Chapter 9 - Sailing events and the participant experience

2012 ◽  
Vol 1 (55) ◽  
pp. 113-126
Author(s):  
Holly Henderson
Keyword(s):  
Participant Experience

scholarly journals Evaluation of Nasopharyngeal Swab Collection Techniques for Nucleic Acid Recovery and Participant Experience: Recommendations for COVID-19 Diagnostics

2020 ◽  
Vol 7 (11) ◽  
Author(s):  
Natalie N Kinloch ◽  
Aniqa Shahid ◽  
Gordon Ritchie ◽  
Winnie Dong ◽  
Tanya Lawson ◽  
...  
Keyword(s):  
Nucleic Acid ◽  
Copy Number ◽  
Respiratory Infections ◽  
Nasopharyngeal Swab ◽  
Human Dna ◽  
Acid Recovery ◽  
Participant Experience ◽  
Nasal Anatomy ◽  
Adult Volunteers

Abstract Nasopharyngeal swabs are critical to the diagnosis of respiratory infections including coronavirus disease 2019, but collection techniques vary. We compared 2 recommended nasopharyngeal swab collection techniques in adult volunteers and found that swab rotation following nasopharyngeal contact did not recover additional nucleic acid (as measured by human DNA/RNA copy number). Rotation was also less tolerable for participants. Notably, both discomfort and nucleic acid recovery were significantly higher in Asian participants, consistent with nasal anatomy differences. Our results suggest that it is unnecessary to rotate the swab in place following contact with the nasopharynx and reveal that procedural discomfort levels can differ by ethnicity.

scholarly journals Emergent Knowledge in the Third Space of Art-Science

Leonardo ◽  
2020 ◽  
Vol 53 (3) ◽  
pp. 321-326 ◽  
Author(s):  
Lizzie Muller ◽  
Lynn Froggett ◽  
Jill Bennett
Keyword(s):  
Third Space ◽  
Shared Experience ◽  
Disciplinary Boundaries ◽  
The Public ◽  
The Third ◽  
Knowing That ◽  
Participant Experience ◽  
Visual Matrix ◽  
Affective Dimensions ◽  
Emergent Knowledge

The locus of encounter between art, science and the public can be conceptualized as third space—a generative site of shared experience. This article reports on a group-based psychosocial method led by imagery and affect—the visual matrix—that enables researchers to capture and characterize knowledge emerging in third space, where disciplinary boundaries are fluid and there is no settled discourse. It presents an account of the visual matrix process in the context of an artscience collaboration on memory and forgetting. The authors show how the method illuminates aesthetic and affective dimensions of participant experience and captures the emerging, empathic and ethical knowing that is characteristic of third space.

scholarly journals Research participants as collaborators: Background, experience and policies from the PREVENT Dementia and EPAD programmes

Dementia ◽  
2018 ◽  
Vol 17 (8) ◽  
pp. 1045-1054 ◽  
Author(s):  
Sarah Gregory ◽  
Katie Wells ◽  
Kate Forsyth ◽  
Cate Latto ◽  
Helen Szyra ◽  
...  
Keyword(s):  
Patient Involvement ◽  
Research Participant ◽  
Steering Committee ◽  
Research Participants ◽  
Prospective Cohort Studies ◽  
Participant Experience ◽  
The Impact ◽  
The Brain ◽  
Public And Patient Involvement

Aim Despite the growing importance of public and patient involvement in biomedical research, comparatively little attention has been paid to the important role of research participants themselves. Our aim in this paper is to explore the impact research participant involvement has within the PREVENT and the European Prevention of Alzheimer’s Dementia (EPAD) projects. Method In this paper, we report the experiences of involving research participants as collaborators in prospective cohort studies exploring early changes in the brain as pathways towards and risks for dementia. We use minutes and feedback from members of the panel and steering committee to understand the experience and impact on the study. Results We describe the aims and structure of the participant panel established within the PREVENT Dementia study and highlight its contributions to the organisation, conduct and future of the study. Key areas of contribution identified include recruitment, inclusion of additional sub-studies, understanding the participant experience and contributing to the future of the study. Discussion We then describe how the PREVENT Dementia panel forms the basis for participant involvement within EPAD project.

scholarly journals A day in the life of people with severe mental illness living in supported housing

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Carina Tjörnstrand ◽  
Mona Eklund ◽  
Ulrika Bejerholm ◽  
Elisabeth Argentzell ◽  
David Brunt
Keyword(s):  
Mental Illness ◽  
Severe Mental Illness ◽  
Recovery Process ◽  
Supported Housing ◽  
Activity Level ◽  
Body Of Knowledge ◽  
Manifest Content ◽  
Participant Experience ◽  
Contextual Stimuli ◽  
Emotional Balance

Abstract Background People with severe mental illness (SMI) living in supported housing (SH) struggle in everyday life and we currently lack a comprehensive body of knowledge concerning how the residents experience their day. This paper aimed to gain knowledge about how people with SMI describe a day in SH in Sweden, in particular the activities they most frequently engage in and how they experience what they do in or outside their home. Furthermore, it is important to gain knowledge of which activities motivate residents to leave the housing facility and to participate in the community. This new knowledge can help staff to encourage a recovery process among the residents. Methods One hundred thirty-three people living in SH completed a time-use diary and a mixed-methods approach was applied, including calculations of what activity that was most frequently performed and a manifest content analysis addressing experiences of activity. Results The residents had a low activity level and were often alone. Approximately one-half of the reported activities were performed in their own apartments, and generally unaccompanied. A quarter of the activities were performed in the common areas and a further quarter outside the SH. The most frequently performed activities were quiet and tranquil ones, e.g. listening to music and resting. Doing errands and group activities with staff and residents were the main activities that motivated leaving the facility. The participant experience of a day is presented in three categories: “Experiences of chosen and enforced togetherness and overcoming loneliness”, “Environmental change and emotional balance can generate activity”, and “Met and unmet needs for support, friendship and security”. Conclusions The residents were generally satisfied with their quiet and tranquil lifestyle and appeared to demand little of life, which may relate to previous experiences of institutional life and can constitute a challenge for staff. The findings highlight experiences that can help to improve SH. Services need to support individually adjusted contextual stimuli and individualize the support to help residents find a good balance and motivate them to be active in and outside SH, which can support a recovery process.

scholarly journals P194 Participant experience of multiple breath washout (MBW) testing

2019 ◽  
Vol 18 ◽  
pp. S112
Author(s):  
K. Bayfield ◽  
B. Bianco ◽  
A. Jones ◽  
A. Horsley
Keyword(s):  
Participant Experience ◽  
Multiple Breath Washout
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