scholarly journals Parenting stress and impact of illness in parents of children with coeliac disease

2013 ◽  
Vol 5 (4) ◽  
pp. 19 ◽  
Author(s):  
Maria Stella Epifanio ◽  
Vitalba Genna ◽  
Maria Grazia Vitello ◽  
Michele Roccella ◽  
Sabina La Grutta
Keyword(s):  
Coeliac Disease ◽  
Parenting Stress ◽  
Stress Index ◽  
Healthy Children ◽  
Critical Areas ◽  
Distress Level ◽  
Parenting Role ◽  
The Impact ◽  
Parenting Distress

Coeliac disease (CD) is a chronic disease which could stress patients and their family. Although, poor attention has been paid to the quality of life in CD children and to the functioning of families with CD children. The study aims to evaluate the parenting perception of the CD impact and the parenting distress level. A group of 74 parents of CD children compiled the Impact Childhood Illness Scale and the Parenting Stress Index which is also compiled by 74 parents of health children. The assessment does not reveal a significant impact of CD on patient’s personal life although some critical areas emerged. Results evidenced an higher level of parenting stress in parents of CD children than parents of healthy children. CD, if suitably managed, has not a critical impact on parenting perception. Although, CD certainly put parents through an higher risk of a distress related to parenting role than parents with health children. A early identification of parenting distress in a pediatric chronic illness could facilitate the adjustment to pathology.

scholarly journals Cognitive development of children with Kawasaki disease and the parenting stress of their caregivers in Taiwan: a case–control study

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e042996
Author(s):  
Liang-Jen Wang ◽  
Zi-Yu Tsai ◽  
Ling-Sai Chang ◽  
Ho-Chang Kuo
Keyword(s):  
Coronary Artery ◽  
Kawasaki Disease ◽  
Parenting Stress ◽  
Case Control Study ◽  
Short Form ◽  
Case Control ◽  
Stress Index ◽  
Secondary Outcome ◽  
Healthy Children ◽  
Control Study

ObjectiveKawasaki disease (KD) is an acute form of febrile vasculitis that occurs in early childhood. The multisystemic vasculitis common in patients with KD may influence blood perfusion in the brain, and thus caregivers of children with KD may feel stress with regard to caring for them. Intravenous immunoglobulin (IVIG) infusion is the standard treatment for acute KD, and the most serious complication of KD is coronary artery aneurysms (coronary artery lesion (CAL)). This study aimed to investigate the relationships between KD heterogeneity and the risk of patients’ cognitive impairment or caregivers’ parenting stress.DesignA case–control study with consecutive sampling.SettingA medical centre (Kaohsiung Chang Gung Memorial Hospital, Taiwan).ParticipantsThis study consisted of 176 patients with KD (mean age: 5.5 years, 60.8% boys) and 85 healthy children (mean age: 6.4 years, 54.1% boys).Primary and secondary outcome measuresBased on the children’s age, each patient with KD and control subject was administered an assessment using the Mullen Scales of Early Learning or the Wechsler Intelligence Scale, and parenting function of their caregivers was assessed using the Parenting Stress Index (PSI)-Short Form.ResultsWe observed no significant differences in any developmental index, cognitive function or parenting stress between patients with KD and controls. Among the children with KD, IVIG administration nor CAL was associated with children’s cognitive scores. However, the caregivers of patients who had CAL suffered from greater PSI total scores than those of patients without CAL. Furthermore, the caregivers who had education levels of a master’s degree or above showed less parenting stress than those who had an education level of college or lower.ConclusionCaregivers’ education is associated to parenting stress, and caregivers of patients with KD who developed CAL may feel stress about the unpredictable sequela caused by CAL for their children. Such caregivers may require support to fulfil their parenting roles.

Quality of life of children with tuberous sclerosis complex

2019 ◽  
Vol 104 (10) ◽  
pp. 972-978 ◽  
Author(s):  
Choong Yi Fong ◽  
Kexin Ng ◽  
Ann Nie Kong ◽  
Lai Choo Ong ◽  
Mohamed Ahmad Rithauddin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenting Stress ◽  
Psychosocial Health ◽  
Summary Score ◽  
Healthy Children ◽  
Proxy Report ◽  
Chinese Ethnicity ◽  
Scale Scores ◽  
Clinically Significant

AimEvaluation of impaired quality of life (QOL) of Malaysian children with tuberous sclerosis complex (TSC) and its possible risk factors.MethodCross-sectional study on 68 parents of Malaysian children aged 2–18 years with TSC. QOL was assessed using proxy-report Paediatric Quality of Life Inventory (PedsQL) V.4.0, and scores compared with those from a previous cohort of healthy children. Parents also completed questionnaires on child behaviour (child behaviour checklist (CBCL)) and parenting stress (parenting stress index-short form). Multiple regression analysis was used to determine sociodemographic, medical, parenting stress and behavioural factors that impacted on QOL.ResultsThe mean proxy-report PedsQL V.4.0 total scale score, physical health summary score and psychosocial health summary score of the patients were 60.6 (SD 20.11), 65.9 (SD 28.05) and 57.8 (SD 19.48), respectively. Compared with healthy children, TSC patients had significantly lower mean PedsQL V.4.0 total scale, physical health and psychosocial health summary scores (mean difference (95% CI): 24 (18–29), 20 (12–27) and 26 (21–31) respectively). Lower total scale scores were associated with clinically significant CBCL internalising behaviour scores, age 8–18 years and Chinese ethnicity. Lower psychosocial health summary scale scores were associated with clinically significant CBCL internalising behaviour scores, Chinese ethnicity or >1 antiepileptic drug (AED).ConclusionParents of children with TSC reported lower PedsQL V.4.0 QOL scores in all domains, with psychosocial health most affected. Older children, those with internalising behaviour problems, of Chinese ethnicity or on >1 AED was at higher risk of lower QOL. Clinicians need to be vigilant of QOL needs among children with TSC particularly with these additional risk factors.

Sleep Bruxism and Anxiety Impacts in Quality of Life Related to Oral Health of Brazilian Children and their Families

2017 ◽  
Vol 41 (3) ◽  
pp. 179-185 ◽  
Author(s):  
Nashalie Andrade de Alencar ◽  
Cecília Sued Leão ◽  
Anna Thereza Thomé Leão ◽  
Ronir Raggio Luiz ◽  
Andréa Fonseca-Gonçalves ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Logistic Regression ◽  
Oral Health ◽  
Trait Anxiety ◽  
Sleep Bruxism ◽  
Study Data ◽  
Healthy Children ◽  
Socioeconomic Characteristics ◽  
The Impact

Objective: This study aimed to assess the impact of parent reported sleep bruxism, trait anxiety and sociodemographic/socioeconomic features on quality of life related to oral health (OHRQoL) of children and their families. Study Design: Healthy children aged 3–7 years, with (n=34) and without (n=32) bruxism were select for this study. Data was collected by applying the following instruments: The Early Childhood Oral Health Scale (B-ECOHIS) and Trait-anxiety Scale (TAS). The sociodemographic/socioeconomic characteristics were obtained by interviews with parents. Multiple logistic regression tests were performed to observe the influence of sociodemographic/socioeconomic characteristics, bruxism and trait-anxiety on the children's OHRQoL. Results: No association between sleep bruxism and all evaluated sociodemographic/socioeconomic conditions, with exception of being the only child (p=0.029), were observed. Mean B-ECOHIS and TAS scores were different (p<0.05) between children with (3.41 ± 4.87; 45.09 ± 15.46, respectively) and without (0.63 ± 1.28; 29.53 ± 11.82, respectively) bruxism. Although an association between bruxism and OHRQoL (p=0.015) was observed, it was dropped (p=0.336; OR=1.77) in the logistic regression model. Trait anxiety was the variable responsible for the impact on the OHRQoL of children (p=0.012; OR=1.05). Conclusion: Our results indicated anxiety as the main factor that interfered in the OHRQoL of children with sleep bruxism

Mothers of Children with Asthma: Perceptions of Parenting Stress and the Mother-Child Relationship

1992 ◽  
Vol 71 (3_suppl) ◽  
pp. 1139-1148 ◽  
Author(s):  
David K. Carson ◽  
Roger W. Schauer
Keyword(s):  
Parenting Stress ◽  
Comparison Group ◽  
Healthy Children ◽  
Perceived Parenting ◽  
Asthmatic Children ◽  
Child Relationship ◽  
Behavioral Difficulty ◽  
Children With Asthma ◽  
Mother Child Relationship

In a study of 41 mothers of asthmatic children ranging from 8 to 13 years of age, perceived parenting stress was greater and the quality of the mother-child relationship more problematic than for a comparison group of mothers with healthy children. These mothers also perceived certain areas of behavioral difficulty in their asthmatic children that were greater than those of children in a comparative sample of mothers. The findings suggested that mothers and their asthmatic children may be at risk for a variety of individual and relational problems.

scholarly journals Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities

2020 ◽  
Vol 17 (23) ◽  
pp. 9007
Author(s):  
Cristina Jenaro ◽  
Noelia Flores ◽  
Belén Gutiérrez-Bermejo ◽  
Vanessa Vega ◽  
Carmen Pérez ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Parenting Stress ◽  
Parental Stress ◽  
Family Members ◽  
Family Quality Of Life ◽  
Quality Of Life Scale ◽  
The Family ◽  
The Impact

(1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy to adulthood. We hypothesized that it is possible to predict parenting stress by paying attention to the meaning families give to themselves and their circumstances while controlling for the impact of other variables such as family capabilities and characteristics of the family member with disabilities. We used the Beach Center Family Quality of Life Scale and the section on Exceptional needs of medical and behavioral support from the Supports Intensity Scale, together with other potential predictors. The subscale on parental stress from the Parenting Stress Index–Short Form was utilized as a criterion measure. (3) Results. Hierarchical multiple regression analysis revealed that 49% of parental stress was predicted by dysfunctional interaction, difficult behaviors, low emotional wellbeing, poor family interaction, as well as kinship as parents, and the severity of both the medical needs and intellectual disability. (4) Conclusions. The stress experienced by those families is mostly predicted by the meaning they give to themselves and their circumstances. Implications of these findings for service delivery are discussed.

Systematic review: Exploration of the impact of psychosocial factors on quality of life in adults living with coeliac disease

2021 ◽  
pp. 110537
Author(s):  
Stephan P. Möller ◽  
Bree Hayes ◽  
Helen Wilding ◽  
Pragalathan Apputhurai ◽  
Jason A. Tye-Din ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Coeliac Disease ◽  
Psychosocial Factors ◽  
The Impact

scholarly journals Examining the impact of emotional and behavioral problems on parenting stress in mothers of children with autism in Mongolia

2020 ◽  
pp. 48-58
Author(s):  
Bulganzaya Tumurbaatar ◽  
Baigalmaa Chuluunbaatar
Keyword(s):  
Parenting Stress ◽  
Behavioral Problems ◽  
Short Form ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Emotional And Behavioral Problems ◽  
Stress Index ◽  
Convenience Sample ◽  
Bivariate Correlation ◽  
The Impact

The present study examined the effects of emotional and behavioral problems on parenting stress among mothers of children with autism in Mongolia. The hypothesis is that if children with autism presented more problems on their emotional and behavioral aspects, the higher parenting stress perceived among the mother of children with autism. The convenience sample of the study was composed of 62 mothers of children with autism spectrum disorder. The present study used the Parenting Stress Index-Short form (PSI/SF) and the Strengths and Difficulties Questionnaire (SDQ), which are translated into Mongolian language by research team. Using the current sample of mothers of children with autism, Cronbach`s alpha coefficients of PSI/SF-M was 0.94 and SDQ-M was 0.62 for our sample. Bivariate correlation between the variables measuring difficulties of child and parenting stress revealed the existence of small to moderate correlations between SDQ subscales and PSI/SF subscales. PSI/SF total score and SDQ total score are correlated significantly at 0.35 (p=0.01). Difficult child subscale is correlated mild to moderate with SDQ total score (0.53), emotional symptoms (0.37), hyperactivity/inattention (0.35) and conduct problem (0.50) in positive way. Strong correlations were found between subscales of PSI/SF (0.67-0.89). The result of multiple regression analysis indicated that in addition with emotional and behavioral problems of children, income sufficiency of household and social support variables is significantly associated with parenting stress of mothers.

Comparison of Children with Migraine and Those with Tension-Type Headache for Psychiatric Symptoms and Quality of Life

2019 ◽  
Author(s):  
Burak Sadettin Açıkel ◽  
Ayhan Bilgiç ◽  
Hatice Derin ◽  
Arzu Eroğlu ◽  
Ömer Faruk Akça ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Sleep Disturbances ◽  
Psychiatric Symptoms ◽  
Sleep Onset ◽  
Tension Type Headache ◽  
Control Group ◽  
Healthy Children ◽  
Type Headache ◽  
The Impact

AbstractThis study compared the severity of depression, anxiety, somatization, anxiety sensitivity, sleep disturbances, and quality of life (QoL) among children with migraine, children with tension-type headache (TTH), and healthy children. A total of 37 children with migraine, 22 with TTH, and a healthy control group (n = 35) participated in this study. Children with migraine exhibited higher depression and somatization and lower QoL scores than those in the control group. General sleep disturbances, bedtime resistance, sleep onset delay, sleep duration, sleep anxiety, night wakings, sleep-disordered breathing, and daytime sleepiness scores were also higher in those in the migraine group than in the control group. Regression models indicated that the severity of headache and depression scores significantly affected the QoLs of children with headache disorder as a whole. Migraine is associated with depression, somatization, sleep disturbances, and poor QoL, whereas TTH is associated with only sleep disturbances in childhood. The impact of headache on the QoL occurs mainly through the headache-specific and psychiatric factors.

scholarly journals Assessment of quality of life and physical and mental health in children and adolescents with coeliac disease compared to their healthy peers

2019 ◽  
Vol 147 (5-6) ◽  
pp. 301-306
Author(s):  
Bilјana Stojanovic ◽  
Rasa Medovic ◽  
Nela Djonovic ◽  
Zoran Lekovic ◽  
Dragan Prokic ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Coeliac Disease ◽  
Children And Adolescents ◽  
Control Group ◽  
Healthy Children ◽  
Physical And Mental Health ◽  
Subjective Quality Of Life ◽  
Cross Sectional ◽  
Significant Difference

Introduction/Objective. Strict gluten-free diet for life is the only treatment for patients with coeliac disease. Limited selection of food options can affect their quality of life and cause problems in acceptance by their peers. The aim was to examine the subjective quality of life experience in children and adolescents with coeliac disease and to obtain a comprehensive representation of physical and mental impairments and social functioning compared to their healthy peers. Methods. The study was conducted as a cross-sectional study. It included 116 respondents aged 5?18 years with coeliac disease and 116 healthy children of similar age and sex. A Serbian version of Pediatric Quality of Life Inventory (PedsQL) was used to measure the quality of life in children. Descriptive statistics were calculated to analyze all results, while t-test was used to compare them. Results. The mean value of total PedsQL score was lower in the coeliac disease patients (75.89 ? 20.35) than in the controls (86.35 ? 11.13). Additionally, the experimental group reported lower all PedsQL Scale scores than the control group in the domains of psychosocial, school, social, and emotional functioning. However, there was no statistically significant difference on the physical health scale. These results were the same in all age groups among both males and females. Conclusions. The disturbance of health-related quality of life in children and adolescents with coeliac disease is significant and the quality of life is lower if compared to their healthy peers.

scholarly journals A LONGITUDINAL STUDY OF HEALTH-RELATED QUALITY OF LIFE IN PRIMARY SCHOOL CHILDREN

2020 ◽  
Vol 4 (14) ◽  
pp. 62-69
Author(s):  
Zhanna V. Sotnikova-Meleshkina ◽  
Nataliia Н. Mikhanovska ◽  
Hanna E. Ostrovska
Keyword(s):  
Quality Of Life ◽  
Primary School ◽  
School Children ◽  
Educational Process ◽  
Life Assessment ◽  
Primary School Children ◽  
Healthy Children ◽  
The Impact ◽  
School Activity

Background. The modern medical community considers the quality of life assessment as the main and reliable tool for population-based health surveys, which are extremely relevant in the context of the persistence of the negative trend of its deterioration among school children. Most of the questionnaires are designed for children with pathological conditions, and studies of relatively healthy children are few and relate mainly to aspects of the level of physical activity and sports, and do not take into account the impact of the educational process. Aim: to determine the dynamics of changes in the quality of life associated with the health of primary school children in the learning process by quantitative and qualitative characteristics Material and methods. A prospective study was conducted over four school years through a survey using an adapted Ukrainian-language questionnaire for primary school students (624 children aged 7-11) and their parents (616 people). T-test, multiple correlations and one-way analysis of variance in the licensed software package IBM SPSS Statistics v.20.0, graph-models of correlation structures and their system analysis were used for statistical data processing. Results. The influence of gender, age, and year of study on the scale of relationships with peers, the probable increase in the 4th grade of school activity according to children, and vice versa, its decrease according to the parental version were revealed. The highest level of quality of life is set on the scale "Emotional activity", and the lowest - on school activities and relationships with adults. During the first two years of study, the main system-forming structures were emotional and physical activities, and in old age, school activity became more important. The largest qualitative differences like the links between the second and third year of the study indicated that this period of study was critical for children, and the reduction in the labilization rate indicated sufficient compensation. Conclusions. According to the study of the quality of life associated with health in the 4-year dynamics of learning, the most critical period was the transition from the second to the third grade with the preservation of a synchronized system of self-assessment of their condition. The level of physical, emotional and social functioning had certain gender and age characteristics and depended to a greater extent on the period of the educational process. The scales of school activity and socialization in their age group were especially influenced. The study found inconsistency in the perception of school life and satisfaction with communication between children and adults.

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