Care ◽  
Care Model ◽  
Integrated Concept

scholarly journals Person-Centered Dementia Care in China: A Bilingual Literature Review

2019 ◽  
Vol 5 ◽  
pp. 233372141984434 ◽  
Author(s):  
Jing Wang ◽  
Bei Wu ◽  
Barbara J. Bowers ◽  
Michael J. Lepore ◽  
Ding Ding ◽  
...  
Keyword(s):  
Literature Review ◽  
Empirical Studies ◽  
Dementia Care ◽  
Care Model ◽  
Data Infrastructure ◽  
Evaluation Systems ◽  
Starting Point ◽  
Centered Care ◽  
Good Starting Point ◽  
Bilingual Literature

We conducted a bilingual literature review of the existing studies focusing on person-centered dementia care in China. We synthesized key findings from included articles according to three overarching themes: Chinese cultural relevance of person-centered care (PCC), perceived needs for PCC for older adults in China, implementation and measurement of PCC in China, and person-centered dementia care model. We also drew on frameworks, theories, and other contents from the examined articles to develop a person-centered dementia care model with specific relevance to China. The model is a good starting point to help us operationalize globally relevant core principles of PCC in the specific sociocultural context of China. The framework will be informed by more empirical studies and evolve with the ongoing operationalization of PCC. Although PCC is a new concept and has not been vigorously or systematically studied in China, it is attracting increasing attention from Chinese researchers. More empirical studies are needed to link PCC to measurable outcomes, enrich the framework for applying PCC, and construct assessment and evaluation systems to facilitate the provision of PCC across countries and cultures. Global consortia and collaborations with multidisciplinary expertise to develop a PCC common data infrastructure that is internationally relevant for data sharing and comparison are needed.

‘It was peaceful, it was beautiful’: A qualitative study of family understandings of good end-of-life care in hospital for people dying in advanced age

2019 ◽  
Vol 33 (7) ◽  
pp. 793-801 ◽  
Author(s):  
Merryn Gott ◽  
Jackie Robinson ◽  
Tess Moeke-Maxwell ◽  
Stella Black ◽  
Lisa Williams ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Advanced Age ◽  
Local Context ◽  
Life Care ◽  
Good Care ◽  
Compassionate Care ◽  
Care Model ◽  
Bereaved Family

Background: Hospitals are important sites of end-of-life care, particularly for older people. A need has been identified to understand best practice in hospital end-of-life care from the service-user perspective. Aim: The aim of this study was to identify examples of good care received in the hospital setting during the last 3 months of life for people dying in advanced age from the perspective of bereaved family members. Design: A social constructionist framework underpinned a qualitative research design. Data were analysed thematically drawing on an appreciative enquiry framework. Setting/participants: Interviews were conducted with 58 bereaved family carers nominated by 52 people aged >80 years participating in a longitudinal study of ageing. Data were analysed for the 21 of 34 cases where family members were ‘extremely’ or ‘very’ satisfied with a public hospital admission their older relative experienced in their last 3 months of life. Results: Participants’ accounts of good care aligned with Dewar and Nolan’s relation-centred compassionate care model: (1) a relationship based on empathy; (2) effective interactions between patients/families and staff; (3) contextualised knowledge of the patient/family; and (4) patients/families being active participants in care. We extended the model to the bicultural context of Aotearoa, New Zealand. Conclusion: We identify concrete actions that clinicians working in acute hospitals can integrate into their practice to deliver end-of-life care with which families are highly satisfied. Further research is required to support the implementation of the relation-centred compassionate care model within hospitals, with suitable adaptations for local context, and explore the subsequent impact on patients, families and staff.

P3-374: MemoryCare: A community based dementia care model

2011 ◽  
Vol 7 ◽  
pp. S635-S635
Author(s):  
Margaret Noel ◽  
Margaret Noel
Keyword(s):  
Dementia Care ◽  
Care Model ◽  
Community Based
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