scholarly journals Experiences of caregivers in a home-based palliative care model – A qualitative study

2020 ◽  
Vol 26 (3) ◽  
pp. 306
Author(s):  
Aneka Paul ◽  
Elaine Fernandes
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Care Model ◽  
Home Based

scholarly journals Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers

Nursing Open ◽  
2020 ◽  
Vol 7 (4) ◽  
pp. 1260-1268
Author(s):  
Hadi Hassankhani ◽  
Azad Rahmani ◽  
Amy Best ◽  
Fariba Taleghani ◽  
Zohreh Sanaat ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Home Based

The Toll Death Takes: A Glimpse Into Home-Based Palliative Care Provision in India

2018 ◽  
Vol 99 (4) ◽  
pp. 347-357
Author(s):  
Aneka Paul
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Public Healthcare ◽  
Care Provision ◽  
Culturally Appropriate ◽  
Care Model ◽  
Home Based ◽  
The World ◽  
Health Related

Millions of people around the world die in pain or continue to live with serious health-related suffering. Palliative care is an approach that attempts to improve the quality of life of patients and their families, by relieving their pain holistically, across physical, psychological, social, and spiritual domains. Palliative care is practiced in a variety of ways in India, but the home-based palliative care model seems to be the most culturally appropriate and economically acceptable. This article analyzes home-based services offered across India by seven leading palliative care organizations, including elements that could be adapted into the country’s public healthcare system, thereby providing relief and solace to the countless suffering, within their very homes.

scholarly journals 1 Loss of relationship: a qualitative study of families and caregivers after home-based palliative care ends

2018 ◽  
Author(s):  
Megan Vierhout ◽  
Jaymie Varenbut ◽  
Elizabeth Amos ◽  
Sandy Buchman ◽  
Russell Goldman ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Home Based

Development of a Home-Based Palliative Care Model for People Living With End-Stage Renal Disease

2013 ◽  
Vol 15 (4) ◽  
pp. E1-E11 ◽  
Author(s):  
Somporn Kantharadussadee Triamchaisri ◽  
Barbara E. Mawn ◽  
Jintana Artsanthia
Keyword(s):  
Palliative Care ◽  
Renal Disease ◽  
End Stage Renal Disease ◽  
Care Model ◽  
Home Based ◽  
Stage Renal Disease ◽  
End Stage

scholarly journals Home-based palliative care management: what are the useful resources for general practitioners? a qualitative study among GPs in France

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Carol-Anne Boudy ◽  
Tiphanie Bouchez ◽  
Didier Caprini ◽  
Isabelle Pourrat ◽  
Stéphane Munck ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
General Practitioners ◽  
Real Life ◽  
Continuous Medical Education ◽  
Care Practice ◽  
Multidisciplinary Teams ◽  
Structured Interviews ◽  
Home Based ◽  
At Home

Abstract Background Most French people (71%) would like to die at home, but only one out of four actually do. While the difficulties inherent in the practice of home-based palliative care are well described, few studies highlight the resources currently used by general practitioners (GPs) in real life. We have therefore sought to highlight the resources actually used by GPs providing home-based palliative care. Methods Twenty-one GPs of different ages and practice patterns agreed to participate to this qualitative study based upon semi-structured interviews. They were recruited according to a purposive sampling. Transcripts analysis was based upon General Inductive Analysis. Results The resources highlighted have been classified into two main categories according to whether they were internal or external to the GPs. The internal resources raised included the doctor’s practical experience and continuous medical education, personal history, work time organization and a tacit moral contract related to the referring GP’s position. External resources included resource personnel, regional assistance platforms and health facilities, legislation. Conclusion This study provides a simple list that is easy to share and pragmatic solutions for GPs and policymakers. Home-based palliative care practice can simultaneously be burdensome and yet a fulfilling, meaningful activity, depending on self-efficacy and professional exhaustion (burnout), perhaps to a greater extent than on medical knowledge. Home-based palliative care promotion is a matter of social responsibility. The availability of multidisciplinary teams such as regional assistance platforms and Hospitalization at Home is particularly important for the management of palliative care. Policymakers should consolidate these specific resources out of hospitals, in community settings where the patients wish to end their life.

scholarly journals Loss of relationship: a qualitative study of families and healthcare providers after patient death and home-based palliative care ends

2019 ◽  
Vol 8 (2) ◽  
pp. 130-139 ◽  
Author(s):  
Megan Vierhout ◽  
Jaymie Varenbut ◽  
Elizabeth Amos ◽  
Sandy Buchman ◽  
Amna Husain ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Healthcare Providers ◽  
Patient Death ◽  
Home Based

Experiences of Volunteers and Patient Satisfaction in Home Based Palliative Care, Puducherry, South India—A Descriptive Qualitative Study

2021 ◽  
pp. 082585972110264
Author(s):  
Sadhana Subramanian ◽  
Sonali Sarkar ◽  
Mathavaswami Vijayageetha ◽  
S Adhinarayanan
Keyword(s):  
Palliative Care ◽  
Patient Satisfaction ◽  
Qualitative Study ◽  
Ageing Population ◽  
Care Programme ◽  
Care Services ◽  
Home Based ◽  
Palliative Care Services ◽  
Palliative Care Programme ◽  
Descriptive Qualitative

Context: Increasing burden of non-communicable diseases and ageing population has parallely increased the need for Palliative care. Unavailable, inaccessible, and inadequate palliative care services in our setting increased the need for volunteers. In Puducherry, palliative care programme was implemented through trained volunteers in 2015. Aims: To explore the experiences of volunteers who provide palliative care and also to get feedback on volunteering from the patients who received care. Settings and Design: A descriptive qualitative study was carried out at two Non-Governmental Organizations (NGO) working for palliative care in and around Puducherry. Methods and Material: Participants were selected purposively to include seven volunteers and eight patients to attain information saturation. The time period of this study was between September and October 2018. Analysis Used: Manual thematic analysis was done to identify codes, which were grouped to form categories and themes. Results: Factors that facilitated participants to take up the role of volunteers were witnessing the death of family members with unmet palliative care when required and experiences in organizations working for elderly and disabled children. Improvement in patients’ condition and patient satisfaction motivated them to continue, despite lack of resources and social support. Their perception was of having become bolder and empathetic by working as palliative care volunteers. Patients reported satisfaction with the provision of drugs and other materialistic support like clothes and sweets during festivals; however, their basic and financial needs remained unmet. Conclusion: The palliative care programme or the National programme for elderly should focus on components that would improve the quality of palliative care by reducing patients’ dissatisfaction. Support in terms of provision of drugs, financial help and nutrition is necessary to improve both the patients’ and volunteers’ satisfaction in palliative care services.

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