Negotiating Health Care: The Social Context of Chronic Illness

Author(s):  
Sally Thorne
1995 ◽  
Vol 2 (4) ◽  
pp. 347-350
Author(s):  
Priscilla Alderson

A series of eight multidisciplinary conferences on consent to health care and research was held in London during the period 1992 to 1995. The aim was to present a rich and varied account of consent from the perspectives of academics (especially social scientists), practitioners, and people affected by personal experience. This report summarizes some of the main contributions.


Childhood ◽  
2017 ◽  
Vol 25 (2) ◽  
pp. 203-219 ◽  
Author(s):  
Hélène Kane ◽  
David Fearon

This article promotes the understanding of how children experience chronic illness in Mauritania, West Africa. The analysis of interviews with 31 children highlights the impact of health care on children. Children construct their own unique interpretations of their illness, employing concepts from the biomedical and popular approaches to health. This research contributes to literature by expanding the understanding of how children minimise the symptom burden to maintain hope and reduce the social impact of their illness.


2021 ◽  
Author(s):  
DaJuan Ferrell ◽  
Celeste Campos-Castillo

BACKGROUND Largely absent from research on how users appraise the credibility of professionals as sources for the information they find on social media is work investigating factors shaping credibility within a specific profession, such as physicians. OBJECTIVE We address debates about how physicians should use social media by comparing how a formal and casual appearance on a profile picture influences their credibility. Using prominence-interpretation theory, we posit an effect of a formal appearance on credibility conditional users’ social context, specifically whether they have a regular health care provider. METHODS For this experiment, we recruited 205 social media users using Amazon.com’s Mechanical Turk. We asked participants if they had a regular health care provider and then randomly assigned them to read one of three Twitter posts that varied only in the profile picture of the physician offering health advice. Next, we tasked participants with assessing the credibility of the physician and their likelihood of engaging with the tweet and the physician on Twitter. We used path analysis to assess whether participants having a regular health care provider impacted how the profile picture affected their ratings of physician’s credibility and their likelihood to engage with the tweet and physician on Twitter. RESULTS We found that the profile picture of a physician posting health advice in either formal or casual attire did not elicit significant differences in credibility, with ratings comparable to having no profile image. Among participants assigned the formal appearance condition, those with a regular provider rated the physician higher on a credibility than those without, which led to stronger intentions to engage with the tweet and physician. CONCLUSIONS The findings add to existing research by showing how the social context of information seeking on social media shapes the credibility of a specific professional. Practical implications for professionals engaging with the public on social media and combating false information include moving past debates about casual versus formal appearances and toward identifying ways to segment audiences.


2019 ◽  
Vol 74 (Suppl. 2) ◽  
pp. 8-14
Author(s):  
John F. Helliwell

The paper explains how subjective well-being can be measured, how the resulting data are being used to document human progress and how health care can be changed to take advantage of what has been learned. The evaluations that people make of their own lives document, and permit the explanation of, life satisfaction levels that differ greatly among countries and communities. Research seeking to explain these happiness differences, and their related differences in mortality and morbidity, exposes the importance of the social context. There is an opportunity and need to change health care from the diagnosis and treatment of illness to the fostering of wellness. The importance of the social context in the successful design and delivery of health and happiness is so great as to support a prescription to turn the “I” into “we,” thereby turning illness into wellness by making the production and maintenance of health and happiness a much more collaborative activity, even in the presence of the increasing complexity of medical science.


2020 ◽  
Vol 17 (2) ◽  
pp. 129-162
Author(s):  
Andreas T. Schmidt

Several Dutch politicians have recently argued that medical voluntary euthanasia laws should be extended to include healthy elderly citizens who suffer from non-medical ‘existential suffering’ (‘life fatigue’ or ‘completed life’). In response, some seek to show that cases of medical euthanasia are morally permissible in ways that completed life euthanasia cases are not. I provide a different, societal perspective. I argue against assessing the permissibility of individual euthanasia cases in separation of their societal context and history. An appropriate justification of euthanasia needs to be embedded in a wider solidaristic response to the causes of suffering. By classifying some suffering as ‘medical’ and some as ‘non-medical’, most societies currently respond to medical conditions in importantly different ways than they do to non-medical suffering. In medical cases, countries like the Netherlands have a health care, health research and public health system to systematically assign responsibilities to address causes of medical suffering. We lack such a system for non-medical suffering among elderly citizens, which makes completed life euthanasia importantly different from euthanasia in medical cases. Because of this moral ‘responsibility gap’, focusing on the permissibility of completed life euthanasia in separation of wider societal duties to attend to possible causes is societally inappropriate. To spell out this objection in more philosophical terms, I introduce the concept of acts that are morally permissible but contextually problematic.


1979 ◽  
Vol 1 (3) ◽  
pp. 361-362
Author(s):  
Michael R. Bury

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