scholarly journals Addressing Health and Well-being of U.S. Chinese Older Adults through Community-Based Participatory Research: Introduction to the PINE Study

2015 ◽  
Vol 2 (3) ◽  
pp. 261-270 ◽  
Author(s):  
XinQi Dong ◽  
2010 ◽  
Vol 2010 ◽  
pp. 1-12 ◽  
Author(s):  
XinQi Dong ◽  
E-Shien Chang ◽  
Esther Wong ◽  
Bernarda Wong ◽  
Kimberly A. Skarupski ◽  
...  

The objective of this study is to examine the cultural views of healthy aging, knowledge and barriers to services, and perception of health sciences research among community-dwelling Chinese older adults in Chicago's Chinatown. This qualitative study is guided by the Precede-Proceed conceptual model with community-based participatory research design. Data analysis is based on eight focus group interviews with Chinese older (age60+) adults (n=78). We used a grounded theory framework to systematically guide the thematic structure of our data. Findings show participants described cultural conception of health in terms of physical function, psychological well-being, social support, and cognitive function. The availability, affordability, and cultural barriers towards health care services were major negative enabling factors that inhibit participants from fulfilling health needs. Perception and knowledge of health sciences research were also discussed. This study has implications for the delivery of culturally appropriate health care services to the Chinese aging population.


2019 ◽  
Vol 21 (3) ◽  
pp. 355-362 ◽  
Author(s):  
Alejandra Calva ◽  
Rebecca A. Matthew ◽  
Pamela Orpinas

The value of community assessments depends on the researchers’ ability to reach a diverse and representative sample of participants. This process is particularly challenging when assessing the health and well-being of vulnerable populations that are reticent to participate in research because of demographic and sociopolitical factors. One such group is Latinxs (the gender-neutral version of Latinos or Latinas) of mixed immigration status who live in low-income, socially and geographically isolated enclaves in the Southeast. Framed by community-based participatory research and social marketing theories, this study describes practical strategies for health researchers, practitioners, and advocates seeking to engage and build trusting relationship within U.S. Latinx communities. First, identify and leverage points of entry to different segments of the communities of interest by engaging meaningful gatekeepers from different sections of the population and searching for places where potential participants gather. Second, reduce the burden of assessments by using incentives and creating intentional reciprocity. Third, establish critical, long-lasting trust with community members, leaders, and allies by adapting data collection procedures, ensuring confidentiality, engaging bilingual facilitators, and most important, being present with and for the community. Finally, presenting the findings back to the community can increase the ownership of the process.


2011 ◽  
Vol 38 (3) ◽  
pp. 271-281 ◽  
Author(s):  
Jayne R. Pivik ◽  
Hillel Goelman

A process evaluation of a consortium of academic researchers and community-based service providers focused on the health and well-being of children and families provides empirical and practice-based evidence of those factors important for community-based participatory research (CBPR). This study draws on quantitative ratings of 33 factors associated with CBPR as well as open-ended questions addressing the benefits, facilitators, barriers, and recommendations for collaboration. Eight distinct but related studies are represented by 10 academic and 9 community researchers. Even though contextual considerations were identified between the academic and community partners, in large part because of their focus, organizational mandate and particular expertise, key factors for facilitating collaboration were found across groups. Both community and academic partners reported the following as very important for positive collaborations: trust and mutual respect; adequate time; shared commitment, decision making, and goals; a memorandum of understanding or partnership agreement; clear communication; involvement of community partners in the interpretation of the data and information dissemination; and regular meetings. The results are compared to current models of collaboration across different contexts and highlight factors important for CBPR with community service providers.


2021 ◽  
Vol 20 ◽  
pp. 160940692110362
Author(s):  
Jordana Salma ◽  
Deena Giri

Community-based participatory research (CBPR) approaches have been important avenues for addressing community vulnerability during pandemics and times of crises. There has been little guidance, however, on how to approach CBPR within the context of the COVID-19 pandemic where physical distancing and closure of essential community organizations became the norm. This study discusses challenges and possibilities of using CBPR during a pandemic to address the needs of immigrant and racialized older adults in Alberta, Canada. Two case studies of active research projects that aim to engage immigrant and racialized older adults are presented. Three key challenges are identified related to research activities during the pandemic: (a) pivoting as new foci emerge, (b) recognizing inequity in research participation, and (c) reflecting on well-being in the research team. Approaches to addressing these challenges are highlighted with recommendations for future considerations in CBPR research within vulnerable communities.


Affilia ◽  
2018 ◽  
Vol 33 (3) ◽  
pp. 379-394 ◽  
Author(s):  
Felicia M. Mitchell

Historical accounts of research conducted in American Indian (AI) communities have shown that research activities have not always been in the best interest of tribes. In some instances, research conducted with tribes has been harmful and resulted in unnecessary trauma and distress. In response to past wrongdoings, many researchers now seek to engage tribal communities in research that is collaborative, respectful, and reciprocal. Community-based participatory research (CBPR) is one such “epistemological orientation” that has the potential to address the “oppressive, exploitive legacy of research done on Indigenous people.” This article details the author’s experience of engaging in CBPR during their dissertation study of the significance of water and its relationship to AI health and well-being. The author reflects on their firsthand account of developing and implementing the study in partnership with a local tribe. Particular attention is given to the processes of CBPR through an illustrative case example that took place on an AI reservation located in the Midwestern United States. The case example is informed by “counter storytelling” and is critically reviewed using the principle tenants of CBPR. The article concludes with implications for doctoral education and research with AI communities.


2019 ◽  
Vol 3 (s1) ◽  
pp. 96-96
Author(s):  
Karen D. Calhoun ◽  
Kent Key ◽  
E. Yvonne Lewis ◽  
Susan J Woolford ◽  
E. Hill DeLoney ◽  
...  

OBJECTIVES/SPECIFIC AIMS: o To review the community’s recommendations on how to rebuild trust in the Flint community. o To review effective community engagement strategies utilized with the Flint Special Projects for project conceptualization, participant recruitment, data analysis, project oversight, and dissemination. METHODS/STUDY POPULATION: The study population includes nearly two hundred residents representing seniors, youth and diverse ethnicities recruited to participate in eleven focus group meetings. The population also represents the general public who attended informational meetings in Flint, Michigan to learn about the crisis and allow residents to voice their opinions and concerns during the onset of the crisis. The project is a mixed methods community based participatory research effort that utilized community decision making in all phases of the effort such as pre-conception, implementation, dissemination and advocacy to encourage the community’s recommendations are adopted at policy and institutional responsiveness levels. It includes three community engaged research efforts: (project 1) A qualitative analysis of community sentiment provided during 17 recorded legislative, media and community events, and (projects 2-3) two mixed methods efforts utilizing purposive sampling of stakeholders whose voice may not have been heard. RESULTS/ANTICIPATED RESULTS: The project presents a qualitative analysis of the community’s voice during the onset of the man-made disaster when the community first became aware of the emergency manager’s plans to switch the water source. It also reflects current perspectives of community voice since the projects are scheduled to end late February 2019. Findings from a trust measure administered to nearly two hundred residents will be presented, along with a qualitative analysis of focus group findings among segments of the population (seniors, youth, and diverse ethnicities) who may have been left out of narratives on the water crisis. Finally, the project will compare empowerment and resiliency approaches being utilized in Flint, Michigan to recover from the disaster with other approaches grounded in literature and theory. DISCUSSION/SIGNIFICANCE OF IMPACT: Communities of color often experience social determinants of health which negatively impact their health, well-being and human rights. Some Flint citizens are experiencing negative health consequences (i.e., rashes, brain and behavioral sequelle, fertility, etc.) as a result of the disaster, and are uncertain of health outcomes in the future. This is the first project to rigorously document and analyze levels of trust and mistrust in the city of Flint since the water disaster occurred. The qualitative research will guide future clinical research that will benefit this traumatized community experiencing high levels of mistrust (i.e., government, elected officials, etc.). The community engaged methodology involved residents and study participants in all phases of the project including project oversight, validating and analyzing data, and dissemination. This methodology will contribute to existing literature and theory on community based participatory research, community engaged research, team science and citizen science. The approaches empowered a call to action among residents, for example, seniors who attended two senior focus group sessions shared “they are hopeful and have a purpose,” resulting in the creation of a council (with officers) at their housing complex to advocate for the well-being of seniors during the recovery process. Recruitment methodologies were extremely successful due to resident level trust in community leaders and community partner organizations. Finally, the project’s examination of approaches encouraging empowerment and resiliency will provide lessons learned for other communities challenged with crisis.


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