Quality Of Life In Caregivers Of Children And Adolescents With Mental Disorders

Tinnitus is a common otologic symptom and probably the most troublesome. Tinnitus causes a number of physical and psychological consequences, that interfere with the quality of life of the patient. Many authors believe that the presence of tinnitus in children is a matter of lesser importance than in adults because it is met less frequently and would be a fleeting symptom, inoffensive for them (Graham, 1981). In addition, the prevalence of tinnitus during adolescence and even in young adults is increasing, possibly as a consequence of the increased ambient noise (Bulbul SF, Shargorodsky J). Various therapeutic approaches have generated different results, which led us to consider the role of psychological factors, hence the need to underline the particularities of this symptom in childhood.

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Faculty Opinions recommendation of Health related quality of life of children and adolescents with congenital adrenal hyperplasia in Brazil.

Faculty Opinions – Post-Publication Peer Review of the Biomedical Literature ◽

10.3410/f.725663181.793508338 ◽

2015 ◽

Author(s):

Phyllis Speiser

Keyword(s):

Quality Of Life ◽

Congenital Adrenal Hyperplasia ◽

Children And Adolescents ◽

Health Related Quality ◽

Adrenal Hyperplasia ◽

Related Quality ◽

Health Related

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Impact of the COVID-19 Pandemic on the Mental Health and Quality of Life of Children and Adolescents

SSRN Electronic Journal ◽

10.2139/ssrn.3671434 ◽

2020 ◽

Author(s):

Ulrike Ravens-Sieberer ◽

Anne Wüstner ◽

Christiane Otto ◽

Michael Erhart ◽

Janine Devine ◽

...

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Children And Adolescents

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Adaptation and validation of the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) in Brazilian asthmatic children and adolescents

Jornal de Pediatria ◽

10.2223/1283 ◽

2005 ◽

Vol 81 (1) ◽

pp. 54-60 ◽

Cited By ~ 16

Author(s):

Cintia S. K. La Scala ◽

Charles K. Naspitz ◽

Dirceu Solé

Keyword(s):

Quality Of Life ◽

Children And Adolescents ◽

Pediatric Asthma ◽

Life Questionnaire ◽

Asthmatic Children ◽

Quality Of Life Questionnaire

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Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease

10.1093/oso/9780195169850.001.0001 ◽

2006 ◽

Keyword(s):

Quality Of Life ◽

Sickle Cell Disease ◽

Childhood Cancer ◽

Children And Adolescents ◽

Peer Relationships ◽

Sickle Cell ◽

Cell Disease ◽

Life Issues ◽

Art Research

Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.

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Quality of Life in Caregivers of Children and Adolescents with Autistic Spectrum Disorder: Development and Validation of the Questionnaire

Brain Sciences ◽

10.3390/brainsci11070924 ◽

2021 ◽

Vol 11 (7) ◽

pp. 924

Author(s):

Claudia B. Pratesi ◽

Alessandra Baeza Garcia ◽

Riccardo Pratesi ◽

Lenora Gandolfi ◽

Mariana Hecht ◽

...

Keyword(s):

Quality Of Life ◽

Physical Health ◽

Children And Adolescents ◽

Internal Consistency ◽

Autistic Spectrum Disorder ◽

Spectrum Disorder ◽

Autistic Spectrum ◽

The Social ◽

Health Domains

Studies have shown that children and adolescents with autism and their relatives present a high level of stress and more family problems, impacting parents’ and caregivers’ quality of life (QoL). Despite studies on this subject, there is no specific questionnaire to evaluate QoL in parents or caregivers of children and adolescents with an autistic spectrum disorder (ASD) in Brazil. Therefore, this study’s primary purpose was to develop and validate a specific questionnaire to evaluate QoL in these individuals. The study was performed using the following steps: development of the ASD Parent/caregiver QoL questionnaire (autistic spectrum disorder parent/caregiver quality of life—ASDPC-QoL), subjective evaluation, validation of the questionnaire by the Delphi method, assessment of internal consistency, responsiveness, and reliability of the ASLPC-QoL, and administration of the questionnaire to 881 Brazilian ASD caregivers or parents. ASDPC-QoL comprises 28 questions divided into four domains (social, concerns, physical and mental health) with good psychometric properties (reproducibility, reliability, internal consistency, responsiveness, and validity). Our data showed that worries and physical health were the domains with the lowest scores in ASDPCA-QoL. ASDPCA-QoL did not differ among gender and age of child considering the total and all domains. Older participants (≥41 y/o) presented the best scores for social and worries domains but did not differ in other domains and the total. Parents or caregivers of ASD children diagnosed for more than three years have better mental and physical health domains than those recently diagnosed (up to 1 year) but did not differ in the total and other domains. Individuals with a partner and with the highest educational level present the best score for the social domain. Employed individuals showed better scores than unemployed ones for all domains and the total, except for worries, which did not differ. It also occurred comparing the individuals that do not use antidepressants and the ones that use them. Assessing and better understanding the QoL of caregivers is highly relevant. By understanding the social, worries, physical, and emotional health domains of caregivers, it is possible to track harmful aspects, prevent and treat pathologies, in addition to assisting in the implementation of effective public policies.

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