scholarly journals Experiences of Persons with Disabilities and their Quality of Life in Two Namibian Villages

2021 ◽  
Vol 32 (2) ◽  
pp. 6
Author(s):  
Tonderai Washington Shumba ◽  
Indres Moodley
Keyword(s):  
Quality Of Life ◽  
Persons With Disabilities

scholarly journals Individual quality of life and the environment – towards a concept of livable areas for persons with disabilities in Poland

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Izabela Grabowska ◽  
Radosław Antczak ◽  
Jan Zwierzchowski ◽  
Tomasz Panek
Keyword(s):  
Quality Of Life ◽  
Environmental Conditions ◽  
Basic Research ◽  
Research Problem ◽  
Individual Characteristics ◽  
Living Conditions ◽  
Special Focus ◽  
Persons With Disabilities ◽  
The Relationship

Abstract Background The United Nations Convention on the Rights of Persons with Disabilities [1] highlights the need to create proper socioeconomic and political conditions for persons with disabilities, with a special focus on their immediate living conditions. According to the Convention, these conditions should be built to ensure that persons with disabilities have the potential to enjoy a high quality of life (QoL), and this principle is reflected in the notion of livable areas. The crucial aspect of this framework is the relationship between the individual QoL and the environment, broadly understood as the socioeconomic as well as the technical conditions in which persons with disabilities function. Methods The basic research problem was to assess the relationship between individual QoL for the population with disabilities as a dependent variable and livability indicators as independent variables, controlling for individual characteristics. The study used a dataset from the EU-SILC (European Union Statistics on Income and Living Conditions) survey carried out in 2015 in Poland. The research concept involved several steps. First, we created a variable measuring the QoL for the entire population with disabilities. To measure the multidimensional QoL, we used Sen’s capability approach as a general concept, which was operationalized by the MIMIC (multiple indicators multiple causes) model. In the second step, we identified the livability indicators available in the official statistics, and merged them with survey data. Finally, in the last step, we ran the regression analysis. We also checked the data for the nested structure. Results We confirmed that the general environmental conditions, focused on creating livable areas, played a significant role in shaping the QoL of persons with disabilities; i.e., we found that the higher the level of the local Human Development Index, the higher the quality of life of the individuals living in this area. This relationship held even after controlling for the demographic characteristics of the respondents. Moreover, we found that in addition to the general environmental conditions, the conditions created especially for persons with disabilities (i.e., services for this group and support for their living conditions) affected the QoL of these individuals. Conclusions The results illustrate the need to strengthen policies aimed at promoting the QoL of persons with disabilities by creating access to community assets and services that can contribute to improving the life chances of this population.

scholarly journals Locked Out

2017 ◽  
Vol 26 (4) ◽  
pp. 555-576 ◽  
Author(s):  
VERONICA JOHANSSON ◽  
SURJO R. SOEKADAR ◽  
JENS CLAUSEN
Keyword(s):  
Quality Of Life ◽  
Moral Responsibility ◽  
Medical Condition ◽  
Persons With Disabilities ◽  
Social Barriers ◽  
Computer Interfaces ◽  
Novel Approach ◽  
Viable Solution ◽  
Key Issues

Abstract:Brain–computer interfaces (BCIs) can enable communication for persons in severe paralysis including locked-in syndrome (LIS); that is, being unable to move or speak while aware. In cases of complete loss of muscle control, termed “complete locked-in syndrome,” a BCI may be the only viable solution to restore communication. However, a widespread ignorance regarding quality of life in LIS, current BCIs, and their potential as an assistive technology for persons in LIS, needlessly causes a harmful situation for this cohort. In addition to their medical condition, these persons also face social barriers often perceived as more impairing than their physical condition. Through social exclusion, stigmatization, and frequently being underestimated in their abilities, these persons are being locked out in addition to being locked-in. In this article, we (1) show how persons in LIS are being locked out, including how key issues addressed in the existing literature on ethics, LIS, and BCIs for communication, such as autonomy, quality of life, and advance directives, may reinforce these confinements; (2) show how these practices violate the United Nations Convention on the Rights of Persons with Disabilities, and suggest that we have a moral responsibility to prevent and stop this exclusion; and (3) discuss the role of BCIs for communication as one means to this end and suggest that a novel approach to BCI research is necessary to acknowledge the moral responsibility toward the end users and avoid violating the human rights of persons in LIS.

scholarly journals Conceptualization, operationalization, and content validity of the EQOL-questionnaire measuring quality of life and participation for persons with disabilities

2018 ◽  
Vol 16 (1) ◽  
Author(s):  
Louise Norman Jespersen ◽  
Susan Ishøy Michelsen ◽  
Bjørn Evald Holstein ◽  
Tine Tjørnhøj-Thomsen ◽  
Pernille Due
Keyword(s):  
Quality Of Life ◽  
Content Validity ◽  
Persons With Disabilities

scholarly journals ‘Quality of Life’ of Persons with Disability: An Assessment in Selected Flood Prone Areas of Bangladesh

2017 ◽  
Vol 1 (1) ◽  
pp. 1-21
Author(s):  
Mir Hasan Shakil Mahmud ◽  
Md. Abul Kalam Azad
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Quantitative Research ◽  
Structured Interview ◽  
Poor Quality ◽  
Persons With Disabilities ◽  
Prone Area ◽  
Post Disaster ◽  
Flood Prone Areas

The present study is on “Quality of Life” of person with disabilities living in flood prone areas of Bangladesh. In this aspect the specific objectives have been designed to determine the effects of disaster on physical and psychological health and social relationship between disabilities and community. The study has also assessed the adaptive capacity of persons with disabilities during and post-disaster period and find out the challenges faced by the persons with disabilities during disaster and post disaster that undermining their quality of life. In the determination of quality of life of PWDs in the selected flood prone area in Bangladesh a mixed method incorporating both qualitative and quantitative research approaches was used to conduct this study by using the tools of observation, case study, and face to face semi structured interview, with PWDs in Northern district of Gaibandha. The study shows that out of 110 respondent, nearly 63 per cent required assistance, while over 38 per cent respondent are required partial assistance, and 20 percent are required supervision. The study reveals that more than 9 per cent of the respondents maintains very poor quality of life while 20 per cent are maintaining poor quality of life, nearly 34 per cent respondents are identified their life neither poor or nor good in selected area.

scholarly journals Coping Behavior of Persons with Disabilities as a Factor of Quality of Life and Subjective Well-Being

2018 ◽  
Vol 26 (4) ◽  
pp. 101-118 ◽  
Author(s):  
S.A. Khazova ◽  
N. Shipova ◽  
T.N. Adeeva ◽  
I.V. Tikhonova
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Coping Behavior ◽  
Well Being ◽  
Separate Analysis ◽  
Subjective Well Being ◽  
High Quality ◽  
Persons With Disabilities ◽  
Rehabilitation Programs

The article presents an analysis of the problem of determining disabled-since-childhood adults’ quality of life. We suggested that coping behavior was a factor of high quality of life and subjective well-being. The sample (N=102) included disabled-since-childhood adults’ (N=51) with visual (N=16), hearing (N=18) and mobility disabilities (N=17) and adults with typical development (N=51). The respondents` average age is 37 years. Methods: the brief questionnaire WHOQOL-BREF in the adaptation of the V.M. Bechterev Research Institute; M.V. Sokolova’s Subjective Well-Being Scale; The Ways of Coping Questionnaire (Folkman, Lazarus, adapted by Kryukova T.L., Kuftyak E.V.). The results indicate a sufficiently high quality of life of adults with disabilities regardless of the type of disorders. The links between coping strategies, indicators of quality of life and subjective well-being are described. Distancing, avoidance and positive revaluation strategies make the greatest contribution to the quality of life. We conducted a separate analysis of the determination of the quality of life by coping strategies in groups of people with various disabilities. The results of the study can be used to develop rehabilitation programs and help people with disabilities.

Healthy Athletes Program as a chance for a good quality of life of persons with intellectual disability and their families in the context of health and pro-health activities

2016 ◽  
Vol 24 (1) ◽  
pp. 19-30
Author(s):  
Anna Nadolska ◽  
Piotr Bejster
Keyword(s):  
Quality Of Life ◽  
Life Expectancy ◽  
Intellectual Disabilities ◽  
Health State ◽  
Special Olympics ◽  
Average Life Expectancy ◽  
Persons With Disabilities ◽  
People With Intellectual Disabilities ◽  
Families With Children

Abstract Background: One of the consequences of improperly extending the process of socialization is incorrect health education and thus, different structure of the behaviors associated with taking care of their own health. More difficult socio-economic situation of families with children with intellectual disabilities may not adequately protect the needs of family members (especially children’s) associated with health. Up to 1/3 of the cases of people with intellectual disabilities of poorer health state can result from lower socio-economic position (Emerson and Hatton, 2007). Educational failure, typical for families of children and young people with intellectual disabilities (especially mild) can result in the children not acquiring appropriate behaviors, important for health. If these behaviors are missing, consequently, can be expected to accelerate the deterioration of health. The health status of people with intellectual disabilities is worse than the state of health in the general population (Allerton, Welch, Emerson, 2011; Tample et al., 2006). The most serious consequence of the poorer health of people with intellectual disabilities is a higher mortality rate (Krahn et al, 2006). The average life expectancy of people with intellectual disabilities is 66 (excluding people with Down syndrome whose life expectancy is even shorter), and so more than 10 years shorter than of people. In so-called intellectual norm! Bearing in mind that access to the highest standard of health care for all people with disabilities is a law that was adopted on 13 December 2006 under the UN Convention on the Rights of Persons with Disabilities, Special Olympics Poland have taken the initiative leading to beneficial changes in quality of life for the players and their families in the context of health and modeling appropriate health behavior through the implementation of the Health Programme, which includes the two related projects: Healthy Athletes and Healthy Special Olympics Community.

scholarly journals Work stress and quality of life in persons with disabilities from four European countries: the case of spinal cord injury

2014 ◽  
Vol 23 (5) ◽  
pp. 1661-1671 ◽  
Author(s):  
Christine Fekete ◽  
Morten Wahrendorf ◽  
Jan D. Reinhardt ◽  
Marcel W. M. Post ◽  
Johannes Siegrist
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Work Stress ◽  
European Countries ◽  
Persons With Disabilities ◽  
Cord Injury

scholarly journals Accessibility of facilities and services for people with disabilities in the paradigm of law

2021 ◽  
Vol 10 (44) ◽  
pp. 188-197
Author(s):  
Dmytro Pryimachenko ◽  
Vladyslav Lipynskyi ◽  
Anna Maslova ◽  
Svitlana Voloshina ◽  
Olena Varhuliak
Keyword(s):  
Quality Of Life ◽  
Positive Experience ◽  
Minimum Level ◽  
Special Design ◽  
Persons With Disabilities ◽  
Major Topic ◽  
Domestic Legislation ◽  
United Nations Convention ◽  
The Right

The authors of the article touch on the major topic of ensuring access of persons with disabilities to facilities and services, which is an indicator of guaranteeing the rights and freedoms of such citizens and ultimately determines the quality of life of such people. The article analyzes the current Ukrainian legislation, as well as international legal acts governing relations regarding access of persons with disabilities to the general infrastructure. The methodology of the article includes methods of analysis, synthesis, formal-legal and comparative-legal methods. The essence of the right of persons with disabilities to access facilities and services is the legally guaranteed possibility of these persons to freely use all facilities and services without any barriers, including through the adaptation of the latter or their special design. The authors of the article thoroughly researched the concept and content of the right of persons with disabilities to access facilities and services. Finally, the authors concluded that the current domestic legislation, although ensuring the minimum level of rights of persons with disabilities in the study area but needs to be improved taking into account the positive experience of European countries and following the United Nations Convention on the Rights of Persons with Disabilities.

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