scholarly journals Passive Versus Active Circuit During Invasive Mechanical Ventilation in Subjects With Amyotrophic Lateral Sclerosis

2018 ◽  
Vol 63 (9) ◽  
pp. 1132-1138 ◽  
Author(s):  
Elisa De Mattia ◽  
Elisa Falcier ◽  
Andrea Lizio ◽  
Christian Lunetta ◽  
Valeria A Sansone ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Amyotrophic Lateral Sclerosis ◽  
Invasive Mechanical Ventilation ◽  
Active Circuit ◽  
Lateral Sclerosis

scholarly journals MANAGEMENT OF THE PATIENT WITH ADVANCED AMYOTROPHIC LATERAL SCLEROSIS: THE CAREGIVER’S OPINION

2016 ◽  
Vol 15 (1) ◽  
pp. 24-29
Author(s):  
Maria Rivara ◽  
◽  
Cornelius Barlascini ◽  
Paolo Banfi ◽  
Antonello Nicolini ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Amyotrophic Lateral Sclerosis ◽  
Invasive Mechanical Ventilation ◽  
Level Of Care ◽  
Burden Of Care ◽  
Stage Disease ◽  
Heavy Burden ◽  
End Stage ◽  
Lateral Sclerosis

Objectives. The possibility of prolonging and augmenting the quality of life of respiratory patients in end-stage disease and in particular neuromuscular disease patients depends on an increased level of care. Amyotrophic lateral sclerosis (ALS) is a neurological disease characterized by a fast progressive impairment of respiratory function which leads to mechanical ventilation and high burden of care. A specifically designed questionnaire was administered to caregivers to analyze the level of care provided to these patients in our districts. Patients and methods. The study population consisted of 70 patients (44 males and 26 females). Of the 70 patients, 46 were being treated with non-invasive ventilation and 24 with invasive mechanical ventilation. The questionnaire was divided in two parts: questions 1 to 13 investigated life conditions and 14 to 22 the quality of care provided. Results. The patients studied present a heavy burden of care and this is in relation to the quantity of respiratory aids prescribed. The symptom which created statistically significant problems for care was breathlessness, as is often reported in the literature. The presence of homecare tended to create conditions of greater serenity for the caregivers. Conclusions. This study shows that the burden of care in end-stage ALS patients is very onerous, and it can help to point out problems not sufficiently contemplated in healthcare planning.

Tracheostomy mechanical ventilation in amyotrophic lateral sclerosis

2013 ◽  
Vol 328 (1-2) ◽  
pp. 103-104
Author(s):  
Rossella Spataro ◽  
Santino Marchese ◽  
Vincenzo La Bella
Keyword(s):  
Mechanical Ventilation ◽  
Amyotrophic Lateral Sclerosis ◽  
Lateral Sclerosis
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