scholarly journals Challenges Caring for Adults With Congenital Heart Disease in Pediatric Settings: How Nurses Can Aid in the Transition

2016 ◽  
Vol 36 (4) ◽  
pp. e1-e8 ◽  
Author(s):  
Kristin Anton
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adult Patients ◽  
Complex Congenital Heart Disease ◽  
Comorbid Conditions ◽  
Adult Care ◽  
Hospital System ◽  
Number Of Patients ◽  
Increased Risk

As surgery for complex congenital heart disease is becoming more advanced, an increasing number of patients are surviving into adulthood, yet many of these adult patients remain in the pediatric hospital system. Caring for adult patients is often a challenge for pediatric nurses, because the nurses have less experience and comfort with adult care, medications, comorbid conditions, and rehabilitation techniques. As these patients age, the increased risk of complications and comorbid conditions from their heart disease may complicate their care further. Although these patients are admitted on a pediatric unit, nurses can aid in promoting their independence and help prepare them to transition into the adult medical system. Nurses, the comprehensive medical teams, and patients’ families can all effectively influence the process of preparing these patients for transition to adult care.

scholarly journals Heart Transplantation in Congenital Heart Disease: In Whom to Consider and When?

2013 ◽  
Vol 2013 ◽  
pp. 1-12 ◽  
Author(s):  
Christine H. Attenhofer Jost ◽  
Dörthe Schmidt ◽  
Michael Huebler ◽  
Christian Balmer ◽  
Georg Noll ◽  
...  
Keyword(s):  
Heart Failure ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Heart Transplantation ◽  
Lung Transplantation ◽  
Congenital Heart ◽  
Complex Congenital Heart Disease ◽  
Eisenmenger’S Syndrome ◽  
Number Of Patients ◽  
Increased Risk

Due to impressive improvements in surgical repair options, even patients with complex congenital heart disease (CHD) may survive into adulthood and have a high risk of end-stage heart failure. Thus, the number of patients with CHD needing heart transplantation (HTx) has been increasing in the last decades. This paper summarizes the changing etiology of causes of death in heart failure in CHD. The main reasons, contraindications, and risks of heart transplantation in CHD are discussed and underlined with three case vignettes. Compared to HTx in acquired heart disease, HTx in CHD has an increased risk of perioperative death and rejection. However, outcome of HTx for complex CHD has improved over the past 20 years. Additionally, mechanical support options might decrease the waiting list mortality in the future. The number of patients needing heart-lung transplantation (especially for Eisenmenger’s syndrome) has decreased in the last years. Lung transplantation with intracardiac repair of a cardiac defect is another possibility especially for patients with interatrial shunts. Overall, HTx will remain an important treatment option for CHD in the near future.

Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease

2009 ◽  
Vol 11 (4) ◽  
pp. 291-297 ◽  
Author(s):  
Alison Knauth Meadows ◽  
Valerie Bosco ◽  
Elizabeth Tong ◽  
Susan Fernandes ◽  
Arwa Saidi
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Complex Congenital Heart Disease ◽  
Adult Care

Neurovascular Function and Cognition in Adult Patients With Complex Congenital Heart Disease

2018 ◽  
Vol 27 ◽  
pp. S400-S401
Author(s):  
R. Wong ◽  
M. Al-Omary ◽  
N. Spratt ◽  
P. Howe ◽  
C. Levi ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adult Patients ◽  
Complex Congenital Heart Disease

scholarly journals Impact of COVID-19 in adult patients with congenital heart disease

2021 ◽  
Vol 42 (Supplement_1) ◽  
Author(s):  
I Cardoso ◽  
T B Branco ◽  
A Constante ◽  
J Martins ◽  
L Sousa ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Septal Defect ◽  
Adult Patients ◽  
Transposition Of Great Arteries ◽  
Tertiary Centre ◽  
Increased Risk ◽  
Atrioventricular Canal Defect ◽  
The Impact

Abstract Background COVID-19 is responsible for a worldwide pandemic, causing more than 13 000 deaths to date in Portugal. Data already exists regarding the increased risk of adverse events in patients with cardiovascular diseases, however the impact of SARS-CoV-2 infection in patients (P) with congenital heart disease (CHD) is still under investigation. Aims To evaluate the impact of COVID-19 in adult patients with congenital heart disease in our tertiary centre Methods Adult patients seen at the CHD outpatient's clinic at a tertiary centre, who became infected with SARS-CoV-2 infection up to February 2021 were included. Assessment of patients' symptoms, need for hospitalization and admission in an intensive care unit was assessed based on medical records. Results We identified 36 patients (pts) with COVID-19 infection. Symptoms were present in 31 (86%). The median age was 39 (32–49) years, 58% were females. Seven P (19%) had complex cyanotic disease; three (8%) Tetralogy of Fallot; three (8%) transposition of great arteries (one after Senning procedure and 2 after arterial switch); six (14%) right ventricle obstacle; two (8%) atrioventricular canal defect; four (11%) atrial septal defect; five (14%) ventricular septal defect; five (14%) aortic coarctation; two aortopathies (one submitted do David procedure); one subaortic stenosis; two (6%) had Eisenmenger syndrome. The majority (61%) of P had previous surgery and 58% were at New York Heart Association class of I. Mild symptoms were reported by 24 P (67%). Seven adults experienced moderate symptoms (dyspnea and hypoxia) that led to hospitalization for oxygen therapy, although none required mechanical ventilation. One death was reported. There was a significant association between the gravity of CHD and hospitalizations (p=0.012). Conclusion Our pts had mainly mild to moderate symptoms and did not appear to have a disproportionately negative outcome; the need for hospitalization was more frequent in patients with higher CHD gravity. These findings are in line with the emerging data regarding COVID-19 in CHD P, and may be in part explained by the patient's young age and functional status. FUNDunding Acknowledgement Type of funding sources: None.

scholarly journals Anaesthesia risks for non-cardiac procedures in cardiac patients

2020 ◽  
pp. S22-S24
Author(s):  
A Schure
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Cardiac Patients ◽  
Complex Congenital Heart Disease ◽  
Cardiac Procedures ◽  
Number Of Patients

The number of patients with complex congenital heart disease (CHD) presenting for non-cardiac procedures is steadily increasing and more and more anaesthesiologists will be asked to participate in their care. This can be a very challenging task and will require adequate planning and preparation, but also some basic scientific inquiries.

scholarly journals Comorbidities with Congenital Heart Disease among Hospitalized Children in a Specialized Cardiac Hospital in Bangladesh

2017 ◽  
Vol 9 (2) ◽  
pp. 83-89
Author(s):  
Shahina Akhter Mita ◽  
Md Salim ◽  
Md Ataul Haque ◽  
Abdullah Shahriar ◽  
Md Nazneen Umme Zakia ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Septal Defect ◽  
Complex Congenital Heart Disease ◽  
Comorbid Condition ◽  
Comorbid Conditions ◽  
Transposition Of Great Arteries ◽  
Different Types ◽  
Valvular Lesion

Background: Congenital heart diseases (CHD) when associated with any comorbid condition may complicate the outcome of management. So to find out and treat comorbidities before definite treatment is essential for better outcome. Methods: This observational cross sectional study was conducted in the inpatient Department of Paediatric Cardiology at National Institute of Cardiovascular Diseases, Dhaka, during the period of January 2014 to January 2015 to identify the comorbid conditions of congenital heart disease.Results: A total of 794 children with different types of congenital heart disease were enrolled during the study period. Among them, 48.6% were simple CHD and 51.4% were complex CHD. Among simple CHD, ventricular septal defect (VSD) was commonest (27.2%), Tetralogy of Fallot (TOF) occupied the second position (20.5%). One child presented with Ectopia cardis. Among complex CHD most common anomalies were VSD with either atrial septal defect (ASD) or patent ductus arteriosus (PDA) or valvular lesion. Next common anomalies were TOF with PDA or ASD &/or pulmonary valvular abnormalities. Double outlet of right ventricle (DORV) with shunt and transposition of great arteries (TGA) with shunt also occur frequently. AV canal defect with or without valvular lesion presented in significant number. Among them 616 (77.6%) had different types of comorbid conditions. Among comorbidities, respiratory and acquired cardiac comorbidities were common (37.9% & 34.1% respectively). Other congenital or genetic comorbidities were in 11.2%. Multisystem involvement was in 9.8% cases.Conclusion: Pneumonia and heart failure were the most frequent comorbid condition among both simple and complex congenital heart disease. They were common among acyanotic heart disease. But cyanotic spell, acute stroke syndrome and brain abscess were common among cyanotic heart disease. Among genetic comorbidities Down’s syndrome occupied the major part.Cardiovasc. j. 2017; 9(2): 83-89

High prevalence of abnormal glucose metabolism in young adult patients with complex congenital heart disease

2009 ◽  
Vol 158 (1) ◽  
pp. 30-39 ◽  
Author(s):  
Hideo Ohuchi ◽  
Yoshihiro Miyamoto ◽  
Masaki Yamamoto ◽  
Haruko Ishihara ◽  
Hidemi Takata ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Young Adult ◽  
Glucose Metabolism ◽  
Congenital Heart ◽  
Adult Patients ◽  
Complex Congenital Heart Disease ◽  
Abnormal Glucose Metabolism ◽  
High Prevalence

Adult congenital heart disease interventions: recommendations from a Joint Working Group of the British Congenital Cardiac Association, British Cardiovascular Intervention Society, and the British Cardiovascular Society

2012 ◽  
Vol 23 (1) ◽  
pp. 68-74 ◽  
Author(s):  
Shakeel A. Qureshi ◽  
David Hildick-Smith ◽  
Jo de Giovanni ◽  
Paul Clift ◽  
Graham Stuart ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Working Group ◽  
Congenital Heart ◽  
Adult Congenital Heart Disease ◽  
Adult Patients ◽  
Complex Congenital Heart Disease ◽  
Joint Working Group ◽  
Adult Congenital ◽  
Cardiovascular Intervention

AbstractIn order to optimise care of the adult patients with complex congenital heart disease, there is a need to develop recommendations for interventions. This document is the work of representatives of the three relevant societies and provides recommendations for institutions and operators performing cardiac interventions in these patients.

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